Search found 139 matches

Go to advanced search

by Zig2017
Sun Jan 07, 2018 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

What’s new bilateral renal striations? Is the meds affecting kidneys somehow? I’ll have to ask about that one too.
by Zig2017
Sun Jan 07, 2018 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

O stoma mia, you’re right. Get it small get it all. I’ll call today. He’s already weak and doesn’t move around much. It’s these nodules that are popping up everywhere. Looked at report again it seems the nodes are kind of stable but the nodules are growing in different places and there’s more of the...
by Zig2017
Sat Jan 06, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

MHF!! Hi!! Yes, that is a good thought. Maybe that's why he's tired. I'll ask on Tuesday how much is there, it wasn't there before and they are wondering if infection? But new nodules are there too. I'm happy to hear your husband felt better after the draining. I'm sure it's hard on the breathing as...
by Zig2017
Sat Jan 06, 2018 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Robino thanks as always! TimUK I will ask about these drugs after I hear what she says. You never know! As for contingency plan. That’s why I have you guys to bounce ideas off of or suggestions. Like Tim in UK. I plan on asking her her next plan of attack and I keep reading. Look at all rp1954 has w...
by Zig2017
Sat Jan 06, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

I just looked at Mr Ziggy’s CT results. Thoracic nodes same, left lung has some pleural effusion now, infection? More nodes in abdominal and pelvic. More of them and a little larger on ones that were there. I could seriously vomit right now. CEA came down 1600 points, but they didn’t run CA-19-9 whi...
by Zig2017
Wed Jan 03, 2018 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Thank you Robino, you also! You’re a great encourager especially with your results! xoxo
by Zig2017
Tue Jan 02, 2018 7:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Thank you Rachel hope you had a wonderful New a year with family! Mr Ziggy had his CT scan today, he’s been throwing up lately. We are waiting on results and we’re both hopeful it will show good results. Yes a drop of 1,600 on his CEA was very encouraging. Next appointment on Tuesday is with Dr Yaeg...
by Zig2017
Sun Dec 31, 2017 6:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

RP absolutely. I remember looking at his blood work back in July after surgery. Wasn’t happy with it and doc wasn’t concerned his CA19-9 had jumped up a few thousand points to 3100. But his CEA was 26 and she was happy and that’s all she focused on. Have to look at the complete work up and never did...
by Zig2017
Sun Dec 31, 2017 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

PS - the more I study about cancer, the dumber I get. I’ve always been fascinated/appalled at the ability of cancer to mutate itself to survive. The genetic coding and chemistry of the human body is so complex, it just reinforces my belief in God. It can’t be duplicated. We are indeed fearfully and ...
by Zig2017
Sun Dec 31, 2017 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Thank you once again for your response. You are correct. I’m asking a lot of questions because yes I’m thinking ahead for after treatment and protocols that will keep the cancer in check. He is having a CT scan January 2. Although he is having a robust response, yes you are also correct about HIF2a ...
by Zig2017
Fri Dec 29, 2017 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

I'm still in the learning stage of all this so please excuse my dumb questions... and thank you for taking the time to answer me, I've truly appreciated it. You are making me think and I love that. Mr Ziggy really isn't on chemo - it's actually targeted biologics that are hitting the EFGR, MAPK (MEK...
by Zig2017
Thu Dec 28, 2017 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Thanks, NHMike. That makes sense. I’d still be a little wary of the IV vitamin C until I explained his allergy first. Don’t want to make him sick from it!
by Zig2017
Wed Dec 27, 2017 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

You also mention Pepcid I believe... he had been taking that since FOLFOX but he had progressed anyway. Or should that have been taken with say the IV vitamin?
by Zig2017
Wed Dec 27, 2017 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Celecoxib... is that a rheumatoid arthritis drug? Also Mr Ziggy is believe it or not allergic to vitamin c. He breaks out in rashes from eating oranges or lemons especially. Would the IV vitamin c be ok for him to take? Just wondering because I’ve heard good things about vitamin c infusions. I’m gue...
by Zig2017
Wed Dec 27, 2017 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 66179

Re: any peeps with BRAF mutation on here?

Thank you Robino. I pray for continued success for you as well. I do believe God wiped away my husbands tears yesterday. What a Christmas gift. He needed encouragement badly. I’ve been through a lot of stuff myself, including stage 2 Breast cancer, mastectomy and chemo. I know what cancer fatigue an...

Go to advanced search