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by jmn
Sun Apr 28, 2019 1:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan contrast injection and kidneys, advice, please
Replies: 13
Views: 2639

Re: CT Scan contrast injection and kidneys, advice, please

Glad to report that I have now completed 6 months of chemo (6,000 MG of capecitabine daily). In addition to my cancer diagnosis, I’m a diabetic who suffers from high blood pressure. While on chemo, I was referred by my MSK oncologist (Dr. Leonard Saltz) to a nephrologist (Dr. Insara Jaffer Sathick) ...
by jmn
Fri Apr 05, 2019 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 37
Views: 12440

Re: Preparing a facts & to-do-list for "newcomers"?

It has been said many times already, but I want to say it again: get a second opinion —carefully choosing a doctor who specializes in your cancer type and is affiliated with an NCI-designated cancer center. You want to do everything in your power to prevent diagnostic and staging errors and to obtai...
by jmn
Fri Apr 05, 2019 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supporting my husband with a new DX *UPDATE*
Replies: 28
Views: 6242

Re: Supporting my husband with a new DX *UPDATE*

Thanks for sharing the good news. While you still have a long journey ahead, it’s important to take time to celebrate the milestones along the way.
by jmn
Fri Apr 05, 2019 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to tackle Xeloda side effect
Replies: 11
Views: 2527

Re: How to tackle Xeloda side effect

Glad to report that I started the last of eight cycles of Xeloda (6,000 MG of capecitabine daily). I can hardly wait to close out this chapter of my journey. Side effects include significant skin darkening, rashes and itching, some dehydration, fatigue, and elevated creatinine levels. My hair is als...
by jmn
Fri Apr 05, 2019 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years
Replies: 7
Views: 1391

Re: 5 years

Great news! Congratulations!
by jmn
Fri Apr 05, 2019 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My husband has passed
Replies: 22
Views: 4603

Re: My husband has passed

So sorry to hear of your loss. When I read your post, I thought right away of one of my friends who died of cancer at age 27, leaving behind her husband and one-year-old son. In the aftermath of her passing, we all struggled to cope with our grief and come to grips with her death. We all sought to u...
by jmn
Sun Oct 14, 2018 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 8417

Re: New to the forum ...

Most of my time this past Thursday was spent at Memorial Sloan Kettering in New York—a truly remarkable place. I met with Dr. Leonard Saltz and a few members of his team who explained that their pathologists analyzed my tumor specimen and arrived at a very different diagnosis. They identified severa...
by jmn
Wed Oct 10, 2018 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy October 5th, Age 30. Freaked out.
Replies: 11
Views: 2993

Re: Colonoscopy October 5th, Age 30. Freaked out.

Great news! Glad it was hemorrhoids and nothing more serious.
by jmn
Wed Oct 10, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My experience with right colectomy (first 7 days)
Replies: 3
Views: 1316

Re: My experience with right colectomy (first 7 days)

I had my lap assisted right hemicolectomy this summer (July 2018). After a few weeks of loose stools, my bowel function improved steadily and has pretty much returned to normal—though I’ve been dealing with occasional constipation and excessive flatulence, which had never been problems for me before...
by jmn
Mon Oct 01, 2018 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 8417

Re: New to the forum ...

O Stoma Mia and Beckster, Thank you both for your very helpful posts. I appreciate your knowledge and firsthand experience, and I have read all the material you shared with me. I have confirmed that Memorial Sloan Kettering will provide a second pathology evaluation as part of the overall second-opi...
by jmn
Sun Sep 30, 2018 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 8417

Re: New to the forum ... UPDATED

Thank you for your reply. It's good that you will try to see your doctor about the expanded risk-factor issues. If the conversation shifts to the possibility of doing some kind of chemo instead of your current "no chemotherapy" regimen, then you should be prepared to discuss the area of &...
by jmn
Sun Sep 16, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T My friend passed away this morning.
Replies: 17
Views: 6454

Re: O/T My friend passed away this morning.

So sorry for your loss, Lee. The death of a loved one is never easy. Just yesterday we bid farewell to our 69-year-old cousin who died of pancreatic cancer. She was an incredible person—always positive, loving, and courageous. At her funeral yesterday, we were reminded that through a life rich with ...
by jmn
Sat Aug 18, 2018 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It’s my 20th anniversary today :) (stage 4)
Replies: 9
Views: 2252

Re: It’s my 20th anniversary today :) (stage 4)

Wow! Twenty years! Congratulations and best wishes for continued good health.
by jmn
Fri Aug 17, 2018 5:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy at 25-- Scared
Replies: 31
Views: 10898

Re: Colonoscopy at 25-- Scared

SleeplessinFlorida wrote:My procedure is at 7 tomorrow. I’m looking forward to getting this out of the way, having a big meal, then going to sleep!

Thinking of you this morning. We're all pulling for you. Let us know how everything turns out.
by jmn
Wed Aug 15, 2018 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 8417

Re: New to the forum ...

DX: CC, 7-9-18 @ age 61, male Severe anemia (4.5 g/dl), 5-11-18; colonoscopy, 6-29-18 Stage IIA, T3N0M0 Laparoscopic-assisted right hemicolectomy, 7-16-18 G2, moderately differentiated adenocarcinoma in cecum, 4.2 x 3.7 x 0.7 cm 0/24 lymph nodes; no high-risk factors CEA: 3.0 (pre-op, 7-10-18); 0.7...

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