Thanks for the positive feedback on the news story everyone!

Some trivia for you: In the clip that showed me and Patrick (dh2sleen) sitting on a couch looking at his phone, we were texting w/ColonTalk's own Dr. Tom (DK37)

Celine

Pita wrote:...weren't accepting anyone on active therapy.

I wonder what that means, too. Please let us know how they respond.
GOOD LUCK!

Celine

Joan Lunden's interview w/Dr. Rosenberg and me for the Today Show broadcast will air on Monday, Feb. 6 on NBC during the 8AM (Eastern) hour. In anticipation of this, NCI/NIH launched a new website this week which provides preliminary information about Adoptive Cell Therapy (the TIL trial). You can f...

Let the "wash out" begin. Congratulations!

Celine

Way to go, Deb!
Congratulations, this is another hurdle that is now out of your way on the path to treatment!!!

So happy for youuuuu

Celine

Happy New Year! My tenth (Ten?!? I can hardly believe this) follow-up after TIL therapy was last week. My scans are clear; I'm still NED! Dr. Rosenberg and I were approached by NBC to do an interview together for the Today show, and the NBC Nightly News. We each agreed, and so Joan Lunden interviewe...

Happy to see this update, AngelaN! Hoping for more (and more and more) good news

Celine

Thank you all for your kind words in this thread! A snippet from my life recently: Me: Good morning, daughter! [to 17 y.o. dd as she gathered breakfast items] dd: << staring at me >> Me: Hello? dd: << still staring >> Me: You ok? dd: The New York Times, Mom? Me: Yes. Cool, huh? dd: The New York TIM...

They published online TONIGHT. (surprise!)

Here are some links:
NEJM
New York Times
Wall Street Journal
Blog Post by our own DK37 (hi Tom!!!)
Philadelphia Inquirer
Houston Chronicle this one shows where we sequester the Nerf guns. Don't tell the boys.

Celine

DAS43 wrote:I haven't heard from NIH since they harvest my tumors. The waiting is nerve racking.

It is! This trial big on the WAITING. You can email your fellow for an update--they are used to that, so don't feel like you are bothering them or anything.

Glad to read this update

Celine

Tomorrow, Dec. 8, the NEJM will publish Dr. Tran's article about my case. At my November follow-up, Dr. Rosenberg asked whether I would agree to speak to the press, since the NEJM article will not identify me by name. I agreed. Since then, three different print media outlets have contacted me for in...

I am back from follow-up #9. Seems they want to keep scanning me every three months or so. This set of scans showed that ALL IS WELL, still. Exciting news this time is that Dr. Rosenberg met with me in the clinic. He informed me that the NEJM will be publishing the story of my case in a few weeks. I...

dudette wrote:I'm in Germany. Apologies for creating confusion by re-posting the link. Thanks to this thread I became aware of the TIL trial.

I'm so glad that you did post it! Thank you!!!

Celine

HOLY BEANS!
Thank you for sharing this news. The link you posted is the same one we're talking about on this thread. Not sure if you're aware of that?
Fantastic! Please keep us posted on your screening process.

What country are you in?

Celine

I received an email saying that NCI does "off site registration" for overseas patients. However, they require their guinea pigs to remain in the US for 3-4 months after treatment. This is great news! Were you asking specifically about the TIL trial? I had different information when it cam...