Fatigue is the most persistent. It started out as just standard fatigue, but has since progressed to what can only be described as narcoleptic. The last two weeks I have seen a large increase in bleeding during loose bowel movements, which have become frequent enough to keep me from sleeping. I was ...

It's been awhile since I've been on... what's up with Keytruda? Anything else i should know about? Quick overview: Hubby originally stage 3.. then became stage 4 with liver mets and others showing in abdomen and around that area. 6 months of Folfiri with Avastin shrunk EVERYTHING (we also did Iscad...

Sorry to hear this. I recommend getting comprehensive set of germline mutations tested for, like Lynch syndrome.

This news made my day. Good luck.

My husband had none. He had a stomach ache on a Wednesday. Worked the rest of the week, finally the following Sunday night he let me take him to the ER. Stage IV, innumerable and inoperable mets to liver. He was 46 at diagnosis. Sooo frustrating to have no symptoms and to be too young to even think...

Thanks for the response. I was assuming i dont have it cuz iwasnt losing weight but i was having some symptoms for the past 2 years bleeding on and off expecting it was only hemorhoids but few months the symptoms got worse now im having stomach pain on the right side and under the rib so i got a li...

Definitely get a comprehensive set of germline genetic tests. Contact a genetic counselor at Memorial Sloan Kettering.

Also, don’t ask if you’re going to die. Even if your cancer is advanced like mine they have no idea beyond “probably”. “Probably” may be true statistically as a population but we are individuals. So get your tumor staged, treatment protocol decided on, and work at it until you’re cured or can live y...

I feel slightly better. This surgeon at Columbia Presreally knew his stuff. He was factual and direct and when I asked him if I was going to die he replied, not from this Ct scan. The Ct scan showed that it isn't in any lymph nodes, not in the liver, kidneys, pancreas, etc. they did not get to see ...

Lynch is not just about lifetime colorectal risks. That is just the most well known and largest risk. There are a litany or other cancers you have to watch out for. There are also other germline genetic mutations clinically relevant for other cancers.

Rectal bleeding. Some discomfort sitting.

Where do you live? If around New York, memorial Sloan Kettering is good. They accept most insurance. If not, call anyway and see if they can figure out how to help you. This step may take patience.

Yeah. I didn’t lose weight until chemotherapy destroyed my appetite.

My first genetic testing was through myriad, which found the two clinically important mutations I had. MSK also did this but the results were identical.

Ah I understand. I am sensitive to misinformation going around the internet with our disease because most people will try just about anything out of desperation. So a counterbalance against that impulse is important if you want to be objective about treatment. That being said, I read some more of yo...