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by lakeswim
Sun Feb 10, 2019 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 272
Views: 87867

Re: Surviving radiation for rectal cancer

hi Anne Just back from 5 days in malaga so can't complain, Was in a bit of joint pain walking around which is probably the radiation doing it's thing but trying to loose weight and at the gym 3x weeks for weigh training, so hopefully will stand to me after the surgery,,, u just want it over so I ca...
by lakeswim
Sun Feb 10, 2019 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Surgeon gave me option of seeing if extra time would allow radiation to continue working and perhaps make my fat plane more distinct. But she also warned me it isn’t likely (after chemo and chemoradiation). Surgery will be quickly scheduled if nothing changed. As my cousin, who is an experienced rad...
by lakeswim
Sun Feb 10, 2019 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion. My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha! So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then. Hi lakeswim glad you are feel...
by lakeswim
Sun Feb 10, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion. My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha! So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then. Hi lakeswim.. how did you get...
by lakeswim
Thu Feb 07, 2019 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Book Group
Replies: 10
Views: 2507

Re: Book Group

Also. There may be something to be said for being in the right place emotionally to read some of these. I may need to get to a more “stable” place in my treatment. Pre-surgery, when you’re terrified, is probably not the best time. Or maybe there’s no good time. Who knows.
by lakeswim
Thu Feb 07, 2019 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Book Group
Replies: 10
Views: 2507

Re: Book Group

Julie Yip-Williams’ book (2019) https://www.amazon.com/Unwinding-Miracle-Memoir-Death-Everything/dp/0525511350 Julie's book is being released two weeks from now, on the occasion of Chinese New Year Really looking forward to read Julie’s book. All the feelings & history with her own family - tha...
by lakeswim
Tue Feb 05, 2019 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The hospital that can't take a hint
Replies: 4
Views: 946

Re: The hospital that can't take a hint

I had an unfortunate experience with folks at CC. It was as if they didn’t want me as a patient. Maybe it was just bad timing but it was several things over time - so not one isolated thing.

They came highly recommended too. I’m sorry about your situation....
by lakeswim
Tue Feb 05, 2019 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 53
Views: 17680

Re: Female Pains AFTER radiation, No Doc will Listen...

This is more of a rant than a question...I'm coloretal cancer stage IIIb. Initial emergency colostomy, then went through 5 weeks of pelvic radiation with xeloda. The very last week of Radiation I thought I had a yeast infection, so I got the antibiotic. Then it started to feel like a UTI. I asked f...
by lakeswim
Mon Feb 04, 2019 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SNOW DAY - in the SEATTLE area - UPDATED 2/9/2019
Replies: 11
Views: 1798

Re: SNOW DAY - in the SEATTLE area!

AmyG: Good luck on your run! Enjoy and update us. (Which one is it?)
by lakeswim
Mon Feb 04, 2019 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thanks for info and suggestion.

My Rad Onc office emailed me back and said “all side effects are gone 2 weeks after radiation ends.” Ha!

So my hopes to get active again if/when my treatment is over (and I have a handle on the continence situation) is a pipe dream then.
by lakeswim
Mon Feb 04, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Achiness after radiation

Hi. I am posting this question here to this group (the watch & wait group) as they may have noticed this more due to the fact they have not had surgery. I am 10-12 weeks out of radiation and I felt GREAT (more energy than I had in years and my body felt good) until 2 weeks ago. Now I have aches ...
by lakeswim
Mon Feb 04, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you first discover or got diagnosed with colorectal cancer ?
Replies: 16
Views: 3759

Re: How did you first discover or got diagnosed with colorectal cancer ?

[quote="Jolene"]Hi everyone, I'm curious as to how everyone first discovered or got diagnosed with colorectal cancer ? I have always thought symptoms only present itself when it's T3 and above or when you are above 50, but I see that quite a number of members got diagnosed at T2 or even T1...
by lakeswim
Mon Feb 04, 2019 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Four Pillars of Colon Club (PODCAST)
Replies: 2
Views: 1322

Re: The Four Pillars of Colon Club (PODCAST)

Thanks for the heads up, O Stoma Mia!
by lakeswim
Thu Jan 31, 2019 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

As I mentioned earlier, I had chemo first (which “significantly” reduced tumor - which says something about chemo!!) and then chemo/Rad. My (described as “large”) tumor is now gone yet due to the indistinct fat plane issue, my response is not considered complete. Yet, my team is allowing me another ...
by lakeswim
Tue Jan 29, 2019 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 595
Views: 306142

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Determination of a clinical complete response is by visual observation only. I understand Dr Habr-Gama published photos and very complete descriptions of what the doctor needs to observe before declaring a CCR. My surgeon told me that these strict guidelines included a determinations of the color o...

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