I'm BRAF mutant! Just waiting for another biopsy on nodes to see what next but they want to enrol me in clinical trial using FOLFIRI, vectibix and zelboraf.
I will be really appreciative if you can give updates on your Dad, how he progresses and side effects etc.
Yes something to be said for taking charge. My last appt with the onc. I fired questions and options and my opinion at every turn and got him to confirm what I interpreted. He then said, how do you know all this stuff, I replied ,.... Huh??!! This is my frickin life we are talking about .... So yeah...
Thank you all for the birthday wishes .... You guys feel like family! KT .... Don't listen to Vilca, if there is any cake to be had it comes to Abu Dhabi and I have a spare room, my apartment is in the ocean, yes in. (Google ,,, Al Bandar, Abu Dhabi for pics) Vilca; as much as your paradise sounds a...
Hey all Well as you know PET showed recurrence in lungs and nodes. Onc. Called me in the middle of the night here in Abu Dhabi. The biopsies on my lungs ..... NO CANCER !!!!! Cannot believe it .... False positive. Nodes are still concerning but we will do a biopsy on them and see. I am taking this o...
When I went home to NZ in March I did the relay for life and it was a great event although a bit emotional when I realized I was one of the ones the event was for.
Hi CT friends Wow I am in a wierd place right now. Am still waiting results of the lung biopsy so we can determine treatment plans. I have ups and downs as we all do going through this but since I found out I have a recurrence I am having big highs where I feel I can take on the world and then very ...
Hey Chrissie, I too am really sorry about your news, I am in the same boat just got told it was back in lungs, hilar node and my nose. ..... And you are so right, it just frickin sucks and makes all the hooha on the board at the moment just seem like a storm in a teacup! Hang tight girl, you can do ...