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by skypup
Sun May 24, 2015 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: And the award for best avatar goes to...
Replies: 24
Views: 1866

And the award for best avatar goes to...

...our very own kennytwisted! Love the new one, you crazy man.

Nominees included brownbagger, CRGuy, sleen, Voxx...
by skypup
Sun May 24, 2015 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Favorite nausea meds
Replies: 11
Views: 1064

Re: Favorite nausea meds

BrownBagger wrote:I don't know if you find this as well, Kenny, but I've noticed that when it's fighting nausea, the pot doesn't really get me high. Same thing with narcotics--if they're killing pain, they have less of an effect on my conscious brain.

Second that.
by skypup
Sun May 24, 2015 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How do you deal with all other obligations
Replies: 12
Views: 1789

Re: How do you deal with all other obligations

You can't make everyone happy, and with all on your husband's and your plates you can't even come close. That's a hard truth that most of us long-term stage IVers learn. One thought: has your husband sat down face-to-face with his brothers and explained clearly his limitations with the intention of ...
by skypup
Sat May 23, 2015 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Paralyzed Diaphragm...anyone but me?
Replies: 10
Views: 1447

Re: Paralyzed Diaphragm...anyone but me?

CRguy wrote:BUTT it is nice to know there are good vets out there who can actually "put Humpty back together again !!!" :mrgreen:
THREE times !!! ))

Absolutely!
by skypup
Sat May 23, 2015 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anybody know anything about this trial?
Replies: 2
Views: 722

Re: Anybody know anything about this trial?

How do you evaluate trials if you are not a doctor?? It's tough! I presume you have scoured the literature via pages-deep Google searches? I believe urelimab has been tried in non-solid tumors, so there should be something out there. Sometimes drugs have several names as they go through development...
by skypup
Sat May 23, 2015 10:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA concern - your feedback is appreciated
Replies: 7
Views: 1366

Re: CEA concern - your feedback is appreciated

May you be blessed for decades to come that a .6 CEA remains your biggest cancer worry!
by skypup
Sat May 23, 2015 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Paralyzed Diaphragm...anyone but me?
Replies: 10
Views: 1447

Re: Paralyzed Diaphragm...anyone but me?

CRGuy: how do you give a dog back to someone who lets their dog get hit three times? People!

Rob, this just shows what we already know -- you are special!!!
by skypup
Sat May 23, 2015 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Favorite nausea meds
Replies: 11
Views: 1064

Re: Favorite nausea meds

Yes to the cannabis, and your mom can take it in edible form if she doesn't want to make like Willie and smoke it. Also, I have found lorazepam (Ativan) to be better for my nausea than the other meds. It's normally an anti-anxiety med, but for some reason it helps with chemo nausea. When I had a rea...
by skypup
Sat May 23, 2015 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 301508

Re: The Grim Reaper took another swipe at me !!

Dear Fenchie, I am saddened to read your post, just like so many others here who care about you. I know you wanted to spend your last days in the mountains, and I'm sorry if that is not to be. Yet as I was thinking about this, it occurred to me that it is a strong person who has dreams until the end...
by skypup
Thu May 21, 2015 11:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 DAY FURLOUGH
Replies: 22
Views: 2270

Re: 7 DAY FURLOUGH

My MDA onc also said 5-FU bolus hasn't been shown to help, nor the leucovorin, they just make side effects worse. Didn't question it, just glad for a break. For whatever reason, my counts have always been good... so lucky me, I'll get the juice and think of you!
by skypup
Thu May 21, 2015 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had progression after first line chemo and end up NED eventually?
Replies: 5
Views: 1132

Re: Has anyone had progression after first line chemo and end up NED eventually?

Katy, if you want inspiring stories, look for the thread titled something like "Longest living Stage IV survivors"... It'll be within the first 5 or 6 pages probably...
by skypup
Thu May 21, 2015 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results .... Not good news
Replies: 27
Views: 3188

Re: Scan Results .... Not good news

Deb, this just sucks and I'm sorry. If it is of any help, I too have "innumerable" mets (liver) and they haven't grown much going on 3 years now. Fall apart, eat ice cream, I know you'll come out swinging. btw, I looked into that study briefly earlier today for another poster, and it does ...
by skypup
Thu May 21, 2015 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Second line treatment after FOLFOX fail
Replies: 8
Views: 1204

Re: Second line treatment after FOLFOX fail

Oh, I feel silly. I had Celebrex on the brain and misread. I see the trial is with cetuximab. I'm on it, and it's a pain, but seems to be effective. Ignore the Celebrex comments, sorry! Don't think I messed up on anything else. :oops:
by skypup
Thu May 21, 2015 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Second line treatment after FOLFOX fail
Replies: 8
Views: 1204

Re: Second line treatment after FOLFOX fail

Katy, the TIL study may be a good option for your dad, and it is good you are collecting info. But be sure and check what results have been had in humans to date. I took a quick look at vemurafenib and it is heartening that it has shown some success for melanoma. From what I saw it looks like they a...
by skypup
Wed May 20, 2015 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Social Security Disability Benefits
Replies: 30
Views: 3571

Re: Social Security Disability Benefits

Thanks, Rob! For all who are thinking about SSDI, my experience has been that it is a very fair system with folks who really want to help. I was not at all sure about that when I started the process and I was pleasantly surprised every step of the way. mstults, I don't know if you've gotten to the M...

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