Hi Debsta, I have done FolFox before and before one cycle (can't remember it was #5/6), my platelets suddenly dropped to 55... I was almost immediately hospitalized. Anyway, I was allowed to go home at last. I was then drinking a tea made out of peanut skin and red dates (you can buy both from Amazo...
My experience with FolFox and erbitux was not bad. Didn't have neutropenia, neuropathy was manageable, hair loss and rash was tolerable. I did get very good results, most of my tumors shrunk 50%. But I have to agree, when I was dealing with the rash, I was quite happy thinking the treatment must hav...
I had PALN mets when was diagnosed, and 2 PALN recurrences. The first were surgically removed, the second treated with radiotherapy and the third shrunk away within my first 3 months of chemo for life. They stopped showing up on scans 18 months ago, and I have had no evidence of visible disease for...
Hi Alreadyhere, I just went to my consultation today, thought I can share a few points for reference. 1. A lot of patients stay stable for a long time (longer than 5 years) and is seen as equivalent to cured. 2. It's not necessary to resect the nodes if they are no longer active. The nodes sometimes...
Hi rp1954, Thanks for replying. I was reading through your comments a few times. Pardon me for not having English as my first language, may I ask what this part actually means? We had later events that appeared to shift the cancer markers' degree of response amongst CEA, CA199 and AFP, perhaps indiv...
Hi there. Sorry to hear your news but wanted to reach out. I am one of those that had high SUV uptake in para aortic nodes and had them removed. I have been NED since last May but also on chemo for life. It is doable! Hey brearmstrong, Have been reading your posts too! Sometimes I feel bad not cont...
Hi Lovelife, My husband got similar news in October....he also has paraaortic nodes...1 was biopsied and is cancerous....he did a second round of chemo without any real change....his surgeon and oncologist (and the tumor board) all agree that surgery is his best option....that will happen in mid Au...
I am so very sorry to read this, Lovelife. Chemo for life isn't a very pleasant prospect, but I guess it all depends on how well you tolerate it? A colleague of mine is starting her 6th year (small bowel cancer with an inoperable met near her pelvis). She gets an infusion every month and is able to...
:cry: I haven't been posting as much, but I have been reading and have kept everyone here in my thoughts (in case prayers are not for everyone)... Got the PET report today, after it being clear for 10 months, it came back to hit me at liver 1.1cmx 1.1cm, one suspicious paraaortic LN and one suspicio...