kc1948 wrote:Thanks for everyone's opinions. We have appointments with John Ashcraft and Joaquina Baranda,

Good luck!

I finally came off the lurk mode a few weeks ago- diagnosed right around Christmas (merry Christmas!) and aware of this site soon after. It really took about 6 months for me to come to terms with everything, even given favorable news all along the treatment process. Starting to take Prozac is what r...

I've been treated under the treatment of KU med folks since last Feb. - Dr Raed Al-Rajabi (oncologist) and Dr. John Ashcraft (colorectal surgeon) and all the great nurses. Both Drs. are personable and on top of what's going on with current/future trends, treatments, etc. All positive experiences and...

See my post below about KU med

If you know you are Lynch positive, I would suggest talking to a genetic counselor. They can provide you with actual statistics about the other Lynch cancers (not all Lynch mutations have the same cancer risks) as well as suggest screening schedules. For example, if I would have known I was Lynch po...

I agree with everyone else on this about doing the chemo. I was in a very similar situation re: staging, etc. I have Lynch syndrome, so the Folfox that I just went through may not even be that effective, but I wanted to make sure just in case. Rather be overtreated at this point than regret not havi...

susie0915 wrote:Rockhound,
Good Luck with your reversal. I'm sure all will go well.

thanks! am looking forward to it actually... and have been following the reversal discussions as well.

Thanks for posting the info about the different pads, etc. I'm scheduled for an illeo take-down in a few weeks and that has been on my mind lately. Been following the site since my Dec. diagnosis, figured it was time to post something...