Soooo... I was sitting on my chemo chair for the first time this afternoon and i was feeling pretty damn great. Drunk 2 1/2 liters of water and moved around... When there were only 10 ml left from my Oxi it has begun: neuropathy! Didn't feel my mouth, my hands and feet startet to feel funny.. stings...

Thank you all so much for your answers, they provided me with great insight and a feeling that I really am not in this parenting-while-doing-chemo-endeavour alone.. Lee : I took a close look to the nu hope belts, and they really seem superb. My surgeon and stoma nurse are against that I use a stoma ...

Thank you for your answer and experience Kim. I'm really afraid of hernias and that is why I'm trying to hold back... My daughter is 20 Months old, so she's having a hard time accepting that I can't pick her up or have to lay down a couple of times during the day. I hope chemo will be a breeze, I re...

Hello once again fellow Colonclubers :) Tomorrow I will complete 4 weeks after my Transanal TME with a colostomy and everyday I'm feeling better (apart from my rectal stump that is a total diva, but it's getting better). My stoma is very well behaved and I figured out already how to dress nicely and...

First of all, congratulations on conquering the months of chemotherapy and that you have that obstacle behind you. I'm not a doctor and I am really no expert in imagiology. So I can only talk about my experience... In the first CT that I had when diagnosed (1/17) a cyst was also found in my liver. 4...

Karen..

You are one of a kind. I've read many of your posts here and at the UOAA Forum and the advice you give is not only high quality but always very respectfull and reassuring.

I'm very thankfull for having you answer this insecurities and making my day much better.

Thank you!

Love,
Ana

Thank you very much Lee. I'm lurking around the uoaa for a couple of weeks now and they have a lot of useful links and information. I'm not thinking about swimming this year because of the oxi, but I will sure as hell get a sexy bikini to play with my daughter in the garden. And as soon as I heal up...

Hi there :) I'm bumping this thread up, because I am having second thoughts about my abdominal binder and cannot find the answers that will set my mind at ease. I had surgery on 10th May and was fitted with an abdominal binder in the ICU. It was really comfortable except it hadn't had an opening for...

Just wanted to add: if you have to wait a long time to check your liver you can try and get an ultrasound from a specialist.

Much cheaper and the good ones will tell you on the fly if you have to worry and pursue swiftness or not.

Like most I'm obsessed with survival rates. I just got my path report and I'm so in the same place right now. N1 is not bad, that's why your oncologist gave you a better number maybe. And age is know to be of advantage but I never read a study with specific numbers. I'm hoping he's right, though :m...

As a fellow colleagues I won't talk bad about any specific situation with doctors or nurses. But I will say this. Please PLEASE! Know your shit! I know it is not easy, when you are not from the medical field to understand what it is right or best for you. But do research and advocate for yourself. Y...

Thank you so much you guys. I'm thinking that still have hard days ahead before I can reach a successful closure, which I can only hope for. And good or bad, I definately will be wanting to share them with you... My colostomy is still noticeable, my abdomen is really distended, and when the pouch fi...

Dear Colonclubers, A week after my surgery I just wanted to give an update of my status and talk about my first ever experience as an OP Patient 8) But first I really want to thank you all again for your support during this period specially in the night before my surgery. I had a very raw conversati...

I too, don't have any words. I'm so sorry....
Everything is so cruel and random it is hard not to wonder about the meaning of this life. Don't blame your daughter... don't blame yourself too, ever.

You are in my thoughts,
Ana

Dear Colonclubers, I'm alive and kicking! Still in the ICU but I'm going up today to a normal bedroom station and will be able to see my daughter :mrgreen: Woken up with a light feeling of relief and not feeling the need to go to the loo. Just for that, I'm already loving my new bellyBUTTon :mrgreen...