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by JJH
Tue Mar 01, 2022 2:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on treatment approach - stage IV recurrent
Replies: 59
Views: 13166

Re: Thoughts on treatment approach - stage IV recurrent

Rock_Robster wrote:... I’m now booked for liver surgery on 4 March - a right hepatectomy and removal of the celiac nodes...
Rob

Rob -

Sending best wishes for a successful surgery and a quick, trouble-free recovery this week.

Take care ...
by JJH
Mon Feb 28, 2022 5:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8360

Re: Within the Family

...I can’t/don’t want to make friends if I’m going start to die in a short while :( prayingforccr - If I read your signature correctly, you have been given three years or less to live. In the time you have left -- however long or short it might be -- you could reach out and make some virtual friend...
by JJH
Sun Feb 27, 2022 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8360

Re: Within the Family

Readers who are interested in Alex Leukhin's "WITHIN THE FAMILY" film project might also be interested in a 2018 film produced by his co-producer, Kayla Redig. Her hour-and-a-half 2018 film is a documentary entitled "VINCIBLE", focusing on young adult cancer patients. Remember wh...
by JJH
Sun Feb 27, 2022 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Six years today!
Replies: 17
Views: 8621

Re: PSA monitoring

...PSA (prostate) up slightly to .99. Nobody seems bothered but Dr wants 6 monthly tests... John, It's good that your doctor wants 6 monthly PSA tests. This is what is needed in order to properly monitor for out-of-range and accelerating PSA levels over time. These sequential PSA tests need to be d...
by JJH
Sat Feb 26, 2022 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A big mystery solved?!?!
Replies: 61
Views: 10810

Re: A big mystery solved?!?!

... I’m already dreading DH’s ileostomy reversal (and he is still a month from getting LAR).. Claudine, You have reported on DH's recent meeting with the surgeon with various timelines for surgery, ileostomy reversal, etc., but I haven't seen any timelines that put the trip to your daughter's gradu...
by JJH
Sat Feb 26, 2022 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mucinous adenocarcenoma
Replies: 22
Views: 10747

Re: mucinous adenocarcenoma

good afternoon, i'm from Ukraine, i'm 29 years old, diagnosed on June 4, mucinous adenocarcenoma 3b, now completed the 7th course folfox / 12 tell me who faced this type of tumor? what am I missing in treatment? Maybe I need some other medications and DNA tests? sorry for bad english Hi Julia, How ...
by JJH
Fri Feb 25, 2022 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Veterans & Cancer - March 24, 2022
Replies: 0
Views: 5142

Veterans & Cancer - March 24, 2022

Join us on March 24th as we bring together veterans and VA representatives to discuss these challenges and share strategies to cope with the complexities that come with a cancer diagnosis in the military community. https://colondar.wufoo.com/forms/x1q6a0hd0ekzbbm/ "Veterans & Cancer" ...
by JJH
Thu Feb 24, 2022 6:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Within the Family
Replies: 19
Views: 8360

Re: Within the Family

.... I want to hear your voice - what to think on this matter? Share your challenging relations with family and friends during treatment? How do your family/friends help you or, maybe, distracted? I hope you will find this project somehow useful and I would appreciate any suggestions and comments. ...
by JJH
Tue Feb 22, 2022 2:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Therapy
Replies: 2
Views: 1313

Re: TIL Therapy

Hi All! I am new to this board. It is incredible how much information I have gotten from reading. Has anyone participated in a TIL Therapy trial? I'd love to get some information regarding it. Welcome to the board. It would help if you could post another message with more information about yourself...
by JJH
Thu Feb 17, 2022 3:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A big mystery solved?!?!
Replies: 61
Views: 10810

Re: A big mystery solved?!?!

...My main question right now is whether neoadjuvant chemoradiation will proceed as planned, given that it’s a T2 tumor and no lymph nodes are involved, or if protocol would switch to surgery first, then adjuvant chemo? ... Claudine - You might be able to get a perspective on this by looking at the...
by JJH
Wed Feb 16, 2022 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4th or 5th Signatera
Replies: 17
Views: 3604

Re: 4th or 5th Signatera

Signatera positive at .2 something But, having that low of a reading does not indicate with 95% accuracy so I was told. > 95% at .30 MTM/mL. Pretty darn close though. Something somewhere is brewing. According to the test I should have 8-12 months head start to change things up with protocol in orde...
by JJH
Tue Feb 15, 2022 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4th or 5th Signatera
Replies: 17
Views: 3604

Re: 4th or 5th Signatera

Yes, I had 3 show up out of 16. They also test so many variants of unknown significance with alteration type and allele freq. But some I read about are not listed. Thought that was unusual. I can send you a report if you want to look at it? No, it's not necessary to send me a report. I already down...
by JJH
Tue Feb 15, 2022 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4th or 5th Signatera
Replies: 17
Views: 3604

Re: 4th or 5th Signatera

Just a question about your Signatera profile. Do your Signatera reports identify the specific 16 somatic variants that all of your sequential tests are based on? ... Just curious ...
by JJH
Tue Feb 15, 2022 12:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A big mystery solved?!?!
Replies: 61
Views: 10810

Re: A big mystery solved?!?!

Claudine - Just a question of clarification: Your signature says "MSS, KRAS G12A", but it is not clear which tissue sample was used to obtain this result. Was this from a sample taken earlier from a metastasis, or was it from the recent, newly found second primary tumor? What I'm thinking ...
by JJH
Sun Feb 13, 2022 1:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A big mystery solved?!?!
Replies: 61
Views: 10810

Re: A big mystery solved?!?!

...Next steps are: MRI of pelvis on the 11th; meeting with radiologist same day (but radiations won’t start that day, probably the following week); and meeting with well regarded rectal surgeon on the 22nd.. Claudine - Now that you have the MRI report with an interpretation of findings, you no doub...

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