My take on situation . "Thy will is sweet to me , O Lord." Guru Nanak. Accept that this disease is part of you and every living creature. If it is there , it is there. It's God will and we have to accept it cheerfully. https://books.google.co.in/books?id=TZd6DQAAQBAJ&pg=PT72&lpg=PT...

I seem to have become quite forgetful as compared to earlier especially with regards to names and upcoming appointments. Could it be related to Nivolumab ? Has anybody else on Opdivo /Keytruda experienced similar memory loss related symptoms. Occasional muscular pains are still there. But overall, I...

With Lynch syndrome, I feel it is better to err on cautious side.
Do things which you feel can reduce chances of getting the disease such as taking aspirin, going on vegan diet as much as you can, regular exercise etc.

Congratulations. These posts are so motivating.

My wife used to pray to God for a single normal day when we could eat, walk, squabble like a regular family.

Hello
Just wanted to update that my latest cea number is 2.0 .
It's within normal range.
Continuing with Nivolumab, aspirin etc.

The China Study by Dr. T Campbell clearly established linkage between consumption of animal protein and cancer. Yes , some vegans do get cancer but I feel heavy consumption of animal proteins including meats, milk , cheeses clearly increases odds of getting red mark. I myself was heavy consumer of m...

Do get yourself tested for h pylori infection.

Last January, I was given 3 to 6 months.
I am still here thanks to immunotherapy with Nivolumab Opdivo. You can see more details in my signature.
Please start with either of them immediately.
Also on a side note, it seems a low dose aspirin works quite well with Nivolumab.
Best of luck.

I have Lynch syndrome and I'm on the CAPP3 (Cancer Prevention Program) Aspirin has been proven to help protect against cancer. The problem being what is the lowest effective dose hence the trial. It's a blind dose of either (mg) 600,300 or 100 once a day for two years then 100 for the next 3 years....

Thanks ..

My oncologist has suggested 150mg daily dose of Aspirin to start with.
He said higher levels of dosage can have some side effects.
I am Lynch + ve.

I have a question. Does total colectomy qualify you for disability and handicap parking etc in Canada. I have had total colectomy. Generally, my BM are predictable and can be planned for. But every once in a while they act funny and I need to rush nearest washroom. You know the story. Does anyone ha...

Congratulations,
It is inspiring. .

Was a social drinker , drinking beer a couple of times every month.

Have stopped completely since diagnosis.
Earlier couldn't, now voluntarily don't.

. . . I have seen quite a lot of people's signatures said they are Stage IV and currently NED. I would love to hear from you 1. Anybody who has had a recurrence (or more) but didn't need chemo? Just surgical removal of the mets? I had chemo for liver mets after the colon resect / before the liver j...