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by rp1954
Wed Jan 17, 2024 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 《 The Times They Are a-Changin' 》
Replies: 9
Views: 2250

Re: 《 The Times They Are a-Changin' 》

O Stoma Mia : " The big question now is: What is the future for the four pillars of Colon Club? Does anyone have any thoughts now on what this takeover might mean specifically for the future of our Colon Talk message board in the face of the FightCRC juggernaut??? " I think FightCRC shoul...
by rp1954
Fri Jan 12, 2024 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High-dose Ivermectin shrinks cancer metastases
Replies: 3
Views: 2039

Re: High-dose Ivermectin shrinks cancer metastases

I sat in on a conversation with my wife's integrative MD today with various in-laws etc. The discussion was with one's aged father about cancer and alternatives in the near term before a blood test and scan(s) this next month and their hope to slow/stop marker progression before any drastic decision...
by rp1954
Sun Jan 07, 2024 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A naturally-occurring molecule shows promise as effective first-line treatment for prostate cancer (Carnosine)
Replies: 1
Views: 972

Re: A naturally-occurring molecule shows promise as effective first-line treatment for prostate cancer (Carnosine)

Thanks. That should bring up the supplement, zinc carnosine, as an interesting candidate for further investigation with prostate cancer, as one of the carnosine sources, since zinc is also a prostate cancer treatment candidate. My prior familiarity with zinc carnosine comes from gut, ulcer and mucos...
by rp1954
Fri Jan 05, 2024 7:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High dose vit C 24hrs after infusion??
Replies: 9
Views: 3390

Re: High dose vit C 24hrs after infusion??

Ive started wondering lately as to why there is such a huge push for IVC? Why some people are such advocates? IVC now has better documentation for some aspects of inflammation and cancer since 2000, so perhaps less resistance in some places. People who have been in bad, painful and/or fatal situati...
by rp1954
Fri Jan 05, 2024 2:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High dose vit C 24hrs after infusion??
Replies: 9
Views: 3390

Re: High dose vit C 24hrs after infusion??

You should leave 24 hours between IVC and the infusion. Do you know why that is? No ... but I'm getting my IVC from a naturopathic doctor who is board-certified in oncology and that was her advice when I asked the same question. I've never seen published stats or trials that support any particular ...
by rp1954
Fri Jan 05, 2024 1:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Full Pathological Response
Replies: 5
Views: 2179

Re: Full Pathological Response

. . . It is once again Nobel-prize winning Linus Pauling, PhD with Ewan Cameron, MD, a Scottish cancer surgeon, who, over 40 years ago, demonstrated the effectiveness of ten grams (10,000 mg) of vitamin C a day in reversing terminal cancer in thirteen out of 100 patients. These patients were given ...
by rp1954
Fri Jan 05, 2024 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Full Pathological Response
Replies: 5
Views: 2179

Re: Full Pathological Response

My survival was less than 1%. But I am still here. Cancer free 4 years later. Be careful which sets of statistics, you use for what purpose. SEER statistics dated to particular years are some versions. Various odds change a great deal depending on what techniques and technologies are used, especial...
by rp1954
Thu Dec 28, 2023 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24573

Re: STAGE IV RC GUYS AND GALS

Right now, I am taking 28,000 IU of vitamin d3 weekly. I take a combination supplement with vitamin d3/k2(MK4). I should probably increase my dosage. That's only 4000 iu/day (the current, *way* too conservative UL that should have been 10,000 or at least 5,000 iu/day). What's your 25-hydroxy vitami...
by rp1954
Wed Dec 27, 2023 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24573

Re: STAGE IV RC GUYS AND GALS

In retrospect, I should have gotten FOLFIRI sooner. After my VATS, I was only given the option of XELODA. I should have advocated for FOLFIRI then, so that is my mistake. Live and learn, I guess. In the US, we would take the xeloda scrip and morph it into Adapt+++. The real question now, is whether...
by rp1954
Wed Dec 27, 2023 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV RC GUYS AND GALS
Replies: 70
Views: 24573

Re: STAGE IV RC GUYS AND GALS

No, I actually started FOLFIRI based on positive Signatera test from July of this year. CT scan in July was clear of any new lung nodules. New lung nodule didn't show up on CT until this month . My onc wanted to be proactive because as you know, positive Signatera means an eventual recurrence. So I...
by rp1954
Sat Dec 23, 2023 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cross eyed and confused with vitamin D
Replies: 5
Views: 3011

Re: Cross eyed and confused with vitamin D

25-hydroxyvitamin D (25(OH)D) is the major circulating storage form of vitamin D. 25(OH)D is the first and most common value checked, the one that regular drs will say under 20 ng/mL (50 nmol/L) is deficient and various endocrinology societies have quoted under 30-32 ng/L (75-80 nmol/L) as insuffici...
by rp1954
Thu Dec 21, 2023 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chance of cancer coming back over time
Replies: 18
Views: 6784

Re: Chance of cancer coming back over time

I was stage 2a after surgery in 2014. The oncologist said that I have a 10% to 15% chance my cancer will come back. I hope this isn't a stupid question. Does that 10% to 15% chance go down each year that I remain cancer free after surgery? I didn't do chemo because the oncologist said the side effe...
by rp1954
Thu Dec 21, 2023 2:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Growth whilst off treatment
Replies: 8
Views: 4498

Re: Growth whilst off treatment

In hindsight can appreciate it seemed like a pretty odd question. Maybe I should have specified quick growth, within a month or two. Whilst waiting for treatment to start. That would depend on the specific biology of the cancer including any mutations etc though in terms of growth rate. I was just ...
by rp1954
Fri Dec 15, 2023 11:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IVC and weekly FOLFIRI
Replies: 12
Views: 3186

Re: IVC and weekly FOLFIRI

For those who wish to maintain a high Vitamin C level, there is a new alternative. There is a supplement that repairs the liver so that it can convert sugar into Vitamin C. Until we see qualified, independent technical reports of vitamin C blood level profiles over time (pharmacokinetics) for oral ...
by rp1954
Fri Dec 15, 2023 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU and folic acid
Replies: 9
Views: 2964

Re: 5FU and folic acid

In the US, it is any grain or grain product IIRC. Have to be careful, almost paranoid in countries that fortify with folic acid. For my wife it was really multi B complex pills with folic acid rather than bread, gravy and cereal bowls. For about half the population genetics, it's any folic acid with...

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