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by lovelife789
Thu Jun 20, 2019 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 1386

Re: Low platelets before chemo

Hi Debsta, I have done FolFox before and before one cycle (can't remember it was #5/6), my platelets suddenly dropped to 55... I was almost immediately hospitalized. Anyway, I was allowed to go home at last. I was then drinking a tea made out of peanut skin and red dates (you can buy both from Amazo...
by lovelife789
Thu Jun 20, 2019 4:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 6335

Re: Currently in the ER...woo.

Wish you all the best with the lab results and everything!!!
by lovelife789
Mon Jun 17, 2019 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 10
Views: 2203

Re: A thought on chemo side effects

My experience with FolFox and erbitux was not bad. Didn't have neutropenia, neuropathy was manageable, hair loss and rash was tolerable. I did get very good results, most of my tumors shrunk 50%. But I have to agree, when I was dealing with the rash, I was quite happy thinking the treatment must hav...
by lovelife789
Sun Jun 16, 2019 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 12
Views: 3030

Re: Stage IV (with liver cyst) - 6 yrs NED

Congrats!!! Have been reading your posts. Am sure the move to a new town had some positive impact!
by lovelife789
Wed Jun 12, 2019 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another 6 months
Replies: 13
Views: 1717

Re: Another 6 months

Congrats!!! So happy for you!!!
by lovelife789
Thu Jun 06, 2019 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

Re: It has come back...in the LNs...

Thanks RP for the explanation, I read your reply a few times to make sure I understand everything. :oops:

I don't take Tagamet anymore, dropped like it's wildfire....

Really appreciate all the knowledge and idea!!!
by lovelife789
Thu Jun 06, 2019 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

Re: It has come back...in the LNs...

I had PALN mets when was diagnosed, and 2 PALN recurrences. The first were surgically removed, the second treated with radiotherapy and the third shrunk away within my first 3 months of chemo for life. They stopped showing up on scans 18 months ago, and I have had no evidence of visible disease for...
by lovelife789
Wed Jun 05, 2019 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LONG OVERDUE UPDATE
Replies: 4
Views: 1181

Re: LONG OVERDUE UPDATE

I'm sorry to hear that :cry: I keep you in my prayers.
by lovelife789
Wed Jun 05, 2019 2:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Stable ?
Replies: 9
Views: 3234

Re: Stage 4 Stable ?

Hi Alreadyhere, I just went to my consultation today, thought I can share a few points for reference. 1. A lot of patients stay stable for a long time (longer than 5 years) and is seen as equivalent to cured. 2. It's not necessary to resect the nodes if they are no longer active. The nodes sometimes...
by lovelife789
Mon Jun 03, 2019 1:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

Re: It has come back...in the LNs...

Hi rp1954, Thanks for replying. I was reading through your comments a few times. Pardon me for not having English as my first language, may I ask what this part actually means? We had later events that appeared to shift the cancer markers' degree of response amongst CEA, CA199 and AFP, perhaps indiv...
by lovelife789
Wed May 29, 2019 12:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

Re: It has come back...in the LNs...

Hi there. Sorry to hear your news but wanted to reach out. I am one of those that had high SUV uptake in para aortic nodes and had them removed. I have been NED since last May but also on chemo for life. It is doable! Hey brearmstrong, Have been reading your posts too! Sometimes I feel bad not cont...
by lovelife789
Tue May 28, 2019 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

Re: It has come back...in the LNs...

Hi Lovelife, My husband got similar news in October....he also has paraaortic nodes...1 was biopsied and is cancerous....he did a second round of chemo without any real change....his surgeon and oncologist (and the tumor board) all agree that surgery is his best option....that will happen in mid Au...
by lovelife789
Tue May 28, 2019 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

Re: It has come back...in the LNs...

I am so very sorry to read this, Lovelife. Chemo for life isn't a very pleasant prospect, but I guess it all depends on how well you tolerate it? A colleague of mine is starting her 6th year (small bowel cancer with an inoperable met near her pelvis). She gets an infusion every month and is able to...
by lovelife789
Tue May 28, 2019 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 4572

It has come back...in the LNs...

:cry: I haven't been posting as much, but I have been reading and have kept everyone here in my thoughts (in case prayers are not for everyone)... Got the PET report today, after it being clear for 10 months, it came back to hit me at liver 1.1cmx 1.1cm, one suspicious paraaortic LN and one suspicio...

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