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by hannahw
Sun Dec 21, 2008 1:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: QUESTION ABOUT DIET...
Replies: 8
Views: 1363

Re: QUESTION ABOUT DIET...

My Dad was on a low residual diet for a while. It was funny to me how many healthy foods are high residual and therefore can't be eaten. Sometimes you're damned if you do, damned if you don't.
by hannahw
Sun Dec 21, 2008 1:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: port problems/anyone else?
Replies: 5
Views: 1036

Re: port problems/anyone else?

My Dad had a problem with his port and it had to be removed. Sucked. Not removing it, that's easy, but not having it. For now, while the wound heals, he has a PICC line. Then they might put the port back in. Do you have any swelling/redness around the port area? Are they concerned about infection? M...
by hannahw
Sun Nov 16, 2008 2:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about spheres
Replies: 11
Views: 2884

Re: Questions about spheres

My comment isn't SIRT specific but just sort of a general observation about medicine. My experiences with my Dad have led me to believe medicine is as much art as it is science. You could ask 10 different doctors the same question and get 10 different answers. Maybe none of the answers would be wron...
by hannahw
Sun Nov 16, 2008 2:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Poo bag advise needed!!
Replies: 17
Views: 4045

Re: Poo bag advise needed!!

Not sure if this will help but didn't see it mentioned in any other post so thought I'd throw it out there...my Dad uses a product called Eakin. It's kinda like a second wafer. It's moldable so you can make it fit exactly around your stoma. You prep the skin around your stoma as you normally would, ...
by hannahw
Wed Oct 22, 2008 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo room etiquete question
Replies: 24
Views: 3466

Re: Chemo room etiquete question

Since I'm pretty new to this whole thing, I have to admit, I was a little surprised to walk into the chemo room and find it was like a big bullpen with people just sitting around. The lack of privacy struck me as a little odd. Especially when we ran into someone we knew that we didn't know had cance...
by hannahw
Wed Oct 22, 2008 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many Dr's do you have?
Replies: 20
Views: 3253

Re: How many Dr's do you have?

My Dad's situation is complicated because he has another significant medical issue that is unrelated to the cancer. He has several specialists, most of whom he sees twice a year for check-ups. As a family, we've found great comfort in and assistance from these specialists. Personally, I think my dad...
by hannahw
Tue Oct 21, 2008 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo room etiquete question
Replies: 24
Views: 3466

Re: Chemo room etiquete question

I'm not being treated for cancer, but I take my Dad for his treatments, so I hope it's ok for me to share my perspective. To me, it's a matter of respecting boundaries, whether you set your boundaries near to you, or at a more extended distance. Some people want to come into the chemo room and keep ...
by hannahw
Fri Oct 17, 2008 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: EGRF inhibitor related skin rash
Replies: 2
Views: 1814

Re: EGRF inhibitor related skin rash

Thanks for all the tips and info. It helps to read what other people are experiencing. Interestingly, your experience sounds pretty similar to my Dad's. So far we've mostly stayed away from antibiotics (topical and systemic) for a couple of reasons including a general opposition to antibiotics as a ...
by hannahw
Fri Oct 17, 2008 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lowest CEA Since Diagnosis
Replies: 7
Views: 1217

Re: Lowest CEA Since Diagnosis

I've noticed a lot of people reference CEA when discussing their treatments. My Dad's CEA has always been "normal" and thus not a useful indicator. We tend to discuss Standard Uptake Value with his onc. I understand SUV at the most basic level. Can anyone explain it a little more thoroughl...
by hannahw
Fri Oct 17, 2008 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Learning about Colon Cancer
Replies: 0
Views: 673

Learning about Colon Cancer

I'm not sure if this topic has been addressed specifically, maybe this thread needs to be merged with another, but I find that the info out there on cancer in general and colon cancer specifically is diffuse and, in some cases, hard to vet. I think I've probably visited most of the usual suspect sit...
by hannahw
Fri Oct 17, 2008 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix vs Eribitux
Replies: 7
Views: 1769

Re: Vectibix vs Eribitux

oops, I forgot to log in. That "guest" post above is mine.
by hannahw
Mon May 05, 2008 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer and MS
Replies: 10
Views: 1993

Colon Cancer and MS

Hey all, I'm new. Been lurking for a bit. Trying to get my bearings. I don't have colon cancer, but I have a family member who does. I'm trying to learn what I can so I can be supportive without being intrusive. In addition to colon cancer (and liver mets), my family member also has multiple scleros...
by hannahw
Mon May 05, 2008 11:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Healthy Smoothies
Replies: 9
Views: 2597

Mango
Blueberry
Banana
Hemp Milk

I just eyeball it, no measuring, basically taste preference. The hemp milk is a good dairy alternative. High in Omega 3. Taste and smell not that great, but the fruits tend to cover it.

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