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by henry123
Tue May 29, 2018 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 13762

Re: Trying Keytruda Off-Label (MSS with a Twist)

UPDATE: I had one treatment and 3 weeks later my CEA has gone from 39.4 to 60.1....so I am thinking that Keytruda is not working for me. I had my second treatment but I don't expect it to help. (MY oncologist said it may be too early to make that determination...). Just wanted to update you all on ...
by henry123
Sun May 27, 2018 3:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 47801

Re: Switching back to Pembro

Even my oncologist has asked me to be off any supplements. I only take aspirin on his advice and occasional curcumin tablets. These immunotherapy drugs are so new that doctors don't have data on drug interactions. If I understood the paper on Vit D and pdl1, it may be harmful at high doses. Please c...
by henry123
Fri May 25, 2018 3:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CEA just came back at 447. Please Help!
Replies: 8
Views: 1620

Re: My CEA just came back at 447. Please Help!

Teresa, My cea levels too went crazy after completing Chemo. Unfortunately the beast had come back with a vengeance. And it didn't respond to any line of the chemos. Luckily, immunotherapy seems to have worked out fine. You have written colon gene. What do you mean by that? Is it Lynch syndrome. Als...
by henry123
Tue May 22, 2018 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 47801

Re: Switching back to Pembro

Hi guys, Those of you who are on pembro or Opdivo, have you considered adding aspirin to your daily regime. Please discuss with your med oncologist. It seems at least opdivo gives a better bite for the buck in combination with aspirin. http://www.bioworld.com/content/nonsteroidal-anti-inflammatory-d...
by henry123
Tue May 22, 2018 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 47801

Re: Switching back to Pembro

Hi guys, Those of you who are on pembro or Opdivo, have you considered adding aspirin to your daily regime. Please discuss with your med oncologist. It seems at least opdivo gives a better bite for the buck in combination with aspirin. http://www.bioworld.com/content/nonsteroidal-anti-inflammatory-d...
by henry123
Mon May 21, 2018 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about MSI
Replies: 3
Views: 769

Re: Question about MSI

Hello,
Please read my history.
Study and consider immunotherapies such as opdivo, keytruda as an option. It seems to be working for msi-high cases only so far.
by henry123
Tue May 15, 2018 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with, single with baby stage 4
Replies: 10
Views: 2607

Re: 38 with, single with baby stage 4

Keep your spirits up.
What has to happen, has to happen.
We can only work /fight to the best of our ability.
Pray well , eat well and get the best oncologist in a large institution that you have access to. I can't overemphasise the last point.
by henry123
Sun May 06, 2018 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CAR-T Immunotherapy Eliminates Metastatic Colorectal Cancer in Mice
Replies: 5
Views: 1473

Re: CAR-T Immunotherapy Eliminates Metastatic Colorectal Cancer in Mice

A lot of optimism around Car T cell immunotherapy.
Hopefully it will be available soon as a standardised treatment for most types of cancers especially CRC.
by henry123
Thu May 03, 2018 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please need prayers
Replies: 23
Views: 6908

Re: Please need prayers

Best wishes.
Prayers for good outcome.
And all the strength to you to cheerfully accept whatever be the outcome.
by henry123
Thu May 03, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: She’s gone...
Replies: 15
Views: 6451

Re: She’s gone...

So sorry to hear about your loss.
by henry123
Tue May 01, 2018 2:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 13762

Re: Trying Keytruda Off-Label (MSS with a Twist)

Best wishes Cynthia.
May the drug do its magic and destroy all the tumors.
by henry123
Mon Apr 30, 2018 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 72
Views: 24386

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

Exercise is a fantastic way to reduce risk of recurrence IMHO. Better diet probably is too. I tried to reduce sugar and add fiber, and added Vit D, baby aspirin, coriolus versicolor PSK mushroom, and BCM curcumin. Though I have been slacking off on these supplements for the past few years, I still ...
by henry123
Sat Apr 21, 2018 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 1783

Re: Lentin/Biobran/MGN3

I am using curcumin tablets, 15 to 20 apricot kernels, some moringa leaves in juice and 150 mg aspirin. Occasional 1000 iu vitamin D tablet .
by henry123
Sat Apr 21, 2018 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 47801

Re: Switching back to Pembro

Plastikos you might like this thread form Big Rob here http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=55586 He started it with that mention of that trial but ended up with pembro /Keytruda. Wonderfullymade , I do know you already have read that thread. Thanks Maia. Sorry between wo...
by henry123
Fri Apr 20, 2018 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 7653

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

I seem to have become quite forgetful as compared to earlier especially with regards to names and upcoming appointments. Could it be related to Nivolumab ? Has anybody else on Opdivo /Keytruda experienced similar memory loss related symptoms. Occasional muscular pains are still there. But overall, ...

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