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by radnyc
Wed Oct 30, 2013 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FUDR reduced
Replies: 9
Views: 904

Re: FUDR reduced

As previous posters noted, don't worry too much, FUDR was reduced for me as well. It's not uncommon on this protocol for liver enzymes to shoot up. It's probably one of the reasons why MSK is the main center in the country where HAI therapy is performed and is proven effective. It needs to have cons...
by radnyc
Wed Oct 23, 2013 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Males have HAI/Liver Resection at MSK?
Replies: 3
Views: 773

Re: Any Males have HAI/Liver Resection at MSK?

Hey there, had same surgery there 3 years ago. Surgery went as planned, took about 5 hours. I was there five days, no complications. I was mobile as soon as I could, walking around the floor. I took the minimum stuff for my stay there, my goal was to leave there as soon as possible, and not treat it...
by radnyc
Sat Oct 19, 2013 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does survival rate increase a little at 2 years ?
Replies: 26
Views: 3874

Re: Does survival rate increase a little at 2 years ?

Hey Bussman, that's what my onc said, and that's the clock I'm riding. Here's pulling for your 3 year mark!
Al
by radnyc
Fri Oct 18, 2013 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does survival rate increase a little at 2 years ?
Replies: 26
Views: 3874

Re: Does survival rate increase a little at 2 years ?

My understanding is that there are no real hard studies showing on when exactly the countdown clock starts. Some think is from the time of DX, others from the time of the first NED scan or from the end of the last treatment. It seems logical that if one has continuing CLEAR scans over one, two or th...
by radnyc
Wed Oct 16, 2013 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery-Update Liver Resection/Hai
Replies: 9
Views: 692

Re: Surgery-Update Liver Resection/Hai

Hey Julie, I was a good patient and followed all the doctor's and nurses's directives. Everyone is different of course, but I did not require and epidural. I was there for five days, of course, I hate hospitals and wanted to be back home the next day! As soon as I could I was doing my walks around t...
by radnyc
Fri Oct 11, 2013 12:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thanks to Obamacare Alive Today
Replies: 77
Views: 7126

Re: Thanks to Obamacare Alive Today

My rates will actually be lower now than they were, and i go to a top notch cancer center, MSKCC. In my opinion the Affordable Care Act will work in the long run, the issues with the website will soon be addressed and fixed. People have 6 months to sign up for coverage, plenty of time. People are ri...
by radnyc
Sun Sep 22, 2013 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 53rd St. gang a.k.a. Nancy's kids
Replies: 57
Views: 5685

Re: 53rd St. gang a.k.a. Nancy's kids

Ok, well, you gotta do what Dr. K says, it's her show up there. Good luck!
by radnyc
Sun Sep 22, 2013 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 53rd St. gang a.k.a. Nancy's kids
Replies: 57
Views: 5685

Re: 53rd St. gang a.k.a. Nancy's kids

I'll be there late october for pump maintenance. As to the running, I was never told not to. Obviously you have to give time for things to heal up right before you do any exercise. I have run more miles in the last three years than I had in the past 10, I credit exercise greatly with my being health...
by radnyc
Fri Sep 20, 2013 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Steroid with HAI pump
Replies: 5
Views: 1053

Re: Steroid with HAI pump

Hey Jane, personally I had no issues with the pump chemo FUDR, none. The Folfiri infusion on the the other hand SUCKED! Good luck with your treatment

Al
by radnyc
Wed Sep 18, 2013 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 Year NED - Stage 4
Replies: 7
Views: 1357

Re: 3 Year NED - Stage 4

Amy, you were one of my stories of hope, I always wanted follow in your footsteps in the treatment. Although, I'm not one of Dr. K's patients, the Onc I see at MSKCC follows her protocol to the letter. He even consulted with her on a couple of occasions to make sure my liver markers were ok. My next...
by radnyc
Wed Sep 18, 2013 1:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 Year NED - Stage 4
Replies: 7
Views: 1357

3 Year NED - Stage 4

I've been lurking here since April '10, at first looking for success stories. Along the way there were a handful of long term remissions or cures, but lots more bad news than good, makes it hard to come back. I know that the good news always gave me hope, so I'm hoping my story gives someone hope as...
by radnyc
Sat Aug 03, 2013 9:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to Sloan Tuesday to meet surgeon
Replies: 4
Views: 778

Re: Back to Sloan Tuesday to meet surgeon

You're in good hands, Dr. Jarnagin did my liver resection and HAI pump implant 3 years ago and I've been NED since. MSK is a world-class institution and you'll be taken care of accordingly. I recommend you make an appointment with their Integrative care department and get their opinion on diet, supp...
by radnyc
Tue Jul 09, 2013 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LIver Transplant for MCRC Stage 4
Replies: 7
Views: 2613

Re: LIver Transplant for MCRC Stage 4

Liver transplantation is possible for CRC patients. It has been done in Norway with fairly good success: http://www.ncbi.nlm.nih.gov/pubmed/23360920 As one would expect patients with less severe liver tumor burden do better, but it is doable. Problem in the states is a shortage of organ donors. It s...

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