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by kandj
Mon Sep 09, 2019 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 3742

Re: Treatment at MSK

We called MSK after our second opinion at MD Anderson ended in a big fat no. Gathering the paperwork was a bit of a hassle. I had to hound a few offices to send the info over. After that got sent over, they reviewed it and said she would see DH. ... Hi kandj, Could you clarify " ... after our ...
by kandj
Sat Sep 07, 2019 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 3742

Re: Treatment at MSK

Hi everyone, I would love to know more about anyone's experiences at MSK and specifically with Dr Kemeny! Those of you who have/had her as your doctor, how did you manage that? Was it difficult to become her patient? We called MSK after our second opinion at MD Anderson ended in a big fat no. Gathe...
by kandj
Sat Aug 24, 2019 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here... anyone with multiple liver mets surgery experience ?
Replies: 2
Views: 621

Re: New here... anyone with multiple liver mets surgery experience ?

My husband was diagnosed 4 years ago with primary in his sigmoid colon and many, many lesions in his liver. No lobe was untouched. We were given a fairly bleak prognosis by a surgeon at MD anderson. We sought a second opinion at Memorial Sloan Kettering in NYC and my husband was a candidate for the ...
by kandj
Thu Aug 22, 2019 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung metastasis - advice and hope needed
Replies: 9
Views: 1684

Re: Lung metastasis - advice and hope needed

Dr. Kemeny likes to use Dr. Park for surgeries at MSK and Dr. Solomon for IR stuff (ablation). My Dh had a lung met removed last November. They attempted to ablate it but it was too small to find and due to it being at the bottom of his lung, hard to locate and ablate. The did a lung resection the n...
by kandj
Tue Aug 13, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 4518

Re: How crucial is the HAI pump?

So question about the HAI pump... can you still receive your regular chemo treatments while you have the pump? Could you have colon or rectal surgery while the pump is installed? And I read on another thread that you can't get an HAI pump if you've undergone radiation? Is this true? If so, why? As ...
by kandj
Tue Aug 06, 2019 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 385
Views: 120015

Re: My CRC with liver mets journey

Dr Kemeny gave me a hard no when I inquired about Accutane, so let’s hope this works!! That is probably wise. Accutane is nasty drug when you are perfectly healthy with no ongoing treatments. Hopefully the cream your derm comes up with will help as well. Keep chugging water. It does wonders for the...
by kandj
Tue Aug 06, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 4518

Re: How crucial is the HAI pump?

If you think you have any interest in pursuing this at all, I would go right now....If you are inoperable and want to pursue, do it ASAP. There's another reason for doing it ASAP , and that is that the company that makes the main pump used at MSKCC has decided to halt production of that pump, and t...
by kandj
Mon Jul 29, 2019 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 4677

Re: Stage 4, over 4 years since diagnosis, still NED

Wonderful news my friend! I remember seeing you in the hospital after your last surgery. So glad you are doing well.
by kandj
Fri Jun 28, 2019 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Removing small liver met?
Replies: 4
Views: 1097

Re: Removing small liver met?

DH had SBRT on 4 lesions after a recurrence. That was in Dec 2017. The spots show up still on the CT and MRI (MRI is a much better view for him) but they don't have any uptake of contrast and show other post radiation changes that has led to them being declared dead. His radiation oncologist was ver...
by kandj
Sat Jun 15, 2019 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 3247

Re: Stage IV parents with young child(ren)

Our kids were 5, 7, and 10 when my husband was diagnosed stage 4 in 2015. It was such a gut punch. We found out during an ER visit and I just remember looking at the doc, then my husband who was as white as sheet, and then the doc again. I said “he is 36. We have 3 kids. This can’t be right”. I reme...
by kandj
Tue Jun 11, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone done oxiplatin twice?
Replies: 7
Views: 1616

Re: Anyone done oxiplatin twice?

DH did about 13 rounds total of it. They cut him from it when he started having trouble swallowing *neuropathy in his throat*. He had about 7 rounds before liver surgery and then another 6 a year later after a reoccurrence
by kandj
Thu May 23, 2019 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 11342

Re: Anyone pass out after abdominal cramping??? ER time

My husband and I are not comfortable with him restarting chemo until we get a clear picture of what is going on inside him, for lack of better words. For some reason, however, the portal still contains chemo appointments, and one is even prior to the scan that had been scheduled for June 6th (on th...
by kandj
Wed May 22, 2019 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 11342

Re: Anyone pass out after abdominal cramping??? ER time

I am glad your husbands blood labs look better. I bet he is feeling so much less tired. I lost a lot of blood with a hematoma when I was pregnant with my 2nd child. Would lose about a pint every 6 days in these bleeds. Went on for weeks. It was so exhausting (and terrifying). We were told that my hu...
by kandj
Wed May 01, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared with Questions
Replies: 8
Views: 1931

Re: Scared with Questions

First off, take a deep breath. And then another one. You are making giant leaps here. My first assumption would not be cancer, it would be hemorrhoids. And no, the ED would not schedule your for a Colonoscopy or scans. You are not presenting with an emergency. The ED gets you stable and either admit...
by kandj
Tue Apr 30, 2019 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mild ascites and jaundice - cancer spread to liver?
Replies: 20
Views: 4682

Re: Mild ascites and jaundice - cancer spread to liver?

FWIW, my husbands liver was riddled with tumors in just about every lobe (11+ tumors) and he had no ascites. His bilirubin was slightly up, I think like a 1.5 but all his other liver function numbers were elevated (he was stage 4 at diagnosis, so nothing to previously compare to). If you are still c...

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