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by sjring
Sun Aug 16, 2015 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxiplatin and 5fu pump..... Last chance.
Replies: 8
Views: 1512

Re: Oxiplatin and 5fu pump..... Last chance.

Doing my second attempt on the Oxili now. The side effects aren't fun but if it works..... Everyone reacts differently, however, the side effects tend to get worse the more doses you have. I've had two so far in this go around, and I'm having mild hand & foot numbness. The cold insensitivity has...
by sjring
Sun Aug 09, 2015 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Transportation
Replies: 11
Views: 1032

Re: Transportation

90% of the time my wife comes with me to chemo, but I do the driving up until the last round when then added Emend as a premed that just knocked me out.
by sjring
Wed Aug 05, 2015 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can colonoscopies be dangerous?
Replies: 12
Views: 7355

Re: Can colonoscopies be dangerous?

I think others here have amply answered your concerns. I'll just mention that before any sort of procedure, you'll be given an informed consent form to sign. The informed consent mentions everthing that can possibly go wrong and it can be an intimidating and scary list (heck just listen to the side ...
by sjring
Mon Jul 27, 2015 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Currently Incurable Scientist: Turning a Cold CRC Tumor Hot
Replies: 13
Views: 5291

Re: The Currently Incurable Scientist: Turning a Cold CRC Tumor Hot

I too enjoyed the blog posts. Although I work in the clinical trial field, I'm a finance guy so more than a bit of the technical medical jargon and almost all of the biostatistical jargon are over my head. I really appreciated the plain English explanations, and the off0-handed Star Trek reference i...
by sjring
Sun Jul 26, 2015 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: chemo
Replies: 4
Views: 708

Re: chemo

The short answer is no one can really tell, and I suspect the genetic makeup of your specific tumor(s) has a lot to do with it. In my case, I was diagnosed at stage 4 with 10+ liver mets and a peritoneal implant. I did a full course of FOLFOX and started Avastin/5-FU maintenance chemo and had a very...
by sjring
Thu Jul 23, 2015 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Top oncologists and cancer centers question exorbitant drug prices
Replies: 2
Views: 623

Re: Top oncologists and cancer centers question exorbitant drug prices

I'm not going to make the argument that drugs, in general not just limited to oncology drugs, aren't overpriced. Especially in the U.S. That said, lets consider: [*]Of 5,000 compounds conceived only 5 make it to Phase I testing [*]Of those 5, only 1 will become an approved drug. [*]Completion of pre...
by sjring
Mon Jun 29, 2015 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dogs detecting cancer
Replies: 13
Views: 1180

Re: Dogs detecting cancer

I've suspected animals could tell. I have one cat that has taken to jumping in my lap and rubbing her head against the right side of my belly since shortly before I was diagnosed.

It would be interesting to see if it could be done.
by sjring
Wed Jun 24, 2015 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed - So Many Questions!
Replies: 7
Views: 1234

Re: Just diagnosed - So Many Questions!

Stardust, Sorry that you have to join us here, but there are a lot of great people here who understand what you are going through. Everyone reacts differently to the chemo drugs, so while we can share our experiences, your mileage may vary, as they say. I get the infused 5-FU as I don't have enough ...
by sjring
Mon Jun 08, 2015 12:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage IV diagnosis/my brother
Replies: 28
Views: 4431

Re: New stage IV diagnosis/my brother

I also don't have experience with the stent, but I did continue working around FOLFOX treatment and still do on maintenance chemo. Whether your brother will be able to work around treatment is really dependent on how he reacts to the treatment and what he does. Fortunately, I have a rather sedintary...
by sjring
Mon Jun 01, 2015 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to Choose Between Quality Versus Quantity of Life
Replies: 26
Views: 3903

Re: How to Choose Between Quality Versus Quantity of Life

Julie, that was beautifully written. Since you said you were hoping to start a discussion on the subject, I'm happy to start off with a few thoughts. I've had two people who were close to me pass away since I began this journey. My grandmother, who was 5-weeks away from her 101st birthday, asked to ...
by sjring
Mon Jun 01, 2015 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling all June Birthdays
Replies: 12
Views: 2096

Re: Calling all June Birthdays

I hit the big Five-Oh on June 27...I feel like I should schedule a recreational colonoscopy to celebrate.
by sjring
Mon Jun 01, 2015 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Higher Vitamin D levels and colorectal cancer survival
Replies: 54
Views: 8076

Re: Higher Vitamin D levels and colorectal cancer survival

I've mentioned before in addition to the CRC, I had gastric bypass (gbp) back in 2007 (dx with CRC in 2013). One of the vitamins that gbp patients malabsorb is vitamin D, and it wasn't until after the CRC diagnosis that my endocrinologist put me on a high-dose vitamin D therapy to help with my diabe...
by sjring
Fri May 22, 2015 1:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Let's Hear it for Steve!
Replies: 12
Views: 1276

Re: Let's Hear it for Steve!

Way to go, Steve!
by sjring
Tue May 19, 2015 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver directed therapies?
Replies: 11
Views: 1817

Re: Liver directed therapies?

In addition to the HAI Pump, there are 2 other liver directed therapies I am aware of. The first is radioembolization (also called SIRT or Sir Spheres). Small glass beads with a radioactive element are directed through the hepatic artery into the liver. If I recall the half-life of the radioactive p...
by sjring
Tue May 12, 2015 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial/wake?
Replies: 36
Views: 3617

Re: Memorial/wake?

My original thought...put me in a plastic bag on the curb Wednesday night for the Thursday collection....apparently had a few....legal hiccups. I went ahead and did the pre-needs route, but basically let my wife picked what she was comfortable with, within the guidelines of my religious beliefs (suc...

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