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by NHMike
Tue Sep 25, 2018 6:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16941

Re: Finally....some really great news!!!

I read a ton about lung nodules yesterday, mostly on this forum. In fact, it took my entire day away from me. I'm not nearly as panicked as I was when I made the discovery but not breathing easy yet. So, these are the main points I learned from reading all the experiences of others who have dealt w...
by NHMike
Tue Sep 25, 2018 6:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6760

Re: IMMUNOTHERAPY

Thanks so much for Ur reply Mike, I'm n the middle of standard chemo so won't prob change anything now but in the event this returned as reacurance or matastasis, I would possibly be in a better position for treatment, or trials " all depends on available drugs too I suppose in Ireland at that...
by NHMike
Mon Sep 24, 2018 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer Again: Not Colon?
Replies: 29
Views: 8391

Re: Cancer Again: Not Colon?

I imagine that they could do genomic tumor testing to get the mutations and then compare them. It looks like MGH did the analysis on the CRC and that they'd do it for any other areas. There are probably some mutations that aren't seen in CRC too.
by NHMike
Mon Sep 24, 2018 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226314

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

We're in Long Island (NY) for a bit and it took a bit of planning and courage to take a trip. I take an Imodium around 8:00 AM and don't eat anything until noon and then eat a little at a time and then a larger dinner and then let it all out around 9-11 PM. That worked Sunday and hopefully today. I ...
by NHMike
Mon Sep 24, 2018 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16941

Re: Finally....some really great news!!!

Here'a a thought/question. Could these be benign nodules that simply were never picked up by the CTs and the PET that he had locally? This was his first CT at Mass General and they have the more powerful, more advanced equipment. I looked again at the MRI from Mass General he had after the local, l...
by NHMike
Mon Sep 24, 2018 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16941

Re: Finally....some really great news!!!

cbsmith wrote:Sounds like it is time to get a doctors appointment and get the chest CT scheduled ASAP.


Or maybe an MRI for more detail.
by NHMike
Sun Sep 23, 2018 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226314

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi. Mike, I love salads and thought with the colostomy could never have one again. Do you eat all varitied of lettuce? When you have the runs consant going, how do you handle it? I had a bag break. There has to be an easier way. I don't have a colostomy though I think that I could eat salads when I...
by NHMike
Sun Sep 23, 2018 7:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226314

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Here it is very common to bike to work and in winter we put tires with spikes. It is so nice to bike past the traffic jam and if I get soaked I can even shower at work. I started with plank after 5 weeks from reversal surgery and did a few crunches just to test, but did not feel pain. Now I am back...
by NHMike
Sat Sep 22, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226314

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have also noticed that the stress function is very reliable, this evening I did some exercise at home and even if the weights are not so heavy (3 kg) it is a good mainteinance traning in addiction to the one at the gym. I have also started to run to work and alternate it to the biking. Even if it...
by NHMike
Sat Sep 22, 2018 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16941

Re: Finally....some really great news!!!

Thanks, guys. I'm nervous as hell about his November 27th MRI but trying to stay optimistic. As I have written about in other threads, I don't believe CTs are appropriate for met-to-liver surveillance. He had a clear CT a few months ago, but that really doesn't tell much at all, especially when his...
by NHMike
Fri Sep 21, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16941

Re: Finally....some really great news!!!

I dug up this old thread that I had started to share recent good news. Husband had a colonoscopy Wednesday. His results: completely clear not even a tiny polyp in sight. He only has about 7 inches of colon - so not much territory for one to develop. This was his first since his subtotal colectomy a...
by NHMike
Fri Sep 21, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16941

Re: Finally....some really great news!!!

I dug up this old thread that I had started to share recent good news. Husband had a colonoscopy Wednesday. His results: completely clear not even a tiny polyp in sight. He only has about 7 inches of colon - so not much territory for one to develop. This was his first since his subtotal colectomy a...
by NHMike
Fri Sep 21, 2018 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6760

Re: IMMUNOTHERAPY

Hello Adele, There are likely two services here: one that determines whether or not you are MSI-High or not. People that are MSI-High are generally good candidates for Immunotherapy drugs like Keytruda and Opdivo. The other test is a standard next-gen genomic tumor analysis. They will request your b...
by NHMike
Thu Sep 20, 2018 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post-Op Bowel Issues - What's Worked for You?
Replies: 4
Views: 408

Re: Post-Op Bowel Issues - What's Worked for You?

I had diarrhea when I had an Ileostomy and there were certain foods that did a good job soaking things up and potatoes and sweet potatoes definitely did that. Diarrhea in the bag was only a problem in that it was so liquidy and could result in leakage and stinging problems and it could spoil the gas...

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