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by James65
Fri Aug 18, 2017 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Burning while urinating, 2 more days of radiation left!
Replies: 8
Views: 1763

Re: Burning while urinating, 2 more days of radiation left!

A sitz bath was my best friend for quite a while. It eased the pain while I was on it, but it would come back when I wasn't.

The other thing to keep an eye on is radiation cystitis. I had a difficult issue with that near the end of chemo/radiation.
by James65
Wed Aug 16, 2017 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm officially separated
Replies: 8
Views: 2321

Re: I'm officially separated

You did make the right choice. I was diagnosed six months after leaving my wife and the entire year of my treatment she made my life hell. It was so bad my oncologist assigned a social worker to help me deal with just her and then I had to borrow a few thousand dollars from my brother and parents to...
by James65
Sat Aug 12, 2017 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Survival Plan
Replies: 6
Views: 1911

Re: Survival Plan

So, I've had the primary rectal cancer (permanent bag, etc.) and then a few years later a met in my liver and a few years after that a met in my left lung and while I receive a lot of observation and scans, my docs don't think it's wise to do that may scans in a single year or colonoscopies every ye...
by James65
Tue Aug 08, 2017 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess a new side effect has shown up
Replies: 16
Views: 3576

Re: Guess a new side effect has shown up

I had muscle twitching that drove me nuts on my first folfox round and managed to figure out in between rounds that one or a combination of the meds they gave me for side effects was causing it. Sounds like what you are experiencing is probably different, but thought I'd throw this in the mix.
by James65
Wed Aug 02, 2017 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation or blockage
Replies: 5
Views: 1679

Re: Constipation or blockage

If you haven't used Senakot before I would just take two to start and see how you do. You will get a little cramping near the stoma with it, which is the Senakot working to get things going. I would also follow up on the pain related to when you irrigate just to be on the safe side. Also, try irriga...
by James65
Wed Aug 02, 2017 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation or blockage
Replies: 5
Views: 1679

Re: Constipation or blockage

I have a lot of issues with keeping regular and I also irrigate. When the irrigation isn't getting the amount of return I believe it should and I feel constipated I take a few Senakot (I found that Dulcolax doesn't help at all and I get cramps) the night before then irrigate the next morning. The Se...
by James65
Wed Aug 02, 2017 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel Management through daily enema
Replies: 44
Views: 40147

Re: Bowel Management through daily enema

Hi All, I have a permanent colostomy and irrigate my stoma nearly every day with cold water. After chemo, my colon pretty much shut down and I relied on Senakot to keep things moving, but that had its downsides. Irrigating is a good way to maintain regularity and predictability in bowel movements an...
by James65
Tue Aug 01, 2017 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've made it!
Replies: 11
Views: 2370

Re: I've made it!

Congratulations. I remember my last day and it felt so good to know there would be no more poison (good poison, but poison nonetheless).

Wishing the very best for you.

James
by James65
Tue Aug 01, 2017 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal Surgery (Rectal) post op?
Replies: 12
Views: 4448

Re: Colorectal Surgery (Rectal) post op?

Hi, I had surgery in 2006 after six weeks of chemo/rad and received a permanent colostomy. I had a rough recovery because of the radiation doing a number on the tissue surrounding where the tumor was. Very frustrating, but I did come through. The best things for me were walking (couldn't believe how...
by James65
Fri Jul 28, 2017 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 502455

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Are your oncologist (radiation and medical) and GI surgeon attached or in some way connected to the ER that you would go to? If not and things don't improve, you could think about going to the ER at the hospital where you are receiving treatment (the surgeon's hospital would maybe be best). That way...
by James65
Thu Jul 27, 2017 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 502455

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, It seems you are getting a lot of information so I won't add too much here other than I was diagnosed with a rectal tumor in 2006 and went through pretty much the exact same treatment as you. I also have a colostomy and I live in NH too (Exeter) so feel free to let me know if you'd like to ...
by James65
Tue Jul 25, 2017 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 125
Views: 47082

Re: 2017 : In Memoriam

Probably there are only a few who remember Brady. He was the guy that welcomed me in back in 2006. I've never really gotten past his loss, or that of justsing, another beautiful person who helped me through the first of what would become many stages of cancer. And now Brown Bagger. We don't get past...
by James65
Tue Jul 25, 2017 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 125
Views: 47082

Re: BrownBagger ....... I don't know what to say

I believe Brown Bagger and I came to this board nearly at the same time and with the same location and type of cancer. Here I am and now he is gone. I'll never understand the cruelty of this disease that would take someone so good and leave me here. If his life touched as many in his real world as h...
by James65
Fri Jan 13, 2017 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Nausea
Replies: 16
Views: 2905

Re: Chemo Nausea

I was very nauseous from the first round and the anti-nausea drugs made me feel way worse. A little bit of pot (one or two puffs) and Adavan eliminated it right away. The nausea and other side effects will worsen and the best thing is to try different things to find what works. It is also counter in...
by James65
Tue Nov 22, 2016 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox and nausea
Replies: 11
Views: 1822

Re: Folfox and nausea

Hi, I found that all the pills they gave me for the side effects made me feel worse. What worked best was a little bit of pot (very small) and Adavan. Then I tried to find foods and drinks that helped me feel okay. Tonic water and grapefruit juice cut through the horrible taste in my mouth as did a ...

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