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by skypup
Fri May 29, 2015 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So much ridiculousness don't even know where to begin
Replies: 6
Views: 1410

Re: So much ridiculousness don't even know where to begin

mstults wrote:Statistics are useless.

No, they aren't if you understand what they are and you are of a nature that values the info they contain.

mstults wrote: And statistics be damned.

Absolutely!!!
by skypup
Fri May 29, 2015 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In a funk...can anybody relate
Replies: 25
Views: 2509

Re: In a funk...can anybody relate

yep, yep, yep. It does come and go, Richard. This is the only place I moan to anymore, the others don't understand or are tired of the "journey". D2, I saw GFR at least 3 times. Remember the wall of speakers? It's amazing I can still hear... Did you know that Mark Farner is now an evangeli...
by skypup
Fri May 29, 2015 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxycodone hcl 5mg , codeine sulfate 5mg.
Replies: 16
Views: 1549

Re: Oxycodone hcl 5mg , codeine sulfate 5mg.

I've used oxycodone. It's the only opioid that doesn't make me too miserable to manage. It was effective, erased some of the pain and made me not care so much about what remained. And I sleep like a baby when I'm on it -- albeit with some mighty weird dreams. Since I mostly only took it at night, I ...
by skypup
Fri May 29, 2015 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Melanoma cancer update
Replies: 13
Views: 1277

Re: Melanoma cancer update

Good grief, that just sucks. I'm with lpas in hoping you beat both!
by skypup
Thu May 28, 2015 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care is the new plan
Replies: 9
Views: 1387

Re: Palliative Care is the new plan

I'm wishing both of you many, many good days and many more wonderful memories made! So glad that his QOL is good.
by skypup
Thu May 28, 2015 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My onc is leaving...
Replies: 10
Views: 1281

Re: My onc is leaving...

kennytwisted wrote:Just my opinion, but oncologists are a dime a dozen I've seen 8 and although I like some better than others the message is the same. I can hardly stand to even listen to their stage four spiel any longer.

Oh, ain't that the truth! Stage IV sucks.
by skypup
Thu May 28, 2015 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hipec again
Replies: 12
Views: 1313

Re: Hipec again

I would have any surgery, no matter how tough, if it gave me a fighting chance at a cure. Chemo-for-life sucks. And three years life extension when average survival with chemo is only three years? Sounds like a really good trade-off to me even if it doesn't cure. One question: how experienced is you...
by skypup
Thu May 28, 2015 10:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My onc is leaving...
Replies: 10
Views: 1281

Re: My onc is leaving...

Hi Delinda, I understand! It's like a larger case of that feeling when we finish our first go-round of chemo and then only see the doc once a month. Where is our helper, supporter, defender? I will tell you a bit of my story, though. When things got complicated for me, I went to MDA for a second opi...
by skypup
Thu May 28, 2015 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone else suffer from "chemo brain"?
Replies: 17
Views: 1456

Re: Anyone else suffer from "chemo brain"?

It is so interesting to read all these responses. When I was first kidnapped, chemo brain was still something that doctors denied existed, yet look at all our stories. I would love to take an IQ test; I know what mine was once, been tested twice, yet now... nowhere near as sharp in my analytical thi...
by skypup
Thu May 28, 2015 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are your oncologists like politicians, too?
Replies: 19
Views: 2042

Re: Are your oncologists like politicians, too?

I've had to reframe my view of my oncologist's job. I went into this thinking that he (my first) was actually thinking about my case. I felt he cared about me in a human sense, but after a while I realized that lasted only as long as the appointment did. No doctor of mine (and I've had three main on...
by skypup
Thu May 28, 2015 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Night sweats after chemo.....
Replies: 12
Views: 1548

Re: Night sweats after chemo.....

As one who has been in the trenches for a long time, I can tell you I no longer try to second guess cancer from any one symptom, even pain. Things with my body come and go and rarely seem to correlate with the cancer to a great degree. Except CEA, which is a good indicator for me.
by skypup
Wed May 27, 2015 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: disability
Replies: 9
Views: 1008

Re: disability

They will reevaluate me in a 5-7 year window. That's the longest time between evaluations possible. Not worried, lol! If you are healthy at that point, celebrate!
by skypup
Wed May 27, 2015 10:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOUNDATION ONE TESTING
Replies: 7
Views: 1937

Re: FOUNDATION ONE TESTING

Julie, Medicare refused to pay mine and I guess no one got preauthorization; Medicare takes good care of patients and they refused to let the company bill me because I had not been informed that it would likely be denied. I never heard another word about it. I have been told by the research center t...
by skypup
Sun May 24, 2015 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung spread
Replies: 5
Views: 1553

Re: Lung spread

bump
by skypup
Sun May 24, 2015 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How do you deal with all other obligations
Replies: 12
Views: 1789

Re: How do you deal with all other obligations

kennytwisted wrote:I can teach you how to alienate problem family members :shock:

LOL, kenny. The best I've come up with is not returning phone calls. Bet you do better!

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