I have an insurance question about this...any of you with private insurance? Do they just keep paying for your treatments? At this time I am on Keytruda so my onc has to get additional approval, but this has started to become one of my concerns with new year approaching. If this drug stops working ...

The bad news is that there are only a limited number of treatments and when they all stop working, the disease takes over. The good news is that new treatments and procedures are in the works, and I expect to see a new generation of immunotherapy treatments to be coming on line over the next few yea...

From what I can see, you're a long way from hopeless. You may feel helpless, but that's different. I agree that M.D. Anderson is a good choice in your case. I drive 5 hours each way to NYC to see my onc at Sloan-Kettering, and I feel blessed to be so close to such fine care. As Juliej says, it does ...

Welcome to the forum.

Yes, thanks!

This is the kind of thing I live for.

Fantastic news, Rob. I don't think anyone has ever shown that radiation from scans has any direct affect on your longevity or health. Of course, I could be wrong.

Worrying is a waste of time and I know it's an easy thing to say, but a lot harder to actually accomplish. Try to reduce your stress levels and you'll live longer. What I try to do is find something to occupy my attention so that I can at least temporarily forget about whatever it is I'd be worrying...

bitchslapped wrote:I hope you immediately edit this public post by removing your mother's name & birth date.

I edited that stuff out. Thanks BS for the heads-up.

This is hard.

Kenny was a great friend.

If she wasn't digesting the food, it would eventually sour and come back up. If she's not vomiting, then it's getting digested--just not in a comfortable way. I'm sure there's some medicinal remedy that should help, like an antacid. But if she has a doctor, especially an oncologist, she should call ...

Yes, good luck Jim. I sure hope it turns out to be nothing. JulieJ had something like that. They determined that it was benign after removing it. So, CT scans aren't all that revealing.

The longer I manage to hang in there, the more optimistic I get. Generally.

I've clustered since getting reversed back in '09, but these days I mostly attribute it to chemo. The time or two that I've been off chemo for extended periods (months), the clustering stopped and my bowel situation returned to something resembling normal. I have noticed however, that it's a lot wor...

I know the feeling. When my first lung node was diagnosed, I figured I was not long for this world. That was about 6 years ago. I've since regained some hope that if I hold out long enough, there will be new treatments and procedures that will allow us to kick the can down the road while they figure...

I call having bowel movement a "process." I totally relate to the frustration at never feeling that you're done. You might try Imodium or better yet, Lomotil, which needs a script. Those two meds can buy you some downtime so you can, for example, get a good night's sleep or get through the...