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by NHMike
Sat Dec 09, 2017 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 23
Views: 718

Re: CT Scan Just came in Liver Met (one)

I kind of went through this recently. Stage 3B with a complete response after surgery. Surgeon suggested that I could do Xeloda or 5-FU of Adjuvant and skip the Oxaliplatin. Oncologist recommended, of course, Oxaliplatin. I've seen a lot of people go through this decision lately and the vast majorit...
by NHMike
Sat Dec 09, 2017 2:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had my first bag blowout tonight. Thankfully I was near home. I switched to the Eakin ring yesterday to try it out and clearly it did not hold up. I’m back to the Coloplast Brava ring and sticking with it. My poor skin - I had to take a shower and do some serious skincare before putting the new b...
by NHMike
Fri Dec 08, 2017 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I got my Coloplast Mio sample kit today. I was just expecting an envelope with on Mio bag. But they sent a box and it was actually heavier than I expected. They sent me three Mio one-piece appliances, a nice kit with barriers, some liquid or creme I think, a mirror with Velcro, a pen, some small cir...
by NHMike
Fri Dec 08, 2017 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Agreed. That is why my husband and I went with the colorectal surgeon we did at Mass General. High volume, for sure. This is why the hospitals in Southern NH have Boston Hospital Envy. The folks up here go to the local hospitals for the easier stuff. Anything difficult and they run down to Boston. ...
by NHMike
Fri Dec 08, 2017 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic testing (Lynch syndrome) questions
Replies: 2
Views: 93

Re: Genetic testing (Lynch syndrome) questions

I think that testing for Microsatellite Instability High is standard for Colorectal cancer cases as it may imply Lynch and there are Immunotherapy Drugs if it's the case. This is done with ImmunoHistoChemistry testing and I believe that it's routinely covered by insurance for cancer patients. If cos...
by NHMike
Fri Dec 08, 2017 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 27
Views: 640

Re: any peeps with BRAF mutation on here?

It's got to be cool seeing the mets shrink on imaging. Or at least read about the sizes going down.
by NHMike
Fri Dec 08, 2017 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Learning Curve: The Surgeon as a Prognostic Factor in Colorectal Cancer Surgery http://eknygos.lsmuni.lt/springer/404/86-104.pdf Thirteen consultants, none of whom had a special interest in colorectal surgery, operated on 645 patients with colorectal cancer. Outcome differed tremendously between the...
by NHMike
Fri Dec 08, 2017 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 7
Views: 372

Re: New Member here on the forum

Cancer is confusing stuff as you have to deal with a lot of services, appointments, worry, and social aspects (what to tell spouse, kids, relatives, coworkers, etc.). I think that you would have been a lot better off coming here and asking when you were diagnosed but that's in the past. I went to a ...
by NHMike
Fri Dec 08, 2017 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgical oncologist vs colorectal surgeon?
Replies: 17
Views: 1543

Re: Surgical oncologist vs colorectal surgeon?

..... Studies are starting to show that seeding from poor surgical technique has a more than minimal effect on the recurrence rates. Do you have an article or paper link? I'm curious about the numbers. It seems reasonable though. LAR is difficult surgery from what I've read and having someone with ...
by NHMike
Thu Dec 07, 2017 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Heterozygous variant c.2593C>T on APC gene
Replies: 2
Views: 941

Re: Heterozygous variant c.2593C>T on APC gene

I also got a report of "two other variant of unknown significance:" in my Genomic Tumor Results" with the comment: "At this time, there is not enough research/evidence into these two additional variants for us to know how they contribute to disease or affect theraph."
by NHMike
Thu Dec 07, 2017 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The belt was really great running, except mine would sometimes pop off the hooks; would have to stop and reattach under the compression wrap. So perhaps tighten the belt up well! I never used the Cavilon spray so can't comment vs. the wipes, but the wipes were pretty easy to use. Glad to hear that ...
by NHMike
Thu Dec 07, 2017 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling nervous n very high anxiety
Replies: 37
Views: 900

Re: Feeling nervous n very high anxiety

I don't remember a lot of fatigue. But I'm sure I was tired. Felt a little neuropathy a couple days after the second infusion that lasted a couple days. My neuropathy didn't really kick in until about a month after finishing treatment. My bloodwork was generally okay. I did have to go in for hydrat...
by NHMike
Thu Dec 07, 2017 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The visit to the Stoma Nurse went well this morning. The original appointment was for 10 days after discharge but it was moved out three weeks due to a conflict or something. I think that I would have been a lot better off if the original appointment date were kept. I think that the rationale would ...
by NHMike
Thu Dec 07, 2017 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 461
Views: 33608

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The CEA lab report showed up on my hospital portal this morning and the really low number was partially due to a different scale used by Dana Farber. Dana Farber's scale for normal is 0 to 2.5 and my local hospital is 0 to 3.8. So my 0.6 DFCI number rescaled to my local hospital is 0.9. So something...

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