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by NHMike
Wed Dec 06, 2017 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33801

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

You may want to look into crusting to help heal the areas of irritation you have. There are some good videos on YouTube about it. Basically, you layer stoma powder and barrier wipes to form a crust over the raw area that protects it so it can heal, but still allows the adhesive to stick. It has wor...
by NHMike
Wed Dec 06, 2017 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling nervous n very high anxiety
Replies: 37
Views: 907

Re: Feeling nervous n very high anxiety

I have worked my normal work schedule throughout my adjuvant chemotherapy. My platelets and neutrophils dropped considerably during treatment, but never enough that they told me to wear a mask or avoid people. They will test your blood every time you go in, and will advise you if precautions need t...
by NHMike
Wed Dec 06, 2017 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1891

Re: New on the forum

I am now at the hospital with a ileostomy and a big cut, did not have much pain yet, but the needle in the troat for IV is really annoying. I have been walking in the corridor a bit, drank water and I am trying not to think that I have to go through all this again in 6-7 weeks :evil: Claudia You're...
by NHMike
Wed Dec 06, 2017 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anothe milestone reached in my journey
Replies: 8
Views: 210

Re: Anothe milestone reached in my journey

That's quite the year that you've had and really glad that things are looking up for you. Also, thank-you for the description of the port removal. I'll save that away as it's in my future too (probably six months from now). One suggestion on your signature: you're going to have to indicate the year ...
by NHMike
Wed Dec 06, 2017 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keto diet?
Replies: 8
Views: 394

Re: Keto diet?

A ketogenic diet can cause health problems too. You might consider a low carb diet on the order of about 33% carbs. It's not ketogenic but the carbs may be low enough to provide some help with weight loss. These are approaches to weight loss that I've used: - Food and nutrition tracking (lots of app...
by NHMike
Wed Dec 06, 2017 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling nervous n very high anxiety
Replies: 37
Views: 907

Re: Feeling nervous n very high anxiety

It's hard to tell how functional you will be and what the side-effects are because everyone is different. I'm reading a lot about starting up your regimen as a lot of other folks that I follow are going through the same thing and are reporting their side-effects, worries, and concerns. I start up th...
by NHMike
Wed Dec 06, 2017 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33801

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Try an Eakin Seal instead of the ostomy paste. The ostomy paste isn’t an adhesive so it won’t stick anything together, it I mostly used to fill gaps or indents. I find an Eakin works a lot better and is adhesive. And it will protect the skin around the stoma better than a barrier wipe. I will give ...
by NHMike
Tue Dec 05, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33801

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Let me try a text description. Let's use circles for simplicity. We have the stoma in the middle. I use barrier wipes to make a protective layer on top of the skin going out one inch from the stoma base. The wafer is cut 1/4 inch away from the stoma base. So the barrier wipes provide protection goin...
by NHMike
Tue Dec 05, 2017 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33801

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike: Ann (aqx99) is giving you sound advice. Especially regarding the use of ostomy paste. If you are applying a ring of ostomy paste on the surface of the wafer, stop. Cease and decist. Ostomy paste has no adhesive property. It is not Elmer’s glue. Ostomy paste will add to leaks by provide a read...
by NHMike
Tue Dec 05, 2017 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1891

Re: New on the forum

Atoq wrote:They are going to operate me this evening, they want to make the loop ileostomy because my tumor is blocking the passage. Open chirurgy...

All the best

Claudia


Best of luck and we’ll see you on the other side. Open surgery is no piece of cake, at least for me.
by NHMike
Tue Dec 05, 2017 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33801

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I think that it’s the paste on the barrier wipes that’s the limiting factor for me. I think that the flow removes a little and that it can be the amount of stuff flowing that removes enough of it to get to your skin. I typically use three to four wipes. Others here have talked about stronger skin pr...
by NHMike
Tue Dec 05, 2017 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Hi KElizabeth, Sorry to know the clinical trial did not work for you. Last week I had a conversion with my Onc. In his opinion, Roche's immunotherapy for mCRC is a good candidate for a clinical trial. Please see Roche's Investor Update dated May 18, 2017. It states that if RO6958688 is combined wit...
by NHMike
Tue Dec 05, 2017 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some things that have helped me - chemo side effects
Replies: 7
Views: 263

Re: Some things that have helped me - chemo side effects

Thanks for the list. I have Oxaliplatin coming up later this month. I'm meeting with the oncologist tomorrow to see how quickly we can get started. Gyms are notoriously good places to catch things as you have a lot of bodily fluids and some percentage that don't wipe down the equipment after use (an...
by NHMike
Tue Dec 05, 2017 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Do you know your KRAS mutation? Yes. I have KRAS mutation as well as TP53 and APC. I think that you're the first person that I've run into here with multiple mutations and these are in multiple genes as well. TP53 and APC are supposed to regulate cell growth and prevent tumors. I hope that your doc...

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