Celine great news! Very happy for you

I am home from NIH Just wanted to let everyone know I was released on Saturday. I truly believe I received the best care from them. The chemo is tough. Il2 is worse. The Doctors and nurses do a great job getting you through it. I received 98 billion cells truly amazing. I was only able to handle 4 d...

Sending prayers to jdepp. Who should be a NIH starting the process for cell day, according to last post.

I just received a call from NIH. They have scheduled me to be admitted on Feb 27th. My cell day will be March 9th. I was expecting to have more notice than this, but ok I can roll with it. Excited and scared at the same time

jdepp wrote:Deb, I think you'll feel better the further you get from chemo. Great news on your scan.

As for me, I'm scheduled to start the TIL chemo on 2/23 & cell infusion on 3/2.

I will be saying prayers for you.

Had a ct scan today. It showed no changes in lung tumors. No new tumors. I have had 6 rounds of irritican and vectabix. Decided to stop chemo until I go to NIH. My magnesium and potassium is low and will be getting iv for that. Hopefully I will regain some energy before I go to NIH. Hope I'm making ...

Update on my cells from my fellow Good afternoon Deb and Dr. Rhee,   Just wanted to inform you that we got good strong reactivity to certain mutation specific antigens against your tumor on our preliminary assay (this is what we want). We are retesting is as our standard protocol and will confirm wi...

I take Zofran and compazine also but I find if I snack on crackers, dried cereal it helps with mild nausea. Also drinking root beer seems to settle my stomach the best. I'm told it's the sassafras

Great article!

Can't wait to read your article! I haven't heard from NIH since they harvest my tumors. The waiting is nerve racking. I have started chemo in Pittsburgh. Vectabix and irinotecan 2 rounds so far. I'm blessed the rash and some fatigue are my worse side effects so far. Hasn't stopped me from loving on ...

Oct 27th I had 2 tumors removed from my right lung at NIH. What a wonderful place! I had great care. I spent the night in ICU and was transferred to a floor at 8am. At first when I woke from surgery I had alot of pain, but the nurses and doctors worked hard to get it controlled. I was up walking and...

AngelaN
Glade things went well today. Sending prayers for quick healing for your husband and strength for you.

Update - John had his MRI of brain and aphoresis this week along with consult with thoracic surgeon. He is going to have surgery 10/20 for tumor harvest. It was an interesting visit - the surgeon went out of his way to tell my husband how risky this was, he already has a L upper lobectomy, so putti...

LPL wrote:Please forgive me (English is my 2nd language), I don't understand. Is "My fellow" another name for 'My doctor'?

Yes the doctor assigned to me is called fellow. I'm not sure why

Yesterday was my Apheresis at NIH. wasn't to bad of an experience. My fellow put a double lumen catheter into my groin. My veins in my arm are shot do to chemo. The hardest part was sitting still for hours. The nurses and doctors at NIH are the best. My fellow came back to take the catheter out and ...