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by Mercy110
Thu Mar 29, 2018 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom skipped a cycle of chemo, nervous (stage 3 rectal cancer)
Replies: 5
Views: 1713

Re: Mom skipped a cycle of chemo, nervous (stage 3 rectal cancer)

I have similar concerns with you before, but my mum take a month rest in Feb for traveling and her CEA was within the normal range still. Now she is having her 2 month break due to Folfox Allergy.
Skipping one or two cycles won't hurt.
by Mercy110
Mon Mar 26, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 18844

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

So sorry to hear your news. My mum has similar experience that cancer sometimes has no signs. She is having her chemo break now. Xeloda was not working on my mum after surgery, mets to lungs discovered for increasing CEA. I rely hope you respond well to the treatment plan and get well rely soon. It'...
by Mercy110
Wed Mar 14, 2018 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Mutation- any one long term NED?
Replies: 21
Views: 8467

Re: KRAS Mutation- any one long term NED?

Hi Brenda. My mum is not NED as she has multiple lung nodules that are inoperable. She is a NRAS mutant. Our onco also told us that there are no more drugs to use after folfiri, which made us very worried as well. I wonder how you know that you are not suitable with Keytruda as its result seems prom...
by Mercy110
Tue Mar 13, 2018 3:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox Allergy
Replies: 3
Views: 1242

Folfox Allergy

Hi all. My mum has just started her 10 rounds of Folfox today but having allergic response that her throat enlarged. Onco said this is a very serious side effect that Folfox is no longer an option for her. The onco gives us a chemo break for 2 months as my mum's CEA is doing good (plz refer to my si...
by Mercy110
Fri Mar 09, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, recently diagnosed, just had surgery but more to come...
Replies: 13
Views: 2926

Re: New here, recently diagnosed, just had surgery but more to come...

So sorry to hear your story. My mum is a current stage4 patient with lung mets. We do remember how hard and bitter for us to swallow the fact. I hope folfox is helping you so that the spots in your liver shrink. There are lots of members here had liver mets but able to have surgery finally. Hope you...
by Mercy110
Fri Mar 09, 2018 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice For Next Steps
Replies: 2
Views: 1219

Re: Advice For Next Steps

So sorry to hear your news, but it seems that your chemo is doing the right job. I guess it would be best to keep going with the chemo plan and hope everything will keep on shrinking and you can try surgery eventually. Until then just stay with chemo. You can change the drugs if you have serious sid...
by Mercy110
Fri Mar 09, 2018 12:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curious and concerned
Replies: 8
Views: 1977

Re: Curious and concerned

My mum has tried xeloda pills but there is no use. I guess it's usefulness depends. We do have another chemo plan called xelox but I forgot if there is oxalipatin. The doc used to tell us that injection of drugs is more direct than pills so I guess you can ask for nore options. As for reourrence, I ...
by Mercy110
Thu Mar 01, 2018 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung and needle biopsy
Replies: 17
Views: 4684

Re: Lung and needle biopsy

My mum didn't as her CEA has not go down after surgery and 2 rounds of xeloda. Onco assume there are mets in her lungs as nodules grew.
Hope this help.
by Mercy110
Tue Feb 27, 2018 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2377

Re: CEA rising after break

...suspect the combination of drugs in HK is a bit different compare to US, but we will see how it goes. Some drug regimens are pretty standard, the different combinations are what you choose instead of merely accept. You also have the tegafur drug, TS-1, and maybe UFT (tegafur uracil) that aren't ...
by Mercy110
Tue Feb 27, 2018 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2377

Re: CEA rising after break

Given the economics, frequent longevity, and improved QOL, I would look into ADAPT style protocols for mCRC - capecitabine (or UFT-LV) + celecoxib; with the easy adjuncts like PSK, EGCG, quercetin and curcumin. There are lots of others that can be additive and that we have used with a low total cos...
by Mercy110
Tue Feb 27, 2018 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2377

Re: CEA rising after break

This was always the hardest part for me, the unknown what does every little test mean. My mom's CEA would fluctuate up and down a little and when there was no real change, but the times there were growth or spreading we saw large jumps in her numbers. Everybody is different in how much CEA is even ...
by Mercy110
Mon Feb 26, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2377

CEA rising after break

Hello. My mum has been treating with Folfox with Avastin since Aug last year as there are multiple nodules in her lungs after surgery. Her CEA has been steady since the use of Folfox and Avastin though the nodules do not go away. Last week we took her to a trip to Japan (we live in HK). To prepare t...
by Mercy110
Fri Feb 09, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????
Replies: 2
Views: 1171

Re: FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????

My mum has been using Folfox and Avastin after discovering her mets in lungs. She is doing well so far, and the 8th round has been finished. Her did developed some neuropathy side effects like numbness of her arms but the effects are reversible. Side effects are obvious in the first week after chemo...
by Mercy110
Wed Jan 10, 2018 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Break
Replies: 8
Views: 1917

Chemo Break

HI. My mum is having chemo every 2 weeks started from August-2017 as her CEA did not go down after surgery. She is now undergoing Folfox with Avastin as her lung mets are inoperable. So far the result seems ok coz her CEA dropped back to normal. We manage to travel with her in mid-Feb. The problem i...
by Mercy110
Tue Jan 09, 2018 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother stage IV, terrified
Replies: 25
Views: 10599

Re: Mother stage IV, terrified

I am so sorry to hear the news about your mum. Look at my signature and you will find me having similar experience with you except my mum's met seems more controllable. She is also doing Folfox with Avastin and told to be inoperable. My nurse friend did what your first onco did but I see my mum is d...

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