Hi , so todays appt wasnt bad... meaning no bad news ... but I always leave feeling less informed ...even though I ask questions... perhaps you can help.. his Dr. reviewed the PET scan with radiography, and they see no progression... so she is stumped as to why the rising CEA... she said sometimes i...

Hi, We are going today for the PET results, not knowing why the increase as of right now, his Dr. mentioned changing his regimen if the 5FU Avastin stopped working... I think she mentioned Xeloda... he is not going back on Oxaliplatin, hes had numb feet for 3 weeks now.. praying for the best news to...

Hello, My DH's CEA has gone up the last month twice, from 433 to 534 and last week 582... they are doing a PET scan tomorrow, to see "whats going on"... oddly enough this rise began right after they stopped the Oxaliplatin, could there be a connection??? I am concerned as the CT scan he ha...

Thank you , I appreciate it, and I get that part,, I have been trying to decipher the rest lol probably more than I need to understand, I guess with all of the talk of MSS significance I had begun to try to see if anything like that had been tested.. His report says no genetic mutations, other than ...

Thank you for your reply, I am still trying to "understand" his pathology report... guess without a PHD I likely wont lol

Hi there, I am awaiting a reply from my DH's Onc. regarding MSI testing, in the meantime I have been trying to decipher his pathology report from his liver biopy that was done in Oct, 2019. Does anyone know what this is ? Metastatic adenocarcinoma is positive for CDX2, CK-20; negative for CK-7, I am...

Ok I am sending his Dr. a message, I have looked through the pathology report from his liver biopsy and see nothing pertaining to MSS dMMR or MSI-H... I am going to ask her if he's been tested for that, probably would be important to know as we have 4 sons I assume ? regardless, This isn't a test th...

Thank you for your input, I will be asking his Dr. about the mentioned testing, could you explain lke i'm 5 the exact testing and potential treatments? I looked through all of the genetic info and found nothing mss or msh etc.. is there a reason this might have been omitted?? His Dr. seems to have a...

Hi Boxhill, Thank you for your reply, My husband was diagnosed in the urgent care , we went for back pain he had been experiencing, after many tests they said he had a colonic mass and lesions on his liver, some large... a liver biopsy was done that confirmed colon cancer … here is a copy paste of t...

Hi again,
Just wanted to share the irony... right after I replied to you my husbands last CEA results were uploaded... his has increased as well. from 433 to 534... this is only his 4th marker , first increase.

Hi Rachel, I don't know much as I am "new" to this disease as well. My DH was diagnosed with cc and liver mets, his liver had a couple very large and innumerable small... rendering him inoperable and "chemo for life" he's had 12 treatments and handles them well, there are issues ...

Hello... I wanted to update as I WAS allowed to my hubs appointment and had the ability to ask a lot of questions … I am disappointed that she is anti supplements of any kind, ie: milk thistle, turmeric etc... she says nothing more than a multivitamin. Do any of you take supplements ?? I asked her a...

Thank you for your reply.. yes our situations are indeed similar... I just called his Onc.'s office to inquire if I am allowed to attend his next visit.. and that if not, could she take a phone call... I do have questions for her... if I can attend I will bring my notebook... lol I dont know how I f...

Thank you both for your replies, they are VERY appreciated !!! I am going to try to attend his next appt. if I cannot then I will request a phone appointment for myself. The lung streaking that was notated was never mentioned in any of his prior scans, thats the only reason I am somewhat concerned, ...

Hi there, Its been a bit since I posted, and I have a few opinions i'd love to get .. since this Covid has taken over I like many have been disallowed from attending my husbands appointments, sadly I am the proactive one in his health, so I ask all the questions...I have decided I will be contacting...