So I'm in between that rock and a hard spot decision. I had anal cancer, diagnosed one year ago. I had a ileostomy with a jpouch created for 10 months while i went through chemo and radiation. I was recently reversed on Jan 15th. I've been having major complications with my reversal and today met wi...
Yes, every bit of info shared here has been great! For me the major turning point was getting on the lomotil. Not neccisarily to control diarrhea at all but to control and take away the spasm, urgency, and rectal cramping I was having. This took it right away and instantly I felt like I could do thi...
Three days ago I had a fellow colorrectal cancer mate message me. She told me about lomotil. Said the urgency and rush toget to the pot would simply go away if I took it. I had some here that I never used with my bag as I liked my Consistency runny so I never used it. I took the Lomotil two days ago...
Yes I learned day 7 tomatoes cooked are a no no, hell no for me! I'm hoping the burning/ acidic does eventually to away! I don't want to go around screaming " Fire in the hole" the rest of my life! xo, Alys
Everyone thank you for taking the time to write me and give me suggestions! I know this topic has been covered before however I felt like I had some specific questions and I'm happy now that I dared to post them. What is the butt burn from is it that the stool is very acidic? If so does anyone know ...
I had my ileostomy reversed Jan 15th. I am stage 3c and my original surgery created a Jpouch. I had my surgery 25 days ago and am still really struggling. Using the toilet 3 x an hour with urgency, however at night I am able to sleep without interuption. I'm taking benefiber, lomotil, and probiotics...
Thank you to all who posted comments. I have found them all very helpful. I have started my Keagle's and also read the attached link pamphlet of rectal exercises. OneEyeddog, I just finished spending the past hour on your blog. Laughed my ass off so entertained by your experiences and ability to sha...
Hi, Thank you for your comments! I am having my ileostomy take down on the 15th of this month which is a little over 2 weeks away. I'm wondering is there anything I can do prior to the surgery take down to help prepare my body, rectum, etc for this? I have read a lot of the comments here on the foru...
I just finished my 28 sessions of radiation 7 days ago. 5 days ago both legs and feet started to hurt I assumed from the inflamation. Now today the back of my right leg is killing. Behind my knee to be exact. Has anyone heard radiation can cause blood clots? Any experience out there with this? Thank...
Thank you for your message! What does it mean that your bladder fell not the void of your rectum? I've noticed the past 4 days when going pee it totally feels different than it ever has before. Curious... Alys
Thank you for the congrats! Your treatments will be over soon as well! Thank goodness! My heart goes out to you. I can't imagine what you are going through with a new little one just arriving. Stay in touch xo
I just completed my 28 rounds of post surgical radiation for my rectal cancer yesterday and last night I started to pee blood. As you may very ell know if you have ever had a urinary tract infection this feels like you are peeing glass shards! OUCH! I went and had my urine tested and it came back wi...
Thank you for all your replies and tips. I truly appreciate them all! The pain is still there and quite extreme. Last night I started bleeding pee. Im going to do a separate post in regards to this to see if anyone has any tips or info on this. Thank you! xo, Alys