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by NHMike
Wed Oct 10, 2018 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226533

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I was on the phone for two hours trying to deal with an ambulance bill. United Healthcare paid part of the bill that they thought was the rate and told me that the ambulance company might send a bill for an additional amount and to call them if they did. So they did, and I called, and United Healthc...
by NHMike
Wed Oct 10, 2018 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 325

Re: Stoma Reversal

I have had a rather rough time after the reversal but I had rectal cancer. If most of the rectum remains, then there should be fewer problems with control. One of the things that I ran into the hospital is that waste was loose and this is due to the large intestine resting and not used to absorbing ...
by NHMike
Wed Oct 10, 2018 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 23
Views: 1631

Re: Robino1 has left us today at 6:40pm.

Rather stunned to hear this. I always remembered her smiling face in her avatar and that she was nice to everyone despite her difficulties.
by NHMike
Tue Oct 09, 2018 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 9090

Re: Colon cancer: my treatment and side effects

Great to hear about the progress and your ability to manage the harder stuff.
by NHMike
Tue Oct 02, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226533

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Just back from spending ten days in New York. We stayed on Long Island and went into Manhatten for a day trip on the commuter rail. We went on a trip on the north fork (North Shore) and a trip on the south fork (South Shore), all the way to the tip of Montauk on the eastern point. We spent a day in ...
by NHMike
Tue Oct 02, 2018 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy?
Replies: 11
Views: 707

Re: Ileostomy?

There's a moderate amount of adjustment to living with an ileostomy but it makes life easier with adjuvant chemo.
by NHMike
Tue Oct 02, 2018 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Such a blow!
Replies: 9
Views: 977

Re: Such a blow!

After the colonoscopy i had liquid stool and i tookk immodium for a week which commpletely shut down my intestins. Have not gone to the bathroom since.i came to the emergency for constipation,they did a scan and saw cancer at the surgery site on the outside of the colon. I see that you have been th...
by NHMike
Mon Oct 01, 2018 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 467
Views: 96188

Re: NEW-Need some positivity here.

Update- Onc said no chemo needed! She says my Cea is 1.5 and the committee said no chemo at this time. Next scan in December. Surgeon had clear margins and my blood work is good. I’m terrified. Not sure to be happy or waiting for the show to drop. I will now do anything and everything to keep this ...
by NHMike
Mon Oct 01, 2018 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 34
Views: 9674

Re: Newly diagnosed rectum cancer

Hi everyone. Had my surgery last Tuesday, Sept. 25. It was supposed to be about 4 hrs, ended up going 7. Surgeon said he didn't like the blood flow he was getting from my colon, so he took off a bit more to do it right. Ended up removing approximately 16 inches including most of rectum. I was relea...
by NHMike
Wed Sep 26, 2018 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6781

Re: IMMUNOTHERAPY

Thanks Mike Ur always very good to explain stuff, Sorry if This sounds stupid but surely if Ur MMR is intact, u wouldn't have cancer in the first place?? I'm similar to u in the sense I keep reading papers but I'm getting nowhere, ( chasing my tail ) and unfortunately I usually see the understudy a...
by NHMike
Tue Sep 25, 2018 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6781

Re: IMMUNOTHERAPY

The science for these individual things is complicated though it's a bit easier if you take one thing at a time. Mismatch Repair genes are the body's mechanism for automatically fixing damaged genes. Some people don't have them or have them all so they are more susceptible to getting cancer. The two...
by NHMike
Tue Sep 25, 2018 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6781

Re: IMMUNOTHERAPY

The only important test right now for you is msi-high vs mss status as only that would alter course of treatment from chemo to possibly immunotherapy from a very good lab. Other test is not really that useful but if u can comfortably afford it , no harm. My oncologist said it was a waste of resourc...
by NHMike
Tue Sep 25, 2018 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 67
Views: 17130

Re: Finally....some really great news!!!

I just heard from the oncologist's assistant who informed me that an order had been put in for an MRI AND Chest CT. This is news to me. When I spoke with the scheduler to schedule the November MRI, I had no idea. Only an MRI has been scheduled. This is soooo frustrating! I use the Brigham and Women...
by NHMike
Tue Sep 25, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer Again: Not Colon?
Replies: 29
Views: 8417

Re: Cancer Again: Not Colon?

How the heck can it be determined if lung tumors are from the original colon adenocarcinoma or independent lung cancer? This mystifies me. My husband smokes cigars so who the heck knows if he wasn't going to get/got lung cancer anyway regardless of the colon->liver cancer he has/had? I wish I under...
by NHMike
Tue Sep 25, 2018 7:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226533

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I hadn’t gone to the bathroom as of last night so I took two slippery elm capsules and nothing this morning. So I went for a short run and that did it. I prefer a clean out before going out for the day or at least something. I also did some testing with the watch. The music function works fine (the ...

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