Maia - no, I don't know if I'm MSS or MSI. Is this something that will be determined by the biopsy? I inadvertently came across a stat a little while ago that Stage 4 CRC patients can now live "up to 30 months". WTF? I didn't ask my doc for stats, and he said he does not like to place huge...

Thank you for your response, and I"m so glad you've had an encouraging evaluation. :) I'm SO mad that this thing didn't let me take a real break. I finished FOLFOX on 9/26/16 and already I've got what appear to be mets. I feel my body hates me and is trying to do me in. I've always looked after...

I'm so sorry you're having to go through this. Hopefully things will work themselves out and if he DOES have to go back in, better now while you're still there than to be released & readmitted later. I wish I could offer advice or suggestions. Hugs to you and please keep us posted. I hope your t...

So I just got home from my onc appointment to review my CT scan results. The two lung spots grew AND there's a new 3rd spot. He's going to biopsy ASAP, supposedly this week, and if they are mets (and he seems to now think they are) we'll most likely to radio frequency ablation, repeat scans, and the...

This is such awesome and encouraging news ~ so happy for you!

Thanks for your input, nomoretacos. I appreciate any and all insight, experiences, etc. After discussing today's frustration with my husband, I'm going to cancel the PET scan. Tomorrow I'm going to call my onc's office, see if I can get an appointment to meet with him & discuss in person to clar...

Well, I just got off the phone with my onc's nurse, who said she spoke with my onc, who said I 'must have misunderstood,' that it wasn't an either/or option to have the biopsy vs. scan, that I'd need both. My husband and I were BOTH there & know what we heard. He clearly indicated the needle bio...

(Some of this is repetition of my post earlier this week, so sorry if you're reading this twice). I had a CT scan with contrast done 6 weeks after finishing chemo. Onc said everything looked great, including bloodwork. Only thing that showed up were two small spots on my lung which he emphatically a...

My CR surgeon waited a month after my last FOLFOX treatment. And yes, the leak test - fun times! I remember the nurse kept telling me to "squeeze my cheeks" together the whole time. They also used tape to secure the tube and hold it in place. I thought the nurse would never stop taping - l...

Thanks for the reassurance. :) I just spoke with the tech regarding the needle biopsy, which my onc led me to believe could be scheduled this week & was no big / long deal. Wrong. The soonest they can do the biopsy would be the 30th AND it takes all day. Not to do the scan & biopsy, but the ...

Thanks, Beans. :) Of course, now I'm scrolling through post after post trying to find experiences where spots popped up so soon after finishing Tx but turned out to be nothing. I suppose I should just let this go, wait to have the flippin' biopsy, and see what turns up. I appreciate the good wishes ...

Thanks for your support. I keep reminding myself how optimistic and reassuring my onc was. I tell myself it's only been 2 months since Tx ended, surely that's too soon for something to have cropped up already. But we all know this thing doesn't play by any rules, and it certainly doesn't play fair. ...

Met with my onc a little while ago. He assured my that my blood work is "excellent" and that the scans of my pelvis & abdomen were great; says I'm in remission and that there is no evidence of disease. HOWEVER, there were two tiny spots that showed up on my left lower lung. He said SEV...

Another vote here for napping as needed, as well as staying hydrated and nourished. D/C day was always when I was the most tired. Not too bad at first, but cycles 8-12, I definitely felt the effects. Coconut water is good for hydration & electrolytes, as are Nuun's tablets (fizzy vitamin & e...

Thanks for that info - it helps me calm down a bit. Like you, I think I'm the only one that notices it. So upsetting because my hair has always been my "thing." It's good to know that I'm not alone in this, and that it may take longer than I anticipated for it to stop shedding. Still, I ca...