...Thanks for any responses! Tips on preventing recurrences (i.e., diet, supplements, etc.). There are some tips of this nature in the LifeExtension article shown in the link below. Topics like diets and supplements are discussed in Sections 9 and 10 of that article. https://www.lifeextension.com/p...

I wonder what clinical trial at Sloan. Any idea? https://www.everydayhealth.com/cancer/colon-cancer/why-are-more-and-more-young-people-being-diagnosed-with-colorectal-cancer/ ...Before she started chemotherapy at Memorial Sloan Kettering Cancer Center, Spill’s doctors tested her tumor for a mutatio...

Sunnycd wrote:... I need all positive thoughts sent my way! .... I meet with my original surgeon on Tuesday to discuss the reversal...

Sending positive thoughts your way today...

Hi Green Tea, Here is my reply to your questions. Before drafting a reply to your message I would like to ask a few questions: ⋅ When is your deadline for making a decision on your treatment? Currently no deadline, as the oncologist has said it is growing slowly, but I should reach a deci...

...In the meantime, we can enjoy our 5 weeks in France (we're leaving on the 29th). I haven't seen my family and friends in two years, it'll be a joyful reunion! Claudine - Just a quick note to say that the trade unions in France have declared a national strike in the transportation industry for Ju...

Hi All, I'm new to the Colon Club, I need to make a decision on my treatment... Hello Ezyrider- Welcome to the club! Before drafting a reply to your message I would like to ask a few questions: ⋅ When is your deadline for making a decision on your treatment? ⋅ Are you willing to...

Hi Stu, I agree. I called a few BIG hospitals to check on their high tech scan machines. Cleveland Clinic told me the one I asked about was only FDA approved for lung cancer. WTH! Down the road it might be approved for CRC but no idea to when. Another place I called about an even better machine sai...

One day to go for my last Xeloda pills. Next week will be busy and I need all positive thoughts sent my way! CT scans next Thursday, visit with my oncologist on Friday, 6/25. I meet with my original surgeon on Tuesday to discuss the reversal. I met with MSK’s surgeon for a second opinion yesterday ...

What is the CPT code of the expected surgery: CPT 44626 or CPT 44625 - it can make a difference in long-term quality of life (QOL) considerations. I understand the difference, but how would that make a difference in QOL? Instinctively, I know 44625 would be neater and less complicated, since colon ...

Any extra information besides Signatera test was positive? Did you learn anything else? I will be having the test on Thursday. It would be interesting to know just what kinds of specific data items the test report contains. It would be nice to be told which specific 16 DNA mutations your customized...

...I got my appointment w Dr Pappou from MSK on June 15, and with my original surgeon on June 22. Still compiling the list of questions, so any suggestions, greatly appreciated... . Some questions to consider asking the MSK surgeon on your up-coming June 15 appointment: • Will my insurance cover su...

Maybe part of the problem is that production of the Codman HAI pump was terminated by the manufacturer in 2018. Not enough demand. Not many pumps sold per year. Not very many hospitals using it. Not many doctors skilled enough to use it. Not profitable for the manufacturer to dedicate a production l...

... What does help is reading the signatures of those who have been NED for a while. I can't find the one for stage 4 right now... but here is stage 3: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=10574 Seeing people with similar experiences who have been in remission for a whil...

...The surgeon also asked me about being interviewed by an intern about my experience through surgery and in dealing with moderately severe LARs as they've had some complaints about process. I said that I'd be happy to do it as I have the record of things in this thread. . And what about your book ...