Search found 1856 matches

Go to advanced search

by rp1954
Tue Feb 13, 2024 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8933

Re: New guy with old questions.

My gut feeling in asking the question was that the likely proper response is NOT to wait on surgery. Knowing what I've seen, read, and all we did, I would say the biggest question is about optimum - WHICH surgery and conditions. Because we took the initiative and aggressively went beyond "stan...
by rp1954
Sun Feb 11, 2024 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8933

Re: New guy with old questions.

Quick update not that it matters a great deal, but just so future posters might learn from my experience. I was quite worried about the side effects of FOLFIRINOX, but I've finished the my first infusion and am scheduled for my second round tomorrow AM but my side effects from the first round were ...
by rp1954
Tue Feb 06, 2024 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Uncommon metastasis for colon cancer
Replies: 10
Views: 2784

Re: Uncommon metastasis for colon cancer

...My husband also has had a very unusual cancer so far - pretty much everything in the past 6 years has been in the <1% of cases: no primary, isolated lumbar vertebrae met -> adrenal gland met -> rectal primary discovered 4 years down the road -> plexopathy from too much radiation -> isolated ilia...
by rp1954
Mon Feb 05, 2024 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea after surgery
Replies: 4
Views: 835

Re: Cea after surgery

Some asian hospitals have used tighter CEA data, e.g. add one: a day before op, a day(s) after op, 6-10 days later, plus the other "regular" CEA data series, to try to address removal thoroughness and recurrance issues. Likewise, improved use of NSAIDs, nutrients, and IV vitamin C reduces ...
by rp1954
Mon Feb 05, 2024 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How obsessed are you all with diet?
Replies: 10
Views: 1674

Re: How obsessed are you all with diet?

... but i read online how anti oxidant supplements can interfere with chemotherapy effectiveness.... I would suggest , again , that that phrase preys on the intellectual sloth, FUD, and chemical illiteracy of many patients and doctors with broad, confounded, non-specific terminology like "anti...
by rp1954
Mon Feb 05, 2024 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pleural effusion management
Replies: 3
Views: 873

Re: Pleural effusion management

I can't add any of our specific experience directly on effusions with various possible products in the fluid. My view of natural ingredients would differentiate those effects supportive of metabolism and immune function, and those that dented the cancer cells or pathways. If you could review your MC...
by rp1954
Wed Jan 31, 2024 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 with single met to liver
Replies: 6
Views: 1177

Re: Stage 4 with single met to liver

]I was originally diagnosed with Stage 1 and ended up with a liver met a year later...[then]another recurrence... had a reaction to the CAPOX today ... where I couldn't breath ...my joints are numb, I'm all butter fingers... and I have minor tremors Thanks for your post. Sorry for your setbacks. it...
by rp1954
Mon Jan 29, 2024 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo resistance
Replies: 7
Views: 1569

Re: Chemo resistance

Got it on the spreadsheet. I will go back and create that from the beginning. I wasn’t doing any supplements prior to having the HAI installed and that is when the chemo was working so I don’t think it will help much but it will be good to have the numbers on paper. Since the chemo resistance start...
by rp1954
Mon Jan 29, 2024 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo resistance
Replies: 7
Views: 1569

Re: Chemo resistance

...Do you have any thoughts or opinions on Theracurmin instead of curcumin? I actually have a secondary condition that I have been battling for 7 years now and was already taking Theracurmin as part of my regimen. I dropped most of the supplements I was taking once I began treatment for cancer, but...
by rp1954
Fri Jan 26, 2024 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8933

Re: New guy with old questions.

Yes, and one of MSKCC's success stories is that of ColonTalk member mariane , who, according to her signature, was treated with FOLFIRINOX back in 2016 and has been NED ever since 2016 ! Mariane is a success for a broad multimodal attack on colon cancer with liver mets - including surgeries, CA199-...
by rp1954
Fri Jan 26, 2024 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8933

Re: New guy with old questions.

Might I ask what "polite" chemo is? I'm very interested in discussing this topic with my doctors, but its a term I'm unfamiliar with at the moment. "Polite chemo", reflects my struggle to get the difference of chemical choices across. It is not a recognized or familiar term to o...
by rp1954
Fri Jan 26, 2024 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To set a goal or not set a goal; that is the question.
Replies: 7
Views: 1404

Re: To set a goal or not set a goal; that is the question.

As I see many on this board would agree, I try to stay positive in my thoughts. As such I was thinking it might be beneficial mentally to have a ...So, anyways do folks here set goals in their mind or is it too risky and better to stick to smaller and closer in hopes? A drive for goals can be impor...
by rp1954
Fri Jan 26, 2024 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo resistance
Replies: 7
Views: 1569

Re: Chemo resistance

Our experience was that multiple formulas in useful amounts of potent choices were necessary to re-light chemo activity. A little bit like peeling an onion to hit multiple pathways, avoid duds and interferences. Most people do total guesswork, and hence usually have less effect. How would you choose...
by rp1954
Mon Jan 22, 2024 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24705

Re: STAGE IV RC GUYS AND GALS

is Joe. On October 17th last year I learned I had a tumor and in November it was found to be Stage IV but oligo (don't know the proper full spelling) having reached 2 left side Common Iliac lymph nodes. Fortunately my team of doctors are treating me with curative intent instead of giving up on my c...
by rp1954
Mon Jan 22, 2024 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re: New guy with old questions.
Replies: 41
Views: 8933

Re: New guy with old questions.

Hi everybody, My thoughts and prayers go out to each and everyone of us on this board. Here's hoping we all achieve NED in 2024! Anyways, a quick introduction:In August of this year I finally realized that the narrow stools and blood in my stool was not just from hemorrhoids so I got myself schedul...

Go to advanced search