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by KElizabeth
Thu May 11, 2017 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long in hospital after surgery?
Replies: 67
Views: 10951

Re: How long in hospital after surgery?

I'd say 4 to 7 days would be a good range. I think I was in for 5 days. It goes quicker if you are diligent about getting out of bed and walking around to get things working again.
I hope you have a smooth surgery.
by KElizabeth
Wed May 10, 2017 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain mets . . . and they're aggressive
Replies: 53
Views: 10222

Re: Brain mets . . . and they're aggressive

Eat the cake! I was told to avoid extreme diets while in chemo, and that too much antioxidants and vitamin c could interfere with treatment. It seems like there's something wrong with every diet. Focusing on complete nutrition without stress an anxiety over small indulgence could at least improve yo...
by KElizabeth
Wed May 10, 2017 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin desensitization protocol
Replies: 6
Views: 2895

Re: Oxaliplatin desensitization protocol

Are you talking about an allergic reaction like hives to Oxaliplatin or something else? There have been a few people on this board who did go through an Oxaliplatin desensitization with success (hives type reaction). Not totally sure what they did, butt I believe they were given the Oxaliplatin in ...
by KElizabeth
Wed May 10, 2017 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin desensitization protocol
Replies: 6
Views: 2895

Oxaliplatin desensitization protocol

I am looking for stories and experiences with oxaliplatin desensitization. I'm taking a break from the fury after my next treatment and I haven't found a trial that will take me yet so It's back to old haunts for me. I suggested to my oncologists that we try oxaliplatin again with desensitization an...
by KElizabeth
Wed May 10, 2017 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf
Replies: 15
Views: 9034

Re: Lonsurf

Following.
I am interested to know if anyone has had a response to this.
Fingers crossed for all of you going this course.
by KElizabeth
Mon May 01, 2017 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair loss from Irinotecan
Replies: 10
Views: 3420

Re: Hair loss from Irinotecan

I lost my hair the 2nd treatment over three days. I shaved it short when it started coming out in clumps it was less traumatic and less messy that way. I was bald as a baby's butt in a weeks time. Within 2 months I had not a speck of hair on my body. No eyelashes no nose hairs. Nothing! Now 19 mont...
by KElizabeth
Sun Apr 30, 2017 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair loss from Irinotecan
Replies: 10
Views: 3420

Re: Hair loss from Irinotecan

I lost my hair the 2nd treatment over three days. I shaved it short when it started coming out in clumps it was less traumatic and less messy that way. I was bald as a baby's butt in a weeks time. Within 2 months I had not a speck of hair on my body. No eyelashes no nose hairs. Nothing! Now 19 month...
by KElizabeth
Sat Apr 29, 2017 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Odd Feeling
Replies: 4
Views: 1592

Re: Odd Feeling

I have no reversal experience, so I have nothing to offer there, but I really believe you should bring this up with your doctor. Just for example, It may be a tear in rectus muscle from incision or something similar, that would not jeopardize your reversal but could get worse if not taken care of pr...
by KElizabeth
Fri Apr 28, 2017 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bum infection?
Replies: 11
Views: 2493

Re: Bum infection?

The exciting conclusion: Today I saw a general surgeon because he was the only surgeon who could see me away. He checked out my bum and saw imeadieatly that I have an anal fissure, and tiny fistula and an abscess. He pulled some strings and got me into the colorectal surgeon who I had wanted to see....
by KElizabeth
Wed Apr 26, 2017 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on BBI-608 and FOLFIRI trial?
Replies: 4
Views: 1987

Re: Thoughts on BBI-608 and FOLFIRI trial?

I believe BBI_608 in conjunction with Xeloda or Erbitux is ongoing. I have a feeler out at the Denver location. https://clinicaltrials.gov/ct2/show/NCT01776307?term=Napabucasin&rank=12 The trial with BBI_608 and folfiri is difficult to get into. The trial coordinator I talked to said they are ha...
by KElizabeth
Wed Apr 26, 2017 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bum infection?
Replies: 11
Views: 2493

Re: Bum infection?

Sorry, but be prepared for torture. I had one. There is a cavity by the cheeks right before the hole. It got infected. Dr shot a sedative in the site, which hurt like hell, the site was already hurting like hell, and then he dug in to take out the pus. 10+ pain level. Treatment was an anal ring and...
by KElizabeth
Mon Apr 24, 2017 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bum infection?
Replies: 11
Views: 2493

Re: Bum infection?

I really don't have any suggestions, except I hope you are doing better soon. Does your Onc have any ideas. (((KElizabeth))) All the best, Lee I talked with the GP today and I guess the verdict is colitis. She said if it happens again she will prescribe the same oral meds again and try to avoid the...
by KElizabeth
Sun Apr 23, 2017 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect from neoadj CAPOX ?
Replies: 4
Views: 4073

Re: What to expect from neoadj CAPOX ?

Oxaliplatin may well help your mom's cancer shrink, and after that there is always Iriotecan. You still have options so don't give up. If the Xeloda is too hard to handle with the oxaliplatin you could just do 5FU. Xeloda can be pretty toxic, but some people really prefer it to the 5fu pump. Hang in...
by KElizabeth
Thu Apr 20, 2017 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bum infection?
Replies: 11
Views: 2493

Bum infection?

I had a very rough few weeks, starting with horrendous diarrhea and landing in the hospital with intense pain in the rectum and a fever. I landed in the hospital and had to endure four rectal examinations by doctors with different findings by each. Only my GP was willing to suggest I might be suffer...
by KElizabeth
Thu Apr 20, 2017 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - Senior/ACCESS National Park Passes...great deal!
Replies: 2
Views: 843

Re: O/T - Senior/ACCESS National Park Passes...great deal!

I'm not a senior, but it's a great thing.
I recommend seeing Glacier National park in Northwest Montana and Del Morro national historic site in San Juan, PR.

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