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by LPL
Sat Mar 30, 2019 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tests for evaluating chemo between scans?
Replies: 15
Views: 2380

Re: Tests for evaluating chemo between scans?

Zephyr wrote: I believe the combination of MSI and KRAS exclude immunotherapy options but I'm checking into the Foundation One information. Where have you heard that? I thought it was the MSI status and not the mutations that was of importance.. Please share when you find out. Is there an emoticon ...
by LPL
Sat Mar 30, 2019 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 37
Views: 12277

Re: Preparing a facts & to-do-list for "newcomers"?

Here's another little-known fact relevant for newcomers from the US or Canada: In the U.S., possible toxicity due to excess folate or Vitamin B9 https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50140&hilit=folate#p382499 Thank you for posting this O Stoma Mia. I didn’t know ther...
by LPL
Sat Mar 30, 2019 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tests for evaluating chemo between scans?
Replies: 15
Views: 2380

Re: Tests for evaluating chemo between scans?

Zephyr wrote:
I believe the combination of MSI and KRAS exclude immunotherapy options but I'm checking into the Foundation One information.

Where have you heard that? I thought it was the MSI status and not the mutations that was of importance.. Please share when you find out.
by LPL
Thu Mar 28, 2019 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 385
Views: 120287

Re: My CRC with liver mets journey

Thank you for udate Gina !
I have been thinking about you and I’m glad it sounds as you are ok after having had this surgery. I hope the pain will go away soon and you will have a speedy healing !!
by LPL
Wed Mar 27, 2019 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well this is interesting
Replies: 16
Views: 2575

Re: Well this is interesting

Thinking about you Dave.
Best of Luck <3
by LPL
Tue Mar 26, 2019 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 3876

Re: Thinking of you AmyG

Oh.. thank you for update, for sharing this with us.
Big Congratulations :D
by LPL
Tue Mar 26, 2019 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump leak into lymph nodes
Replies: 10
Views: 2463

Re: Hai pump leak into lymph nodes

mbpser wrote: I'm a bit of a stickler for facts (the attorney in me)

Thank you for pointing that out. I’m dealing with a law suite and an attorney and that really makes sense to me :wink:
by LPL
Tue Mar 26, 2019 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 3876

Re: Thinking of you AmyG

Punky44 wrote:AmyG,

How did your labor and delivery go? Hope you and baby are doing well. Please update on your treatment plans when you can.

Thinking of you!

Me too - thinking of you !
Hope everything is fine.
by LPL
Tue Mar 26, 2019 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT vs Cryo for lung mets & Maint schedule
Replies: 7
Views: 1362

Re: SBRT vs Cryo for lung mets & Maint schedule

Hello everyone, A couple of nodules on my lungs have grown. I previously had cryo and got two years of time out of the procedure. The PET sees some avidity with one met having a higher SUV then before. I was thinking about cryo again but a second opinion doc weighed in that radiation seems to work ...
by LPL
Mon Mar 25, 2019 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supporting my husband with a new DX *UPDATE*
Replies: 28
Views: 6204

Re: Supporting my husband with a new DX *UPDATE 3/25/2019*

So I've read about SCANXIETY on here. My husband finished his 6th round of chemo on Friday. He's gained 10 lbs, looks much healthier, and is able to work out in the yard, build things in his shop. His iron levels have normalized, he's gotten used to his colostemy, he is no longer pale and sunken lo...
by LPL
Mon Mar 25, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 25
Views: 5732

Re: 2 swollen nodes in abdomen...

YES! Thank you Brenda!! We asked my husband's oncologist about Dr. Cha (after reading your post), and they actually know each other! His onc is going to speak with Cha and set up an appointment....my husband loves his local surgeon but also wants to hear what Dr. Cha has to say.....thank you so muc...
by LPL
Mon Mar 25, 2019 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 385
Views: 120287

Re: My CRC with liver mets journey

We are in New York! Surgery scheduled for Wednesday. Brought all the kids (it’s their spring break) and have been playing tourist. The apartment we were loaned is incredible: 3 bedroom, 3 bath, on the edge of Central Park with the most amazing views and a playground right across the street. The fir...
by LPL
Fri Mar 22, 2019 5:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2019
Replies: 90
Views: 46763

Re: Drinking Coca-Cola and Diet Coke daily 'increases your risk of dying young'

Drinking Coca-Cola and Diet Coke daily 'increases your risk of dying young' https://www.birminghammail.co.uk/news/health/drinking-coca-cola-diet-coke-15991736 This article is commenting on the study before it was published https://www.sciencedaily.com/releases/2019/03/190318084153.htm and I believe...
by LPL
Thu Mar 21, 2019 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 124
Views: 20931

Re: Possibly still NED...our story to date

Yesterday was especially hard because we had not gotten much sleep that morning due to lots of commotion at the place we stayed the night before. We were woken up at 4:45am and didn't get much sleep after that. It was a very long, tiring day, but thankfully we both slept well last night and this mo...
by LPL
Thu Mar 21, 2019 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 124
Views: 20931

Re: Possibly still NED...our story to date

My husband’s 12:30 bloodwork results yesterday included elevated platelets, white blood cells, carbon dioxide, and neutrophils. At around 5:30, we finally got in to see oncologist for his 1:15 appointment. We had to ask about this as it was overlooked. Oncologist’s assistant was more concerned abou...

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