Hope all goes well, keep us posted, you've been a real fighter!

Hi Peg and welcome to the group, hopefully you can find some helpful information here! My husband also has had a very unusual cancer so far - pretty much everything in the past 6 years has been in the <1% of cases: no primary, isolated lumbar vertebrae met -> adrenal gland met -> rectal primary disc...

Cancer that does not grow is not a serious risk generally. If we could keep DH stable forever, we'd totally take it: he's got active cancer inside L3 and L4 (lytic tumors), which are very difficult to treat (especially since he's maxed out on radiation). But it's been like this for a year now and a...

From what I just read, 20mg/day would already provide anti-cancer effects, so you should be good Beach Sunrise!

We may have differing opinions regarding Covid vaccine, CHL8723, but this is looking extremely interesting. My husband's cancer is slow growing ("indolent" is what the radiation onc called it yesterday!), and his general pathology has been extremely unusual (primary not found for 4 years, ...

Very sorry to read this :( I would think that PFCCR and Beach sunrise would have good advice for you, better than what I can say - my husband also had multiple lung nodules, but he had excellent response to Folfiri/Avastin and his lungs have been clear for 4 or so years now. Sending positive thought...

Met with radiation onc this morning. She does agree with onc that node is very small; using SBRT to zap it would be challenging (beside, DH had so much radiation already that she feels caution is required, she'd want to have a proper discussion with her colleague over at OHSU who did the lumbar SBRT...

He’s done great so far and it sounds like maybe the biology isn’t so aggressive! Hang in there! You’ve got this! Aww thank you you're so sweet! It is true that DH's cancer isn't particularly aggressive; it's just... Relentless, we feel like we're playing a game of whack-a-mole, but that's not uncom...

Claudine, so sorry to hear of your husbands new little pest that’s cropped up, but glad it is just that and can see you’re already full steam ahead in getting opinions etc sorted! Thanks Bianca, sometimes it's hard to keep up the fight (it's been 5+ years already), DH is always waiting for "th...

Really interesting about the enemas but is that because of constipation?

No! It's the opposite. Doing the enemas helps empty the colon/rectum, so one doesn't need to be on the toilet for hours.

Oh wow that's way bitter than DH's (7mm in its largest dimension). Still, I'd rather it gets taken out before it gets that big!

Hi Bianca, I hope you had a great time in France! It's now been a year since DH's reversal, so what it is is likely to be what it will be. He's eating and drinking what he wants, because food and wine are such a joy for him, and there doesn't seem to be anything specific that will trigger bad episod...

While they are small and less metastatic is the time to remove LN and mets surgically. Right?!? That's why neither of us are happy with the onc's attitude of "let's watch it". Meeting with radiation oncologist this week (also to discuss DH's delayed radiation plexopathy), but I do want to...

I had an isolated single right common iliac lymph node metastasis. I had surgery to remove and was disease free for about 2.5 years

Thank you for your testimony, Dennyp. Do you know/remember how large that lymph node was when it was removed?

Thanks BPaint! I talked with the onc last night (phone), his opinion is that we should just "watch it" because it's so small, a surgeon using laparoscopy may not be able to find it. he said it's always possible to remove a bunch of nodes in that general area, but it's obviously more involv...