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by daisydaisy
Sun Aug 24, 2014 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keloid scar (and it hurts)
Replies: 3
Views: 852

Re: Keloid scar (and it hurts)

Skypup, thanks a lot! We'll give it a try :D
by daisydaisy
Sat Aug 23, 2014 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keloid scar (and it hurts)
Replies: 3
Views: 852

Keloid scar (and it hurts)

Dear all, I tried to search for anyone with keloid scars here, and it seems these can be removed? My mom has had a few small ones, but her surgery scar is about 30 cm long and 1-1.5 cm wide, bright red and thick. Her surgery was in Dec 2013. Her suture was not healing well, too. Now sometimes she co...
by daisydaisy
Sat Aug 23, 2014 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial Diary: 5-azacitidine+romidepsin Stopped 9/16
Replies: 36
Views: 5869

Re: Clinical Trial Diary: 5-azacitidine+romidepsin

Dear raym, Good luck on the trial, and you do look very good on that beach picture :) wanted to add about low iron/Hb - in Russia they recommend pomegranate juice, liver (not everyone likes it, though) and a mix of dried prunes, apricots, raisins and walnuts with honey - you need to mince it all and...
by daisydaisy
Sat Jul 26, 2014 6:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My last post
Replies: 808
Views: 117807

Re: My last post

Hey, Marco! Just sent a postcard to you from Russia. Russian post is very slow, it usually takes forever, so please hang on there! positive thoughts and best wishes your way!
by daisydaisy
Tue Jun 24, 2014 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Dear Husband Danny Has Left Us
Replies: 47
Views: 6714

Re: My Dear Husband Danny Has Left Us

Dear Val,

I am so sorry and sad. You were such a great caregiver to your dear husband. We say here - time heals. I hope your pain caused by this unfair loss will go as soon as possible. Take care. Hugs and love to you and family.
by daisydaisy
Fri May 09, 2014 12:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, just diagnosed at age 38
Replies: 16
Views: 3838

Re: New here, just diagnosed at age 38

Dear Michelle, I am not the most experienced person here and also a caregiver. I can imagine how scared you are. I'd recommend to stay away from Google now, even though it's difficult. Usually when a mass is found in a colon, it is biopsied, though the doc is usually able to tell whether it is cance...
by daisydaisy
Mon May 05, 2014 2:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid Resection in morning... I am terrified!
Replies: 10
Views: 2090

Re: Sigmoid Resection in morning... I am terrified!

AnneCaroline, my mom had an open surgery and was also very scared. She has a big scar on her belly now. Before the surgery they gave her a shot in her arm, and she was not scared to go into the surgery room, but I walked her to the door of it and was so frightened. In the end the surgery went well, ...
by daisydaisy
Thu May 01, 2014 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 hour surgery...
Replies: 7
Views: 1104

Re: 8 hour surgery...

Raeanne, it's good to know your dad is taken care of. ICU is well equipped and has experts working there. They will do their best to make your dad feel better. Good luck to him and you. Try to get some rest too. Time after surgery is worst, I know :-( My mom spent 24 hours in ICU after surgery, I co...
by daisydaisy
Thu May 01, 2014 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ok, may be I am going nuts...
Replies: 14
Views: 1282

Re: Ok, may be I am going nuts...

Vilca, I think it's about a bird flying inside the house - but there is always a scientific explanation to everything, really. By the way, day before my mom's surgery a bat (!) flew into the hospital corridor on our floor! In December! How crazy is that??? We were on the top floor, maybe the bats li...
by daisydaisy
Thu May 01, 2014 5:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 hour surgery...
Replies: 7
Views: 1104

Re: 8 hour surgery...

Raeanne, I hope your dad will be ok! 8 hours that's so long. I am also a daughter (34) to mom (57), I totally understand your concerns. Surgery is an important step forward. Hope his pain goes away. You are indeed a great caregiver!
by daisydaisy
Mon Apr 21, 2014 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Advice - DH Is Very Sick After Latest Chemo - Update
Replies: 22
Views: 3620

Re: Need Advice - DH Is Very Sick After Latest Chemo

Dear Val*pal, I just wanted to say I am so sorry about what's happening. Your DH is in my thoughts and prayers. Regarding his being in denial...well, all people are different. I think he realizes how serious his condition is, but maybe that's some kind of his psychological defense - not asking quest...
by daisydaisy
Mon Apr 21, 2014 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Correlation - Grade vs CEA?
Replies: 15
Views: 2705

Re: Correlation - Grade vs CEA?

My mom had poorly differentiated adenocarcinoma and high CEA. Even though poorly diff. tends to produce less CEA - I read it in several sources. But what is interesting to me: well diff. is better prognosis, but if it produces high CEA, high CEA is worse prognosis. So many uncertainties still.
by daisydaisy
Wed Apr 09, 2014 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BCBS refused PET scan. Tell me about MRI
Replies: 29
Views: 2823

Re: BCBS refused PET scan. Tell me about MRI

Diane, I am glad it went without complications. was the noise from the machine really loud or that weird music was still louder? :-) it's a pity you have to wait for the results now, but wish you all the best and good luck!
by daisydaisy
Thu Apr 03, 2014 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BCBS refused PET scan. Tell me about MRI
Replies: 29
Views: 2823

Re: BCBS refused PET scan. Tell me about MRI

dianetavegia, yes, it takes much longer, I think the abdominal one was for around 30 minutes. But there is ventilation inside the tube, by the way, some fresh air flow. I can imagine your anxiety. We have another ultrasound (which is actually the standard here for follow-ups, so weird) in two weeks,...
by daisydaisy
Thu Apr 03, 2014 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BCBS refused PET scan. Tell me about MRI
Replies: 29
Views: 2823

Re: BCBS refused PET scan. Tell me about MRI

Dear dianetavegia, Are you scared of doing a new type of test? I think you should not be. MRI is a type of device that looks like a tube, it may be a concern, if you have problems with confined spaces. They may also administer a dye, and it is different type, should not cause allergy. So while you a...

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