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by NHMike
Thu Feb 08, 2018 10:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 67
Views: 5922

Re: Reversal is Over

Does the reversal surgery normally take four days in the hospital or is that due to the loop illeostomy? My surgeon told me beforehand that it is normally a 3 day stay, barring complications. I was there almost exactly 72 hours, even with the extra stuff that happened to me. Surgery was at noon on ...
by NHMike
Thu Feb 08, 2018 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Single and dealing
Replies: 10
Views: 952

Re: Single and dealing

There are a lot of independent people here (married or single) that like to take care of things on their own but you have to ask for help sooner or later with cancer, particularly if you get hospitalized.
by NHMike
Thu Feb 08, 2018 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 2721

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

NHMike, I suspect this will sound rude but that is not my intent. Telling people that a treatment is 'rough" is not descriptive. What is it that is rough for you ?? Similarly, you state that chemo is "harder" with an ileostomy. What does that mean and where did you get your informati...
by NHMike
Thu Feb 08, 2018 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91154

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I got a call from OptumRX and they said that they were going to refund me the $100 copay from the first order and they charged me $10 yesterday as a copay for the order that I just received. They said that they wouldn't bill me the $10 yesterday when they placed the order. So they basically lied yes...
by NHMike
Thu Feb 08, 2018 1:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 591
Views: 105252

Re: TIL Immunotherapy at NCI

...it's nice to know that this is a possibility if I get a recurrence. I agree! There is a lot more hope today than ever before! I think you're smart to keep reading and learning in case you might need the info some day. I'm hoping you won't need it though :) Celine The Adjuvant chemo has been brut...
by NHMike
Thu Feb 08, 2018 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 591
Views: 105252

Re: TIL Immunotherapy at NCI

I'm back to report on Follow-up #13. Lucky 13 :) My scans show no signs of cancer! Bloodwork is good. Still NED. They asked me to consent to a new study where they will do research on my T-cells. They'd like to figure out how to "turn back the clock" and revert them to a previous state, w...
by NHMike
Thu Feb 08, 2018 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 67
Views: 5922

Re: Reversal is Over

Does the reversal surgery normally take four days in the hospital or is that due to the loop illeostomy?
by NHMike
Thu Feb 08, 2018 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 2721

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

The Chemo (5FU/Oxaliplatin) is harder with an ileostomy so doing it beforehand has that advantage. My tumor was large, about 100 ccs and shrunk to under 10 with chemo and radiation but it was still there. I had a PCR with surgery and am doing adjuvant chemo now and it's rough. The Oxaliplatin is gen...
by NHMike
Thu Feb 08, 2018 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91154

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My numbers came back today: CEA stable from last week at 2.2 but a lot of the other numbers improved a little - I guess that's to be expected taking a week off chemo. This morning was painful as I spent 20 minutes scraping snow and ice off the cars. I used really thick and waterproof gloves which he...
by NHMike
Thu Feb 08, 2018 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 colon Cancer Please read and help me as confused
Replies: 12
Views: 1273

Re: Stage 4 colon Cancer Please read and help me as confused

Do they know what the gene mutation is? That could be a clue as to what clinical trials might be available. I do not know how that stuff works in England but some of the trials in the US are based off of the mutation.
by NHMike
Thu Feb 08, 2018 4:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 23
Views: 2158

Re: Port Removal

So the GP confirmed it - the glue has stuck to the internal stitches :cry: He trimmed some of it but couldn’t remove it for risk of opening the whole wound. He gave me a dose of antibiotics to be on the safe side and I have to go back in a week to see whether there has been any improvement. I know ...
by NHMike
Wed Feb 07, 2018 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GI appointment Wednesday
Replies: 15
Views: 1321

Re: GI appointment Wednesday

I think that there are several other things besides cancer, especially if scans are clear.

The worry can really get to you though. My sister has had major problems for about ten years and the doctors haven't been able to figure out what the problem(s) are though she's been through a ton of tests.
by NHMike
Wed Feb 07, 2018 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91154

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My insurance refused to let me use the pharmacy at my cancer center for my capecitabine. I had to use their selected mail order pharmacy. Even after my oncologist lowered my dose, they still sent the original amount of pills. I gave up trying to explain things to them. I could have just taken the e...
by NHMike
Wed Feb 07, 2018 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91154

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The left a message and I called back to place the order. They were going to send out another full batch. I asked why as I already have 28 of them and these little pills cost a small fortune. I don't want to increase costs to my insurance company for something that I would throw out. So I'm on the ph...
by NHMike
Wed Feb 07, 2018 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91154

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My wife sent me a bunch of pictures this morning from Singapore. She's buying a rental property there. The building is gorgeous and there are a bunch of shops and hawker stalls on the first floor. It's near a subway station as well so convenient for commuting. I wouldn't mind being there right now. ...

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