Cardiologist has been trying to get me but of corse I ignore, you know like you do... so get this one. I thought I had a heart attack November 29. Figured I was just being a girl or anxiety attack. That was some chest crusher let me tell you. Next day weak couldn’t walk. So finally went for stress, ...

Mike during my husbands FOLFOX he would sometimes use a heating pad on low setting if things got rough. He also rested with hands a little above his heart and he swore that worked. I know it’s miserable, but worth doing “just in case” and to keep any cancer at bay. I hope you start feeling better af...

Hugs Robino keep me updated as to how you are doing. I’m in your corner! xo Mrs Z

LOL! Robino we already know more than we should unfortunately!

I’m so sorry first that you have so much discomfort, but also IBS. That can be absolutely miserable. I hope you can get in sooner, at the very least to help relieve your symptoms. I’m glad you are getting a colonoscopy, it’s pretty thorough and they can see what’s going on. I know it’s hard not to w...

Yes they probably do die at different rates, but like you said I don’t want any viable cancer in there! So conflicting as this disease stabilizes and hopefully dies. Do you think he can be NED after this mess or is stable our best bet? I know you don’t cure metastatic disease always,but wondering if...

CEA Over the summer was 39 before treatment. July 26. By November 1,807. CA19-9 was 2700 in June, 3100 by August sometime, 132,458 by November, went up to 138,000 according to them, and then dropped to around 42,500 as of January 2. All other numbers normal range, including creatine, bun, etc. RBC, ...

Rp1954 I like to see all his blood numbers and I compare each one. Oddly with all this going on including liver enzymes, NOTHING is out of range!!! I’m shocked by that but happy. Even before this biologics treatment they were normal range. Only weird one that hangs out at 16 or 17 is his RDW. LD was...

Well found out this afternoon what the sunken eye was all about. Apparently a nodule is in the soft tissue by the eye and that’s causing the problem. He has 7-8 of them on his scalp, besides the subcutaneous abdominal ones and peritoneal and retroperitoneal. They will keep an eye on it. No pun inten...

Hi NHMike, yes he’s having a rough go, but we are in good hands. I’m getting used to the ups and downs but more worried about hubs. He gets depressed and understandably so. It’s hard to not have control, but that’s what our Dr is here for. We have to let her help us, she studies this all day long! T...

Robino yes cancer cells dying off I believe may show them in circulation from die off and CEA can rise as your going through chemo and then drop back down. At least that’s how I understand it from my breast cancer stint. Yes it is quite the winding road and cancer patients have my full heart due to ...

Yes Robino that is a very thoughtful take on it. We are on this trail together and I sincerely hope your 2018 is smooth and you continue to move forward and enjoy life. The highs and lows for anyone going through cancer can be extreme sometimes. Like a rollercoaster. Mr Ziggy has highs and lows as w...

They are keeping him on the trial! Yay! Doc said adenopathy stable, they’ll watch the nodules and their growth. If we see changes of course treatment will change but as of now we are still plugging along!

I will definitely address it today along with kidneys.

Rp1954 didn’t think of that. Maybe he would be re-sensitized to the 5FU etc, because it didn’t work in the first place. He progressed on it. Maybe now he wouldn’t. With the high CA19-9 I’m wondering about mutation or hypoxia inducible factor(s). I will read and re-read what you wrote take notes and ...