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by sjring
Fri Apr 03, 2015 6:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Haircut story
Replies: 10
Views: 1227

Re: Haircut story

The world needs more senseless acts of random kindness like this.
by sjring
Wed Apr 01, 2015 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical trials/which major cancer center to choose ?
Replies: 5
Views: 767

Re: Clinical trials/which major cancer center to choose ?

There's a pretty good explaination of what clinical trials are and where to find them in this thread: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50424 I agree with the comments that it's better to find a trial that is best suited for your situation then go to where it's being he...
by sjring
Tue Mar 31, 2015 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you find out about CRC?
Replies: 37
Views: 3147

Re: How did you find out about CRC?

I was having some very minor abdominal pain for about 7 or 8 weeks. Nothing major, the kind we macho men ignore, but would sometimes get pain spikes shortly after eating. However after it persisted, I thought there might have been an issue with the gastric bypass I had had 6 or 7 years before, so I ...
by sjring
Mon Mar 30, 2015 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 60 minutes on Sunday - Polio virus against cancer
Replies: 9
Views: 1238

Re: 60 minutes on Sunday - Polio virus against cancer

I watched the 60 minutes piece last night. I thought it was very similar to the HBO Vice episode with the main differences being the specific modified viruses being used and the types of cancer being studied. That said, I still think it's a very encouraging line of research. I was also heartened to ...
by sjring
Mon Mar 30, 2015 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Religion on the forum? Your thoughts?
Replies: 127
Views: 9587

Re: Religion on the forum? Your thoughts?

As long as someone isn't trying to push a particular theological belief, or coming across as "holier than thou" I don't personally have a problem.

Just be sensitive that your religious beliefs may not be the same as those who you are responding to.
by sjring
Mon Mar 23, 2015 3:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin
Replies: 5
Views: 896

Re: Avastin

I know there is some controversy on the benefits of Avastin. I should mention that I do take Avastin as part of my chemo protocol and it is covered by my insurance. I don't want to quote any specific numbers because I have a lot of numbers jumbled in my head at the moment. But if I recall correctly,...
by sjring
Mon Mar 23, 2015 5:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Avastan with 5fu
Replies: 6
Views: 1008

Re: Has anyone had Avastan with 5fu

Avastin + 5FU is what I'm doing for Maintenance chemo. When I started on maintenance, I still had 2 small liver mets visible on MRI and they continued to shrink on the protocol. I was doing every other week, and 3 weeks ago we agreed to move to every three weeks so we'll see how the lower frequency ...
by sjring
Thu Mar 12, 2015 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update. Intestinal Leak, Lung Tumor, Dr with Lawsuit on reco
Replies: 8
Views: 1183

Re: Intestinal Leak, Lung Tumor, Dr with Lawsuit on record

3 lawsuits would give me pause, but I would also want some more information. Such as, when were the lawsuits? If they are recent, stop and seek someone else, if they are older, was it something that happened say, just after residency when he was a relatively new surgeon? What was the basis of the ne...
by sjring
Wed Mar 11, 2015 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregiver - What do I do?
Replies: 10
Views: 1223

Re: Caregiver - What do I do?

I think a different way to look at this is that we all react to stress differently, but whatever that reaction is, when we are stressed we tend to revert to the old habits. Speaking as a reformed 3-liter a day diet coke addict (and it took surgery and a couple of bad post-op experiences to reform me...
by sjring
Thu Mar 05, 2015 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial Information
Replies: 11
Views: 8698

Re: Clinical Trial Information

You're welcome! Did anyone watch the latest installment of HBO’s “ Vice ” series, “ Special Report: Killing Cancer ” http://killingcancer.vice.com Very interesting program. They profiled several clinical trials for different cancers where genetically modified viruses such as measles and HIV were us...
by sjring
Thu Mar 05, 2015 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial Information
Replies: 11
Views: 8698

Re: Clinical Trial Information

vilca11 wrote:Good job, Karin and sjring, I wonder how to keep this subject on the top, like other important educational info for all (e.g., abbreviations, etc). Admin people can do it - anyone?
Thanks, Vilca


I think that would be up to one of the moderators.
by sjring
Mon Mar 02, 2015 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial Information
Replies: 11
Views: 8698

Re: Clinical Trial Information

lilacbreastedroller, That's actually a very good primer on the clinical trial process. There's some nomenclature and one additional point I want to add. The doctor running a trial is ofter referred to as the Investigator often the Principal Investigator however at larger sites the Principal Investig...
by sjring
Mon Mar 02, 2015 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skip a dose of chemo
Replies: 12
Views: 1451

Re: Skip a dose of chemo

I haven't skipped a dose, but I have pushed a dose back by a week to accommodate some event or another. Always get the approval of the onc first as everyone's situation is different.
by sjring
Sun Mar 01, 2015 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Travel insurance
Replies: 15
Views: 2235

Re: Travel insurance

I recommend purchasing the trip insurance through a 3rd party travel insurance instead of through the travel provider (airline, tour operator, etc.) as frequently those policies, aside from pre-existing conditions being excluded, do not cover the bankruptcy of that travel provider. I use an online b...
by sjring
Wed Feb 18, 2015 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Typing through tears....our belle Belle
Replies: 63
Views: 11773

Re: Typing through tears....our belle Belle

Very sorry to hear this and will say a prayer for Belle and her family tonight. It was her post in October that inspired me to go to Call-on-Congress next month.

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