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by Shana
Sat Jun 16, 2018 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 222
Views: 91380

Re: Mop up chemo experiences

Caat55 wrote:Yes, it sucks. The drugs have worn of and awful set in. Sleeping is the best option today,
I think anything to get rid of the stuff is worth a try.
S


Hang in there! I know we keep saying that but you're almost there.

Sleep and soup and whatever else helps, hope tomorrow is better for you xoxo
by Shana
Fri Jun 15, 2018 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 13
Views: 3152

Re: hospice

I am so very sorry to hear this. Sending you love and prayers for comfort
by Shana
Fri Jun 15, 2018 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 1103

Re: My Immunotherapy Consultation at UCSF

S, can you do the OX without the 5FU...just the oxyalplatin? I don't know that 5FU did much for DH but OX was helpful. DH did FOLFOX+Avastin then just 5FU but had to go back to the full FOLFOX after a few months. His blood counts dropped too and he skipped a few rounds along the way. Fingers crosse...
by Shana
Fri Jun 15, 2018 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 222
Views: 91380

Re: Mop up chemo experiences

Slept so solidly last night didn't wake up when my bag started to balloon, it bursts off the flange and a little mess. My husband is so great he remembered to get me slippers to run around and get things like a new bag and get it reattached while he stripped the bed and took care of all the stuff f...
by Shana
Fri Jun 15, 2018 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 1103

Re: My Immunotherapy Consultation at UCSF

Hi Shana, thanks for the post. Always good to know what's out there. Have you had FOLFOX yet? DH started with that. Did wonders for about 14 months. M Hi M, I started with Folfox but we found out that I am allergic to 5FU. It's the gold standard for most everyone but I tried it twice and ended up h...
by Shana
Fri Jun 15, 2018 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 837
Views: 405415

Re: For Stage III's: NED for how long now?

Basil wrote:I had my one year ct and colonoscopy this week and learned my results this morning. All clear. Scope, ct and blood all great. One down, four to go.


Yay! Glad to hear your good news! NED forever and always!
by Shana
Fri Jun 15, 2018 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 837
Views: 405415

Re: For Stage III's: NED for how long now?

wwroam wrote:Ten days early but I'm claiming 11 years before this thread disappears to page 3.
Even better, I am now 4 months in remission for NSC Lung Cancer. From inoperable to remission.
Best wishes to all
Wayne


Awesome! Keep on NED!
by Shana
Thu Jun 14, 2018 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Immunotherapy Consultation at UCSF
Replies: 4
Views: 1103

My Immunotherapy Consultation at UCSF

Hi All, I just wanted to share my experience of my first ever Immunotherapy consultation. I met with Dr. Oh who is part of the UCSF immunotherapy team. He was personable, very informative and took his time explaining what he does and what they’re working on.The doctor said that I was well informed a...
by Shana
Thu Jun 14, 2018 9:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 222
Views: 91380

Re: Mop up chemo experiences Cycle 5

XELOX (CAPEOX) Treatment Schedule Cycle 1 Infusion: March 22, 2018- Day 01 Cycle 2 Infusion: April 12, 2018 - Day 22 Cycle 3 Infusion: May 3, 2018 - Day 43 Cycle 4 Infusion: May 24, 2018 - Day 64 (Note: Oxaliplatin infusion skipped on Cycle 4) Cycle 5 Infusion: June 14, 2018 - Day 85◄◄◄ Last Xeloda...
by Shana
Fri Jun 08, 2018 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 13617

Re: Trying Keytruda Off-Label (MSS with a Twist)

Great news! Keep those numbers dropping! :D
by Shana
Thu Jun 07, 2018 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 496981

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

That's awesome Claudia! Glad you're doing so well.

I bet you'll do great too Mike, your body has been through a lot but you've been on top of it every day and deserve a break after all this. It's been a marathon!
by Shana
Thu Jun 07, 2018 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 496981

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

NHMike wrote:Surgeon suggested reversal one month after end of chemo.



That's great! Good to know and be ready
by Shana
Wed Jun 06, 2018 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: quarter size mass found in my 13 year old son, need advise.
Replies: 12
Views: 1943

Re: quarter size mass found in my 13 year old son, need advise.

Happy to hear your good news and it's great that you're aware of it and can monitor as needed.
So glad that you got that sigh of relief!

This is the greatest support group that no one wanted to join and the people here are the shining lights of hope and comfort
by Shana
Tue Jun 05, 2018 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: quarter size mass found in my 13 year old son, need advise.
Replies: 12
Views: 1943

Re: quarter size mass found in my 13 year old son, need advise.

Hoping this is some sort of anomaly and you get good news soon.

Prayers for your son and you, waiting is the hardest right now. Hang in there!
by Shana
Mon Jun 04, 2018 11:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 12483

Re: Scan scheduled

It would have been nice if they had called you beforehand to let you know that insurance approval was still pending! Glad you had fun at yoga class and hopefully you can take your vacation and reschedule around it!

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