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by orcasres
Sat Jan 23, 2016 1:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC - one year out of chemo :) NED
Replies: 21
Views: 3239

Re: mCRC - one year out of chemo :) NED

Wonderful news. Enjoy your day Lois
by orcasres
Sat Jan 23, 2016 1:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEJM: Potential Stage 2 CRC Biomarker for Chemotherapy Use
Replies: 4
Views: 3374

Re: NEJM: Potential Stage 2 CRC Biomarker for Chemotherapy Use

DK, Thanks so much for posting this. I was staged IIA but I got adjuvant chemo because my tumor was medullary which is rare and I had lymphovascular invasion. The medullary tumor was the driver. I just pulled my pathology report and I was CDX2 positive. While I have a number of residual side effects...
by orcasres
Thu Jan 21, 2016 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ischemic colitis and even more questions!
Replies: 8
Views: 1856

Re: Ischemic colitis and even more questions!

I know that you have issues to face, but I am so happy for you that it is not cancer. Lois
by orcasres
Mon Jan 11, 2016 11:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sooo O/T but WAY TO GO SEAHAWKS!!!
Replies: 13
Views: 2603

Re: Sooo O/T but WAY TO GO SEAHAWKS!!!

We really enjoyed the Seahawks win since we live in the San Juan Islands in Western Washington. We have lived here for nearly 10 years, and before that 20 years outside of San Jose CA making us de facto 49er fans. But I was born in Pittsburgh, PA, went to college in Meadville, PA, and then lived in ...
by orcasres
Mon Dec 28, 2015 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Its Back
Replies: 23
Views: 4513

Re: Its Back

Hi, Mike,

I am sorry to hear that you have a recurrence but it sounds like you are on track for a plan to go after the beast again. Oxi (the OX in FOLFOX) normally causes neuropathy, so hopefully you will not get that side effect again. Lois
by orcasres
Wed Dec 23, 2015 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer does not play fair....we know that: Update
Replies: 11
Views: 1867

Re: Cancer does not play fair....we know that

I am so sorry you have to face this, but it helps to have each other. My husband was my rock when I was diagnosed. He has a lot of chronic illnesses and we just solve each problem as it comes. May you get the best news possible and may you find an effective treatment plan going forward. Best wishes ...
by orcasres
Thu Dec 17, 2015 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Little update
Replies: 6
Views: 1527

Re: Little update

Lynch negative is really good news. I remember that when I got my 'negative" news I felt a huge relief, not just for myself, but for my family members, Have a good holiday. Lois
by orcasres
Thu Dec 17, 2015 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low neutrophils and lymphocytes
Replies: 2
Views: 894

Re: Low neutrophils and lymphocytes

On my fifth treatment my WBC and neutrophils were too low (they had been close to that limit before but not quite there) so I had to postpone treatment for two more weeks. It was disappointing (I had to get up at 4 AM to get a ferry to get there) but I felt SO lousy I was glad we skipped. Two weeks ...
by orcasres
Tue Dec 15, 2015 12:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lightening strikes twice?
Replies: 48
Views: 5773

Re: Lightening strikes twice?

We are swinging away. My first positive on a mammogram came a month after my resection surgery and the same week I was getting my genetic testing results and two weeks before I was supposed to start chemo. It was a false positive, but a lousy week, nevertheless. Lois
by orcasres
Tue Dec 15, 2015 12:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When does the start date for the five year window begin- after surgery or after completion of chemo?
Replies: 12
Views: 2193

Re: When does the start date for the five year window begin- after surgery or after completion of chemo?

My oncologist "released me" in September, which was five years from my diagnosis and surgery. I was considered NED at that time, but I still did chemo. Lois
by orcasres
Sun Dec 13, 2015 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: wearing wigs at home
Replies: 6
Views: 1418

Re: wearing wigs at home

When I was on FOLFOX I lost about 95% of my hair. I tried a wig, but hated it, so I started using hats and scarves, even in the house. I had enough wisps of hair on the edges that scarves worked very well. I ordered them from the American Cancer society. Lois
by orcasres
Wed Dec 02, 2015 2:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go
Replies: 3
Views: 903

Re: Here we go

Best of luck. Please keep us posted. Lois
by orcasres
Tue Dec 01, 2015 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - My Lesley went to the Rainbow Bridge this morning
Replies: 38
Views: 4527

Re: O/T - My Lesley went to the Rainbow Bridge this morning

I understand completely and sympathize. Our Chihuahua/Jack Terrier cross is nearing the end. He has had a heart murmur for three years (he is 13 we think - he's a rescue) and he is finding it harder and harder to get comfortable. Our vet works out of her car and is on alert that she might need to ma...

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