Hi, i am KRAS wild, BRAF mutant. Just awaiting a node biopsy to see if I go back into treatment. There is a clinical trial with Cleveland Clinic suggested to me by my oncologist. It is Folfiri, vectibix and Zolbaref mix. Zolbaref is what they have had good success with in BRAF melanoma patients so t...

Hi. I kind of understand where your DH may be coming from. While I have had only one round of chemo for me the past year has been non stop, surgeries, scans, chemo, biopsies, more surgery, more biopsies, more scans and another surgery and biopsy coming up in the next weeks. I realized yesterday, I a...

My primary was DX as appendix. The tumor grew and attached to the outside of my colon.

I did Surgey and then FOLFOX. Primary clear since then.


Remember the treatment is a marathon not a sprint so results comes over time.

Breathe and enjoy each day with your mum!

Zingy, sorry to hear about your double trouble!

I had a biopsy done on the largest of the innumerable nodules they found last month. Very very small and benign they say. Watch and wait for me with regards the lungs. For me this was the best option as had too many to consider surgical removal.

Deb

Congrats .... Great news!

I had a very short period of three months from Feb to May this year but that said in hindsight the nodes were already there but the chemo had kept them at bay.

If at first you don't succeed, try try again!

Deb

The power of a smile is a beautiful thing. I too smile my way through my days, good and bad! Anywhere ... You pass someone and smile and even if they look like there having a glum day they will smile back and that my friends is the feel good factor! At the chemo clinic no matter how bad it was I tri...

Hey Frenchie

You are such a gem .... I too get so much pleasure from doing things for others. Makes life worthwhile.

Just to let you know Frenchie, always in my thoughts.

Love and hugs
Deb

Hi Cherie,

From the sounds the numbers are referring to the pictures and non hypermetabolic is a good thing.

Get the docs to explain but it sounds like you may well have turned this around!

Go girl

Deb

Same for me, every infusion and progressively for longer each time.

Hot tea and coffee and kept water and juice on the kitchen bench, had cravings for OJ!

In the end I started to get used to it and even had ice cream and tolerate the sensation, like the new norm.

Deb

After the fantastic news that the lung biopsy was benign today I went to plastic surgeon about my nose issue. Seems it does not look good .... He is not prepared to biopsy and will go straight for excision. He is concerned it is something to do with my earlier melanoma but then it could be a met fro...

Aargh KT ... The link doesn't work for me and I can't find the group in search engine.

Can u send request to me

Deb Goldby

KT, for those technology challenged, viz me. How do I join the group of fb?

Deb

I am really sorry to say this but I found your reply rude and offensive and totally inappropriate. Your opinion in fine, own it, but the way you conveyed it was harsh and I imagine really upsetting to many. As a one year in Stage IV'er who has a crap prognosis and has been to hell and back in a very...

Fantastic news .... So happy for you!!!

Deb