Ah good to know its normal, well at least normal for us post folfox'ers to experience such symtoms, cheers mate

haha I to love tacos, although my name doesn't make much sense, i still eat tacos and have no restrictions in eating tacos

I forgot to mention this to my Onc at our last meeting and was wondering if any of you guys have experienced this? I've been getting this weird sensation, it sort of feels like a sudden rush of blood (or possibly a tingly sensation) starting from the top of my ankles/bottom of calfs running down to ...

This is what I intend on doing very shortly since I just had my last FOLFOX cycle...

*Eat more fruit and veggies (hello nutribullet), whilst lessening my meat intake
*Take a low dose aspirin everyday
*Take Vitamin D supplements
*Exercise, exercise, exercise

When the doctor told me the prognosis stats for stage 3 which is somewhere around 40% 5 year survival rate based on surgery alone vs 70% 5 year survival rate for surgery + chemo, I never even questioned not doing chemo. I would do anything possible to increase my chances of survival. Right now i'm i...

Hi LCHwife, I had chemo just bags of 5Fu via canular and 9 tablets of levamisole for three days after every second Tuesday. I had chemo for 48 Tuesdays. Wow 48 sessions of chemo?? I'm stage 3c and have my last cycle (12) of FOLOX next week. Why did you have so many sessions, was it the norm back th...

I'm so glad I don't have the whiney one, I didn't even know that was a thing haha. Mine makes no noise and looks pretty much like this picture http://www.cancerresearchuk.org/prod_consump/groups/cr_common/@cah/@gen/documents/image/cr_045180.jpg I still hate it and never leave the house when I have it

I guess this is more a question for those NED after going through 12 rounds of folfox, I want to hear your stories about life after treatment. Did you go back to your every day routine prior to diagnosis? did you take time off to travel? new career? anything you wish you would've done differently? I...

Thats interesting Lee that your doc said you weren't allowed to lose weight for 3 years. Why is that? I know you mentioned weight loss as a sign of cancer but surely with routine monitoring in place that would be a better indicator I to have gained weight throughout treatment and plan to exercise an...

Thanks guys for answering my question, makes me feel a bit more at ease knowing it is standard practice not to scan the brain unless there is a reason

My hair thinned out during my first 5-6 cycles but now appears to have ceased falling out. Hairs used to be everywhere! It really is a blow to your self esteem. And I can kind of relate to the skin pigmentation, i had a full body rash due to an allergic reaction and the rash pigmented :( so I look p...

Is it okay if I ask a question regarding brain metastases? if it doesnt really belong here I can post a new thread People who have CT scans after first being diagnosed and those who are NED receiving follow up scans, do they usually include scans of the brain, or just chest/abdomen? I raised the que...

hey mate I understand your disappointment with the delays. I had the same with my 8th cycle, it was delayed by two weeks as one week wasnt enough to get it up. It went from 0.8 (so delay one week) to 0.7 (ok delay another week) to 4 (yay finally can proceed). It was extremely frustrating and an emot...

Before starting FOLFOX my onc touched upon infertility as a side effect which I already understood and was fine with so our conversation didnt last very long on that subject but your onc should have definitely mentioned it and provided resources for you to think about freezing eggs and whatever else...

Mine isn't being checked. They said they would start monitoring it after chemo was finished but not during.

Just wanted to hear other peoples experiences

That sounds about right. I recall my onc telling me follow ups would be 3 monthly CEA tests, 6 monthly CT scans and yearly colonoscopies, couldn't remember how long before it starts to taper but 2 years sounds right.

Congrats on the last round! Go out and celebrate