Thankfully the oncologist is very aggressive. She said that while it’s possible for the CEA to be a false positive she doesn’t like how it’s slowly going up and wants to investigate as much as possible. I didn’t even have to bring up a PET scan, she just said that she’s ordering one for next month. ...
I remember being in the hospital after the tumor was removed and confirmed as cancer. The Oncologist would ask questions and I would start to answer until she chastised me and said that HE needed to show he understands. It was a very sheepish moment for me. Of the two of us I'm the most involved in ...
The saga continues. CEA is now higher than it was on the initial test, up to 7 from 5.3 (he was around 12-20 when diagnosed, I can't remember the exact number). He has had a CT Scan and a colonoscopy since then, and other than a few polyps removed on the later both came back normal. I don't know wha...
I’ve always wondered this as well! I’ve been counting since his first CT scan after treatment, but knowing I get to count since his surgery means he’s technically now 3 years NED which makes me feel better about his current scan. Thanks for creating the post LivinginHope!
Congrats! John wasn't able to complete all 12 of OXY due to the neuropathy, which is a little better now but still there, and he had a reduced amount for the last couple infusions of 5-FU so we feel you. Still, that portion of your journey is behind you and you can keeping going forward! Congrats ag...
Hello everyone, I am finally eligible to receive the covid-19 vaccine. However, I was wondering if I should delay getting the vaccine until after my quarterly CT scan/CEA test at the end of March. I have read that some cancer patients who received the vaccine had increases in CEA and I also read th...
My goodness, your husband has had a lot to deal with for Stage 3: infected port, cdiff, and the lung issues! CEA can rise for any number of reasons, and a challenge to the immune system is likely one of them. I hope the scan puts your mind at rest. I hope so, my friends last night were trying to re...
Hello! My husband recently went in for his quarterly visit today and his CEA levels suddenly registered above normal levels (2.2 at last check now 5.3). He has a CT Scan scheduled next week to check for any anomalies, the only other abnormalities on his blood work was low albumin and calcium (though...
John just got back from his appointment, the paperwork says no evidence of metastatic disease! I'm so relieved! Though there was a line on the report that I'm confused about, I wasn't sure if anyone has come across this before? "A few tiny sub-5mm pulmonary nodules are likely unchanged, primari...
All of this is positive, but the anxiety is still there (that thought : what if something bad happened in the last 6 months) and hits and numbs me when i least expect. I understand you and wish I could give you a hug to let us both know we are not alone. My goodness yes, you are exactly right! Some...
Thanks everyone <3 John took the day off yesterday since he was unsure how long the scan would take. I’m glad he did, since I work from home that meant we could spend lunch together and having him close by helped. My brain is more likely to fully descend into the anxiety spiral when I’m alone. Now w...
I am not doing very well today. My husband's second year scan is tomorrow and it just hit me like a ton of bricks. My brain is having a hard time focusing and keeps throwing me flashbacks of being in the hospital. I normally have anxiety issues over tests and scans, but it feels so much worse this t...