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by Ceebo
Fri Jun 05, 2015 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 259809

Re: TIL Immunotherapy at NCI

That's wonderful news! So happy for you!!
by Ceebo
Wed Jun 03, 2015 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 259809

Re: TIL Immunotherapy at NCI

Celine, who did you communicate with at NIH when at first they told you that you didn't qualify? I know you said you were in, out, and then in again. Just wondered!
by Ceebo
Wed Jun 03, 2015 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What are MSI markers?
Replies: 4
Views: 1094

Re: What are MSI markers?

Nice job explaining that for us! --Cindie
by Ceebo
Wed Jun 03, 2015 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Molecule Designed to Treat Lung Cancer Shows Promising Results in Mice
Replies: 3
Views: 653

Re: Molecule Designed to Treat Lung Cancer Shows Promising Results in Mice

That's great news!! There are so many exciting clinical trials going on for CC. I'm encouraged!
by Ceebo
Wed Jun 03, 2015 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 327098

Re: The Grim Reaper took another swipe at me !!

Those are all so funny! You made my day! Hope you are enjoying yourself today! Hope you are totally over the Dex side effects!
by Ceebo
Wed Jun 03, 2015 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 259809

Re: TIL Immunotherapy at NCI

I called to check on my husband's status for the TIL trial at NIH and got the news that he did not qualify for any of the four trials they are doing. I had a difficult time understanding all the details of why he didn't qualify, but I guess there wasn't an easily accessible site to get tumor cells f...
by Ceebo
Mon Jun 01, 2015 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 259809

Re: TIL Immunotherapy at NCI

Praying for reactivity in a big way!!
by Ceebo
Sun May 31, 2015 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Onco Virus plus Checkpoint Inhibitor Combination Trial CRC
Replies: 3
Views: 766

Re: Onco Virus plus Checkpoint Inhibitor Combination Trial CRC

This is such exciting clinical information!! Thanks for sharing!!
by Ceebo
Fri May 29, 2015 7:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 327098

Re: The Grim Reaper took another swipe at me !!

So glad you are enjoying the sunrise and your coffee--sounds perfect!! My husband and I love to camp and hike in the mountains. We bought a new 5th wheel in 2013. Our favorite spot is Glacier Natl. Park. We haven't gotten to go back and camp there since he got his diagnosis in 2014. We are hoping ma...
by Ceebo
Thu May 28, 2015 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Care is the new plan
Replies: 9
Views: 1555

Re: Palliative Care is the new plan

Thanks for sharing your plan. So glad he's feeling good and you two can continue enjoying life!! I think it's wise to get hospice involved sooner, rather than later. As a nurse, I know that families many times wait so long before starting palliative care/hospice services that they really are not abl...
by Ceebo
Thu May 28, 2015 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 327098

Re: The Grim Reaper took another swipe at me !!

Frenchie you are a true jokester! You had me worried with your first couple of sentences and then I broke out laughing. I had to read all of your jokes to my husband.He said you were really on a roll with all of them, and he loved them, too. Laughter is so good for the soul! Sure hope you are feelin...
by Ceebo
Mon May 25, 2015 9:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 327098

Re: The Grim Reaper took another swipe at me !!

Hi Frenchie, I have been following your posts for a few months and I've been so inspired by your outlook on life and LIVING! I have been very concerned about your posts the last few days. You are having some pretty unusual symptoms! I have been a nurse for over 30 years and I have never heard of DEX...
by Ceebo
Mon May 25, 2015 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got the call yesterday...off to NIH tomorrow! Update - Not accepted
Replies: 17
Views: 2522

Re: Got the call yesterday...off to NIH tomorrow! Update - Not accepted

I'm so sorry to hear the news. I know how you feel when an option is no longer available. We experienced that last week with another clinical trial. I took the news worse than my husband did. He just simply accepts it as a door God has closed. I know that in my heart, but I'm the one who puts all th...
by Ceebo
Sun May 24, 2015 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 327098

Re: The Grim Reaper took another swipe at me !!

Yes, Dex definitely needs to be slowly tapered down. How much are you taking daily?

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