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by NHMike
Mon May 14, 2018 5:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm feeling a lot better this morning after getting a lot of sleep and Saturday was indeed the peak for side-effects. Things are still there but rapidly declining (except for hands and feet which will slowly rise). I do need to start figuring out what things will look like on the other side of surge...
by NHMike
Sun May 13, 2018 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda+Oxaliplatin questions
Replies: 8
Views: 527

Re: Xeloda+Oxaliplatin questions

I would appreciate if someone has a good advice or recommendation regarding side effects of oxaliplatin. My wife is to start receiving it in several days. So far we have been told about Zofran (ondansetron). The term that I use for Oxaliplatin is "brutal". There are some few that have a r...
by NHMike
Sun May 13, 2018 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member with Xeloda question for Stage II
Replies: 18
Views: 3762

Re: New member with Xeloda question for Stage II

Neuropathy is usually related to Oxaliplatin which is one of the drugs in FOLFOX and I describe it as a tingling in the fingers. Hands and Feet is usually related to 5FU or Xeloda. My description of Hands and Feet is that it feels like arthritis - you feel stiff in the joints. I've had both and can ...
by NHMike
Sun May 13, 2018 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

... I'm waiting for a month after the reversal .. So, do you have a date scheduled for your reversal? Also, do you know who will be in charge of your follow-up schedule, and whether he/she will have a plan for you? After your last round of chemo who will be in charge of your comprehensive 5-year su...
by NHMike
Sun May 13, 2018 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise after right hemicolectomy?
Replies: 6
Views: 546

Re: Exercise after right hemicolectomy?

Last time I played tennis was back in October 2017. But I have an illeostomy that will hopefully be reversed this summer. Being very active with a part of your body sticking out of you seems a bit dangerous for me. I'm a runner too and the bag presents some problems as does chemo. So I'm a ways from...
by NHMike
Sun May 13, 2018 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Neuropathy peaked yesterday. The other symptoms picked up a bit. This is really late to realize it but I think that the steroids help to suppress some of the other symptoms besides the nausea. Cold sensitivity hit me today (it was in the 40s and overcast). I wore my gloves, winter coat, three shirts...
by NHMike
Sat May 12, 2018 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Felt awful the past three day - tinglies, haven't felt like eating, fatigue, skin crawling, etc. The latter was due to tree pollen and turning the HEPA filter on helped to clear that up. I'm hoping that the tinglies have peaked but the hands and feet will be picking up as I get into the Xeloda cycle...
by NHMike
Fri May 11, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

https://www.statnews.com/2018/05/11/dana-farber-cell-manufacturing/ http://www.dana-farber.org/newsroom/news-releases/2018/expanded-lab-facility-at-dana-farber-aids-personalized-medicine-efforts/ A ribbon cutting celebrating the expanded and renovated Connell and O’Reilly Families Cell Manipulation ...
by NHMike
Fri May 11, 2018 5:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had a generally crummy day yesterday but was able to function. I also had some potato chips last night. The purpose was to avoid diarrhea, and this worked nicely, and to avoid calf cramps overnight, and this worked out too. Bear in mind that I also had 400 MG Mg yesterday morning. I'm taking addi...
by NHMike
Fri May 11, 2018 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 23818

Re: New Member here on the forum

So I was able to work every day this week despite infusion on Thursday. Twelve IEPs this week which meant report writing and such. I have to admit cognition is a little slower, some word finding difficulties. Hot cocoa is now my favorite afternoon treat. Glad you are doing better, hope today wasn’t...
by NHMike
Fri May 11, 2018 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 192
Views: 47837

Re: Mop up chemo experiences

I had breathing problems from talking - at room temperature. Had to bail out of social situations or shut down a phone convo. Just not talking helped - also hands over mouth and breathing warmed air this way seems to help. Some folks wear a mask - was considering a Vog https://www.vogmask.com I do ...
by NHMike
Thu May 10, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Tree nuts

...I'm going to try to get the numbers for tree nuts, vitamin D3 and exercise.... Here's a reference on tree nuts from a post earlier this year: Possible benefits of eating tree nuts http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=57966&p=472910#p472910 I got the tree nuts. I co...
by NHMike
Thu May 10, 2018 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The oncologist's office called to ask me if I wanted to schedule a follow up in four weeks because he wasn't sure if I was done this cycle or not. I indicated that I was planning to do the 8th cycle with just the Xeloda so she scheduled me for three weeks. But it looks like the Oncologist would have...
by NHMike
Thu May 10, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member here, hi! My CRC stage 2/3 story
Replies: 10
Views: 781

Re: New member here, hi!

You've had a very rough time of it all as most of us do but you're not too far away from the endpoint. I know that it's rough to get there but we all take it a step at a time.
Thanks for telling your story and I hope you can get through the rest of the treatment reasonably well.
by NHMike
Thu May 10, 2018 6:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 225688

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

If you don't want to do one more, it seems like you should be able to tell your oncologist that, especially with the side effects you've been having. I've been eating tree nuts every day - walnuts, almonds, hazelnuts, pecans. I love them! And they have the added benefit of making me feel full. I co...

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