I'm doing well :) minor recurrence but no treatment for now. Enjoying life :P What I did back then was I would always have fresh lemon with me. Whenever I felt like committing, I would cut it open and sniff the lemon. Of course I had all the anti nausea medication in the world too (some gave me cons...

I had exactly that same reaction together with neverending vomit after my folfiri+avastin. I was at one point crawling on the floor coz I was too weak to walk to the bathroom to vomit some more. My WBC dropped rapidly and I had lost 7lbs in one week as well by the second round. The Dr felt I probabl...

8) Hi there, I have done SBRT, but not to my lungs. I know someone who has done SBRT to their lungs. I can share with you both experience. SBRT was very easy to me. I had a total of 5 sessions to my pelvic area, I hadn't done more as it would damage too much of my colon. Each session lasted for abou...

Avoid cold things, sour things. I also noticed whenever saliva came out from the side of mouth, it would hurt too, not just when I took the first bite. Like if someone was cooking up something delicious, and I was hungry, even the small walk to the dinner table, I could feel my jaw hurting a bit. So...

I’ve thought a lot about why this recurrence is so emotionally deflating (other than the obvious). When I decided to keep working in the wake of my initial diagnosis, I got the feeling that if I recurred, THAT would be the time to quit because it would be a sign that I wouldn’t make it. My therapis...

If I were you, I wouldn't do chemo and I share with you why. I am a stage IV and had 18 months chemo free until the latest recurrence in my lymph nodes. It is not a good place to have Mets and I'm now doing chemo. I had a pseudo recurrence last Aug in my lung which VATS took care of it. Surgeon and ...

Congrats. I'm so excited for you!!!

We were kinda upset to hear this morning that DH would get his 9th Folfiri treatment postponed by a week because of neutropenia. But then I found this article: https://medivizor.com/blog/SampleLibrary/colorectal-cancer/does-chemotherapy-induced-neutropenia-improve-survival-in-metastatic-colorectal-...

So I had the 6-day prednisone pack starting 6/28, and it gave me a few days of glorious low pain and high energy...but the pain came roaring back as soon as I was done. It is probably at a level about 10% less than pre-prednisone, though. Ibuprofen helps a bit, but I'm still semi-crippled. I think ...

Great news Leon!!! Happy for you!!!

Just wanna cheer for Pyro. Folfiri is not easy, I'm doing it and really pushing hard. I can't imagine the many rounds you have done.

I keep my fingers crossed for you!!!

P.s. the car really rocks!!!!

Mohrfamily, I don't feel that your doctor has that curative intent at heart. I may be wrong. Just my gut feeling. I had 5 tumors in my liver at diagnosis, the largest one was 8cm. Almost all segments were involved. The doctors got me to NED in 6 months and told me at every consultation in that 6 mon...

Hi Paola, Just to give you some encouragement on the chemo bit. I trust chemo works to a certain extent, and I used to work for a pharmaceutical player. That says a lot. But when I say I trust, I mean it from my own experience. I was originally not a candidate for surgery because of the tumor bulk I...

I'm soooooo happy for you! I know that feeling let's kick those cancer cells hard!!!

My platelets were barely scraping the low end of the normal range when I started Folfox, maybe around 140, and went steadily down from there. I had to postpone chemo a week for the count to come back up a few times. My count was below 80 many times, and no one ever mentioned getting a transfusion. ...