Regan, I am so sorry for your loss.

I take 50,000 1x/week. I haven't had my level checked in a while. Probably time to request that.

Ugh, sorry you're experiencing this.

I had muscle cramps- especially in my calves- on folfox. I remember it being awful walking down stairs. My hands camped up too. The muscle cramping was the main reason I turned to marijuana. It helped me a lot.

When I was first diagnosed, I looked all over for stories of stage 4 long-term survivors. The ones I found I kept in my head- those who were NED and those who were doing fairly well and were stable on chemo. I think it's natural to look for concrete examples that give you hope. That first year, canc...

I have a term policy where I didn't have this provision added to it. Though I did have a brochure which explained this benefit. If I read it correctly...you can receive this benefit once a doctor states you are terminal with less then a year to live but if you live past the 12 months. They will beg...

Interesting. I love coffee. I drink it throughout the day- definitely four cups (or more).

I did a Viatical settlement with my 20-year term policy. I initially got the policy in my early 30s. I took a chance that I would outlive the term and accepted 60% of the payout. It was sold to a fund- now they are the beneficiary. I don't think I would've done it if I didn't have other life insuran...

One of my relatives recently said to me "Why are you still thinking about cancer??" I'm 2 years NED. Physically I have a lot of joint pain and some neuropathy, but I'm dealing with that. And of course I worry about it coming back. I'm having a PET scan soon to see about an area of low atte...

This past Thursday I woke up at 2AM with severe abdominal pain. My husband wanted to call for an ambulance, but we wound up driving to the local hospital instead. I really thought it would turn out to be a bad case of gas, or something else that wasn't too serious. Well, it turned out to be a closed...

DBF aka Donna
Joined 6/7/13
Dxed 5/13
Stage 4aCC- NED

I'm so sorry to hear about the difficult side effects. A word about foot pain, cramping, etc.--I had that side effect from the oxaliplatin. It was AWFUL to step down onto my feet, especially when going down stairs for some reason. I can't say enough good things about marijuana for that side effect, ...

I worked at a job I loved and worked about two-thirds of the way through chemo, until I started having seizures that affected my cognitive abilities. My job was as a director at a company that produces a very prominent test. I worked on the critical reading section of that test. I had cognitive test...

NZJay wrote:What is the plan in terms of chemo? Will you take it indefinitely, or is there a set point where they will say it's fine to stop?

The plan is to continue on this program for another three years as long as I'm still NED. After that, no more chemo or Celebrex.

Thanks, everyone.

Two years ago today I had a liver resection to remove what was originally thought to be a benign hemangioma but turned out to be a colon cancer met. I've been NED since then. I'm currently on 2000 mg Xeloda and 400 mg Celebrex per day. I was diagnosed in 5/13. I was a mucinous mutant. :shock: My pri...

I think about that mom sometimes! I do wonder what happened with her daughter. I wish she would have posted again. I remember that someone here sent her a PM but didn't get a response.