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by NHMike
Tue Jul 10, 2018 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 967

Re: Are we doing everything we can?

From the Oncotype website: Oncotype DX® Colon Cancer Assay uses RT-PCR to determine the expression of a panel of 12 genes in tumor tissue. The Recurrence Score® result is calculated from the gene expression results, and ranges from 0-100. These findings are applicable to stage II patients with aden...
by NHMike
Mon Jul 09, 2018 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 15
Views: 499

Re: what happens after chemo?

What happens after the infusion and chemo is over? Scans, blood work, follow up when? I was told to come back in 6 months, seems odd after all this. Is this typical? I read through many summaries, can't find an answer. S See my post in the other thread. One person (either Miss Molly or O Stoma Mia ...
by NHMike
Mon Jul 09, 2018 6:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 158
Views: 15843

Re: Mop up chemo experiences

Congrats! Time to celebrate on your success! How do you know it worked? Did you do any followup PET scan, MRI? Oncologist said just come back in 6 months. S This is the surveillance schedule that my oncologist at Dana Farber recommended: Three months after you complete the chemo, we will perform a ...
by NHMike
Mon Jul 09, 2018 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 967

Re: Are we doing everything we can?

MMR testing can be done with a blood test, but it's best , if possible to do it on the tumor tissue. That's what our oncologist told us. If you do it on the tumor tissue, then it's possible that there was an MMR mutation in the tumor. If you do it with the blood test, then you determine whether it'...
by NHMike
Mon Jul 09, 2018 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 967

Re: Are we doing everything we can?

One type of testing that should be done on the tumor is the test for "MSI status", otherwise called "MMR mismatch repair" testing. Since January 1, 2018, both AJCC and NCCN recommend that all patients with Stage II CRC be tested for MSI status , because it could make a differenc...
by NHMike
Mon Jul 09, 2018 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 967

Re: Are we doing everything we can?

The biopsy is a block and it should be at the hospital where you had it done. They may use some of it up for the first pathology test. If there's enough leftover, it can be sent to another lab or hospital to do the Genomic Tumor Testing (Onctotype DX in your case). I had this done - my biopsy was t...
by NHMike
Mon Jul 09, 2018 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 1148

Re: Salami

My parents were born in Austria; my wife is German, so there is a lot of salami and other traditionally unhealthy foods eaten by my family. I, on the other hand, always strove to be healthy...a largely plant based organic diet, avoided processed meat, lots of exercise, never overweight, minimal alc...
by NHMike
Mon Jul 09, 2018 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91548

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Port flush this morning. Very easy and quick. Yes, you do get stabbed but it's one of the easier things in treatment.
by NHMike
Sun Jul 08, 2018 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91548

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Thanks for the details Karen. I had guessed either the stitches or irritation. I'm using some rather large pads that my daughter bought from Costco but doesn't really like so she told me that there are quite a few remaining. Hopefully I won't need anymore until the reversal. It wasn't a fun day but ...
by NHMike
Sun Jul 08, 2018 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91548

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Things were a lot better about eight hours after this started. My daughter looked at a picture of the stuff and she said that it looked like blood and some mucous. I went out twice and there was some mucous output and a slight tinge of blood the first time and a little waste but mostly mucous the se...
by NHMike
Sun Jul 08, 2018 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions for radiologist?
Replies: 5
Views: 386

Re: Questions for radiologist?

I do not know what type of radiation I received and I just checked the radiation center's website and couldn't identify the equipment that they used. But I would say that it worked quite well as it only seems to have impacted the area it was supposed to (the tumor). I did have some burning on the sk...
by NHMike
Sun Jul 08, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 967

Re: Are we doing everything we can?

Yes it is possible to send everything to a major cancer center. By everything I mean, all scans, e-rays, colonoscopy results, pathology results, blood work. When they remove the tumor, they place it in slides and what they call blocks. These can also be sent to a major cancer center. Hospitals usua...
by NHMike
Sun Jul 08, 2018 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 1148

Re: Salami

I'd suggest that he look at the Blue Zone literature.

There is no proof on diet but looking at the behaviors of the people that live the longest might influence those that want to live a long and healthier life.
by NHMike
Sun Jul 08, 2018 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member - Cancer Recurrence
Replies: 11
Views: 1138

Re: New Member - Cancer Recurrence

Thank you. This info about DFCI and MGH definitely helps me feel better about how things turned out with regard to the treatment plan. My doc has since recommended I try the Xeloda during chemorad (start tomorrow); if I can't tolerate it then will switch to 5FU. I got my port back in this past week...
by NHMike
Sun Jul 08, 2018 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91548

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I am eating beans but not a lot, only on portion :D anyway I think it is a very good thing if you get rid of mucus and other stuff that accumulated over several months in your colon. I read that a water enema a week was advised to get the colon used to adsorbe water again before reversal. Claudia T...

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