We are in the middle of our journey with my sister, the mother of 5, who has colon cancer with liver mets and a KRAS mutation. How do we begin to find a trial that she can be accepted into? I am going to hunt this down but need some guidance about where to begin. Thanks for your advice. Helen Hi He...

DK, Is there a possibility that you can add a column to the finder maybe containing a filter with Date Added/Updated? It would make it easier to locate the newest information. I have a tendency to forget which I last looked at and that I had interest in and end up review some multiple times. A Date...

HI Everyone, FYI Maia and I did a major update of the curated MSS-CRC Clinical Trial Finder App, there have been a lot of new trials registered lately! http://colorectalmsstrials.org/ Of note: not a single new trial excludes for prior PD-1 inhibitor use – so as predicted/hoped – I think that old str...

Thank you Jorteg0128! I started my first updated infusion of FOLFIRI/Erbitux + Maraviroc pill today! We'll know in a month if this treatment combo is working - either through the next scan (April), CEA or clinical symptoms. The liver tumors were so fast growing, I think the clinical symptoms may giv...

HI Everyone, FYI Maia and I did a major update of the curated MSS-CRC Clinical Trial Finder App, there have been a lot of new trials registered lately! http://colorectalmsstrials.org/ Of note: not a single new trial excludes for prior PD-1 inhibitor use – so as predicted/hoped – I think that old str...

Have you discussed stereotactic radiotherapy (cyber knife) with your team for the liver spots? I just had a long-dormant liver met come back to life whilst on my otherwise positive immunotherapy trial. The docs prefer this technology over RF ablation by virtue of its accuracy, and the possibility o...

Hi Everyone- My first time logged onto CT for a while - things have been kind of crazy... Physically I am dealing with some increase medical issues and I have been scrambling to readjust plans - the liver issue is serious... Full story at the link at the bottom of this post, excerpts from a blog I w...

Hi Everyone! With the help of Maia, I updated my MSS-CRC clinical trial finder yesterday. About *ten* new clinical trials were added, there are becoming quite a long list of possible immunotherapy trial for MSS-CRC patients to look into- The MSS-CRC Clinical Trial Finder Web/Phone App is at this web...

The final countdown has begun... infusion of trillions of viruses in my oncolytic virus + PD1 inhibitor MSS-CRC clinical trial set: Feb 27th!!

https://adventuresinlivingterminallyopt ... has-begun/

Take care,
(a very excited) -DK37

After a long time without any blog post personal updates - I finally felt ready to make one today! "SO THIS IS WHAT CANCER FEELS LIKE" https://adventuresinlivingterminallyoptimistic.com/2017/01/14/so-this-is-what-cancer-feels-like/ Excerpts: There have been huge impacts on my and my family...

Five days and ~700 users later… we’re ready for our next MSS-CRC CURATED CLINICAL TRIAL LIST UPDATE! Available at http://colorectalmsstrials.org/ For those wanting more info: to repeat a few special notes below. 1.) Web browser app: http://bit.ly/2jaj7tc Make sure to click on “Update Data” on the bo...

THANK YOU!!
The cards have been arriving! - Much appreciated!

-DK

I think this is an important aspect of my/Maia/Jana's project, so I wanted to bump this comment I made in this thread: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=56842 to its own post. I love the COMMUNITY aspect of optimizing how good this Clinical Trial Resource is! Cheers, DK...

Hi Vilca, As a response to your comment, I just wanted to start out by saying thank you for posting it. It is a very valid viewpoint... participation is clinical trials is a very personal decision based upon not only medical situation but also personality, life situation etc. Clinical trials are NOT...

DK - Thanks for this - I took a look at the site today attempting to locate a few options for my wife, now that she has failed her first trial (Iri, Erbitux and Avastin) A 20% growth (4 to 6 mm) in 2 of them over a period of 9 months which is the criteria for failure. They were small to begin with....