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by JJ2212
Wed Feb 15, 2017 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Stivarga streak has ended
Replies: 13
Views: 2938

Re: My Stivarga streak has ended

So I had my first FOLFIRI treatment today. It wasn't as fun as I expected ;-) I usually just slept through FOLFOX infusions, but no such luck today. I has a small allergic reaction and we had to stop the infusion to get some benadryl going. It's a few hours later and I feel like I have a really bad ...
by JJ2212
Wed Feb 15, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Venting !!
Replies: 20
Views: 4449

Re: Venting !!

I'm sorry my friend. I hope you find a way to get rid of the pain.

I'm actually relieved that I'm single and don't need, nor have any desire, to confront this pain. I eat ice cream instead ;-)
by JJ2212
Mon Feb 13, 2017 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Stivarga streak has ended
Replies: 13
Views: 2938

Re: My Stivarga streak has ended

Thanks Maia and CRguy. I'll look at those links before my next appointments.

I'm mss. My onc recommended I try FOLFIRI since it is the usual 2nd line of treatment and often a required step before going down the clinical trial route. Is that trur, or just BS on his part?
by JJ2212
Mon Feb 13, 2017 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Stivarga streak has ended
Replies: 13
Views: 2938

My Stivarga streak has ended

So, after 26 cycles (months) on Stivarga, my good luck has ended. My last CT scan showed progression :cry: I've had a crappy few months that can now be explained by cancer progression. What the docs suspected to be a pulmonary embolism turned out to be an enlarged lymph node blocking my middle right...
by JJ2212
Mon Feb 13, 2017 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My friend Delinda2 has left us.
Replies: 14
Views: 4095

Re: My friend Delinda2 has left us.

I'm so sorry for your loss. My condolences to all of Delinda's loved ones.
by JJ2212
Thu Feb 09, 2017 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news for once!!!
Replies: 76
Views: 13302

Re: Good news for once!!!

That's fantastic Beans! I'm doing the happy dance for you!!! :D :D
by JJ2212
Wed Feb 08, 2017 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Problem with infusor pump
Replies: 3
Views: 1309

Re: Problem with infusor pump

You're not alone. I also had the same type of pump and had a problem during one of my infusions. I hadn't realised that there was a kink in the iv line that was stopped the infusion for a full 12 hours. Check your line as well as the little clip on the line to make sure that nothing is being squeeze...
by JJ2212
Sat Feb 04, 2017 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My body is high maintenance
Replies: 7
Views: 1996

Re: My body is high maintenance

Oh Kristi, I so agree with you! My body is high maintenance is a PERFECT way to describe it, on so many levels.

I sincerely thank you for giving me a new catch phrase when someone asks me how I'm doing.

Janie
by JJ2212
Thu Feb 02, 2017 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant: enough is enough!
Replies: 11
Views: 2312

Re: Rant: enough is enough!

Wow, that was the most well written, and polite rant in the history of rants. If I had had to go through what you have I'd be apoplectic! :wink: I guess it's the Canadian in me. Some stereotypes happen to be true :D Thanks for the support everyone. Today is a bit better as I'm not coughing as much....
by JJ2212
Wed Feb 01, 2017 10:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant: enough is enough!
Replies: 11
Views: 2312

Rant: enough is enough!

This isn't going to be a positive post, so feel free to move on if so inclined. Like my signature says, I've been living with stage iv cancer for almost 4 years now (yay me), more than 2 of those on Stivarga. I've been doing well, keeping the lung mets at bay, but the side effects can be a litteral ...
by JJ2212
Sat Jan 28, 2017 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nearing the end
Replies: 24
Views: 4969

Re: Nearing the end

I'm so sorry Natalie. You've been such a dedicated caregiver to your mom. I hope you continue to share beautiful moments with her.

Janie
by JJ2212
Wed Jan 25, 2017 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph node biopsy?
Replies: 6
Views: 1724

Re: Lymph node biopsy?

Any word on your lymph nodes? I just did a pet scan today. I have some nodes in my neck showing up. Waiting on radiologist impression. They are on both sides of my neck so hoping it's a cold. No news yet. I'm also waiting on interventional radiologist, since a fine needle aspiration biopsy wasn't p...
by JJ2212
Thu Jan 19, 2017 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bladder issues?
Replies: 22
Views: 3682

Re: Bladder issues?

Hi Beans, You are not alone with bladder issues. Mine stem from my APR surgery 3.5 years ago. I actually have a mix bag of issues: - like you, I can go for hours without feeling the need to pee. When I do pee, I have to strain like crazy to get a flow going and it can take up to a minute to get it a...
by JJ2212
Wed Jan 18, 2017 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My dads journey is over
Replies: 27
Views: 8166

Re: My dads journey is over

I'm so sorry for your loss. Take care.

Janie
by JJ2212
Sun Jan 15, 2017 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ron died
Replies: 39
Views: 10598

Re: Ron died

I'm so sorry for your loss. My condolences to you and your loved ones.

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