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by radnyc
Sun Mar 23, 2014 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last Pump Fill
Replies: 12
Views: 1432

Re: Last Pump Fill

Hi Julie, I build it up slowly over the last three years. Remember that chemotherapy is particularly hard on the liver, and HAI more so as the drug is pumped directly to the organ. I can't suggest how much or what to drink, just try and not tax the liver with too much alcohol too quickly. Your onc s...
by radnyc
Thu Mar 20, 2014 6:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals
Replies: 13
Views: 1228

Re: Hospitals

In my opinion, when it comes to cancer, particularly advanced cancers, stage 2b +, you need to find the most experienced team of doctors and specialists. As we all know it's a complicated disease which can become terminal quickly in aggressive cases. I'm fortunate to live in NYC and be close to high...
by radnyc
Thu Mar 20, 2014 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2014 Colorectal Cancer Stats
Replies: 1
Views: 721

Re: 2014 Colorectal Cancer Stats

Interesting, but there may be concrete reasons for more young diagnoses. http://www.oncologypractice.com/oncologyreport/single-view/colorectal-cancer-incidence-rising-sharply-among-younger-adults/a00ffbf510248b815e386d354d058b4b.html This article points out the obesity epidemic, physical inactivity,...
by radnyc
Thu Mar 20, 2014 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last Pump Fill
Replies: 12
Views: 1432

Re: Last Pump Fill

My last pump treatment was 3 years ago. I had a rare glass of wine during the treatment, my liver enzymes took about 6 months to normalize, they've been perfect since. Nowadays my alcohol consumption is pretty much what it had been prior to cancer. I've been taking Milk Thistle daily during that per...
by radnyc
Tue Mar 18, 2014 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increased markers and pet-ct shows fdg uptake in liver
Replies: 7
Views: 1770

Re: Increased markers and pet-ct shows fdg uptake in liver

Hi there, you really should look into HAI therapy, it's all about getting your liver tumor free, find out if it's possible in your area, if you're close to NYC, MSKCC is the place. Good luck!

Al
by radnyc
Thu Mar 13, 2014 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is safe to take for a headache while on HAI/Fudr
Replies: 7
Views: 891

Re: What is safe to take for a headache while on HAI/Fudr

Threads like this make me wonder if we should start a dedicated space for HAI treatment patients. At this point there seem to be enough of us here to share our experiences with this protocol. It's clear people are interested in finding out information. Anyone else agree?
Al
by radnyc
Thu Mar 13, 2014 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is safe to take for a headache while on HAI/Fudr
Replies: 7
Views: 891

Re: What is safe to take for a headache while on HAI/Fudr

Whatever you take don't take Tylenol, particularly with HAI treatment, it does a number on your liver.
by radnyc
Thu Mar 13, 2014 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Great Article
Replies: 23
Views: 2000

Re: Great Article

Many studies over decades have shown the benefit of exercise for overall health and well being, just do a quick Google search. Using the folks here at Colon Club or anecdotal stories we've heard, as a representative group is absurd. There are hundreds of thousands of people with all kinds of cancers...
by radnyc
Wed Mar 12, 2014 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Great Article
Replies: 23
Views: 2000

Re: Great Article

From my research, and I'm not a scientist, the two things that seem to pop most often in cancer prevention are exercise and regular use of aspirin. I think it seems obvious that the a more active, less sedentary lifestyle is condusive to overall health. Saying that so and so used to exercise and got...
by radnyc
Wed Mar 12, 2014 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK
Replies: 10
Views: 2065

Re: PSK

Kenny, I take 5 capsules a day, that's 3000 mg., on an empty stomach. Usually I take 3 capsules first thing in the morning, the other 2 between lunch and dinner. Remember to always let your doc know what supplements you're taking, specially if still in treatment.
Al
by radnyc
Wed Mar 12, 2014 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK
Replies: 10
Views: 2065

Re: PSK

I've used the mushroom science PSK kind for three years +. My onc was not opposed to me using during chemo. Did it work? Who knows, but I feel that for me it has. I still take it and will continue to indefinitely no side effects at all. It was recommended to me by integrative doc at MSKCC.

Al
by radnyc
Thu Mar 06, 2014 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting study on false-positive CEA levels
Replies: 8
Views: 3266

Re: Interesting study on false-positive CEA levels

I agree that it's anxiety inducing to get hung up on CEA, but we still do :-( Stephen, the fact that your wife's number is under 5 is a great thing, try not to worry about it too much. My onc had said he is not concerned unless it goes above 10, for my case. PTFLY, it's not uncommon to see CEA fluct...
by radnyc
Wed Mar 05, 2014 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting study on false-positive CEA levels
Replies: 8
Views: 3266

Re: Interesting study on false-positive CEA levels

Hi Amy, I also wish mine was 0! But, it's never been lower than 3. I have only read on this blog, I think, or maybe at CSN, people mentioning that MSK's run a bit higher, so is anecdotal. I did, however had my CEA run once by a different oncologist outside of MSK, and the reading was in fact lower. ...
by radnyc
Wed Mar 05, 2014 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting study on false-positive CEA levels
Replies: 8
Views: 3266

Interesting study on false-positive CEA levels

For those like me, who fret about ocassional slight CEA elevations. This is an MSKCC presentation at this year's ASCO meeting. The participating oncologists include Dr. Kemeny, mine is there as well. Unfortunately we can't get access to the whole presentation, but the abstract is pretty good. The ta...
by radnyc
Wed Mar 05, 2014 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on Early IRA Withdrawl
Replies: 12
Views: 2882

Re: Question on Early IRA Withdrawl

Perhaps it'll be helpful to share this information as there might be others with similar questions. In a general sense of course. Thanks.
A

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