Back home now. The biggest side-effect during the infusion was having to pee twice - likely due to the D5W and the Oxaliplating liquid. I lost a little feeling in my fingertips and it takes a bit more effort to type and I have had some slight feelings of arthritis in my palms. I Went outside and fe...

Get tested for Lynch syndrome.

I have seen this, lol.

This may not be pleasant to investigate, but what is the consistency of the leakage? It might just be a lot of excess mucus from colonic irritation/inflammation. Our colons are gigantic mucus membranes, sort of like our nose & throats. The consistently is best described as VERY MUCH consistent ...

fighter168 wrote:I called again today. The nurse said that there is no resection site on the liver, it is too dangerous to remove a sample within the liver.

Where are you getting treatment? Might be worth a second opinion from a liver surgeon at MD Anderson or Memorial Sloan Kettering.

wow, it feels like you have read my mind! I am on pembrolizumab and my experience feels very similar overall, especially about existing in a strange state of balance. Good luck, let’s beat this disease.

Because we have universal healthcare in Denmark you are put in a screening program. Like if you have parents with Lynch or early colon cancer you’ll get testet by age 25 always. And if you have Lynch you are entitled a colonoscopy every second year, they probably find it sufficient enough for most ...

This may not be pleasant to investigate, but what is the consistency of the leakage? It might just be a lot of excess mucus from colonic irritation/inflammation. Our colons are gigantic mucus membranes, sort of like our nose & throats.

This is a really long shot but I thought I'd try. I'm in a middle of a transatlantic move to NY and we just found out that my father's lung met has come back. The doctors have decided to do RFA (he previously did SBRT, it didn't work). The only problem the needle they need to do it is not in the co...

Hi there. new to the forum. I was just dx with recurrant mets to the peritoneum and my Onc said that surgery is no longer an option. I am trying to understand why he automatically ruled that out. Last February I had a liver and colon ressection (They also took my gall bladder as well) and I recover...

Are you on treatment? Chemotherapy or immunotherapy?

Never give up hope. Incurable doesn’t mean untreatable. Treatment for us at stage IV is all about global control of the disease. If you can achieve some level of control from treatment, you can live for many, many years. Life slowly adapts to the new normal.

I am so sorry.

Three hours is quite a long time to be sitting at the hospital or infusion center. Sounds like something I'd want to do relatively local. If you ever have an infusion related reaction (mild allergy, heart attack, etc.) your infusion time will increase too. Mine was around two hours originally and w...

MSI-H can be determined by ImmunoHistoChemistry testing which insurance companies will cover more easily than genomic testing. The IHC testing should be standard practice on a biopsy with a colonoscopy (that's what they did to me). I think that genomic testing of the tumor is a good idea but I thin...